The adult multidisciplinary respiratory neuromuscular clinic
Many neuromuscular disorders (NMD) are complicated by respiratory failure. These patients are best managed in a multidisciplinary outpatient clinic to provide timely access to the various disciplines they require. The key mainstay of treatment of respiratory failure in patients with NMD is noninvasi...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
| Published: |
European Respiratory Society
2020-09-01
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| Series: | Breathe |
| Online Access: | http://breathe.ersjournals.com/content/16/3/200121.full |
| _version_ | 1818727712923058176 |
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| author | Neeraj M. Shah Patrick B. Murphy Georgios Kaltsakas |
| author_facet | Neeraj M. Shah Patrick B. Murphy Georgios Kaltsakas |
| author_sort | Neeraj M. Shah |
| collection | DOAJ |
| description | Many neuromuscular disorders (NMD) are complicated by respiratory failure. These patients are best managed in a multidisciplinary outpatient clinic to provide timely access to the various disciplines they require. The key mainstay of treatment of respiratory failure in patients with NMD is noninvasive ventilation, supported by secretion clearance, speech and language therapy, optimisation of nutrition and the maintenance of mobility. Patients with specific conditions may also require cardiology, neurology, orthopaedics, urology and psychological services. The respiratory NMD multidisciplinary team should also provide access to palliative care, and caregiver health and wellbeing should also be reviewed at clinical reviews. The future of care for the respiratory NMD patient will increasingly involve home services and telehealth and the clinic should be equipped and resourced to deliver these. Although not all health systems will be able to provide all elements of the multidisciplinary team discussed here, this review provides the “ideal” recipe for the adult multidisciplinary team and the evidence base underpinning this from which a clinic can be developed.
Educational aims
To provide an overview of the care of an adult neuromuscular disorder patient presenting to the multidisciplinary respiratory clinic. To provide the evidence base for establishing the different elements of the multidisciplinary respiratory clinic. |
| first_indexed | 2024-12-17T22:18:28Z |
| format | Article |
| id | doaj.art-cac5dc0435dc42dbbb4f9b00739dc1a7 |
| institution | Directory Open Access Journal |
| issn | 1810-6838 2073-4735 |
| language | English |
| last_indexed | 2024-12-17T22:18:28Z |
| publishDate | 2020-09-01 |
| publisher | European Respiratory Society |
| record_format | Article |
| series | Breathe |
| spelling | doaj.art-cac5dc0435dc42dbbb4f9b00739dc1a72022-12-21T21:30:32ZengEuropean Respiratory SocietyBreathe1810-68382073-47352020-09-0116310.1183/20734735.0121-20200121-2020The adult multidisciplinary respiratory neuromuscular clinicNeeraj M. Shah0Patrick B. Murphy1Georgios Kaltsakas2 Lane Fox Respiratory Service, St Thomas’ Hospital, Guy's and St Thomas’ NHS Foundation Trust, London, UK Lane Fox Respiratory Service, St Thomas’ Hospital, Guy's and St Thomas’ NHS Foundation Trust, London, UK Lane Fox Respiratory Service, St Thomas’ Hospital, Guy's and St Thomas’ NHS Foundation Trust, London, UK Many neuromuscular disorders (NMD) are complicated by respiratory failure. These patients are best managed in a multidisciplinary outpatient clinic to provide timely access to the various disciplines they require. The key mainstay of treatment of respiratory failure in patients with NMD is noninvasive ventilation, supported by secretion clearance, speech and language therapy, optimisation of nutrition and the maintenance of mobility. Patients with specific conditions may also require cardiology, neurology, orthopaedics, urology and psychological services. The respiratory NMD multidisciplinary team should also provide access to palliative care, and caregiver health and wellbeing should also be reviewed at clinical reviews. The future of care for the respiratory NMD patient will increasingly involve home services and telehealth and the clinic should be equipped and resourced to deliver these. Although not all health systems will be able to provide all elements of the multidisciplinary team discussed here, this review provides the “ideal” recipe for the adult multidisciplinary team and the evidence base underpinning this from which a clinic can be developed. Educational aims To provide an overview of the care of an adult neuromuscular disorder patient presenting to the multidisciplinary respiratory clinic. To provide the evidence base for establishing the different elements of the multidisciplinary respiratory clinic.http://breathe.ersjournals.com/content/16/3/200121.full |
| spellingShingle | Neeraj M. Shah Patrick B. Murphy Georgios Kaltsakas The adult multidisciplinary respiratory neuromuscular clinic Breathe |
| title | The adult multidisciplinary respiratory neuromuscular clinic |
| title_full | The adult multidisciplinary respiratory neuromuscular clinic |
| title_fullStr | The adult multidisciplinary respiratory neuromuscular clinic |
| title_full_unstemmed | The adult multidisciplinary respiratory neuromuscular clinic |
| title_short | The adult multidisciplinary respiratory neuromuscular clinic |
| title_sort | adult multidisciplinary respiratory neuromuscular clinic |
| url | http://breathe.ersjournals.com/content/16/3/200121.full |
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