A Limited Opportunity: COVID-19 and Promotion of Advance Care Planning
Background: Little is known about how COVID-19 has influenced the role of family caregivers in advance care planning (ACP). Objectives: To explore the experiences of family caregivers and ACP in the United States during the COVID-19 pandemic. Design: Exploratory sequential mixed-methods design of ca...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Mary Ann Liebert
2021-06-01
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| Series: | Palliative Medicine Reports |
| Subjects: | |
| Online Access: | https://www.liebertpub.com/doi/full/10.1089/PMR.2021.0013 |
| _version_ | 1797346120577318912 |
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| author | Kara B. Dassel Gail L. Towsley Rebecca L. Utz Lee Ellington Alexandra Terrill Debra Scammon Alycia A. Bristol Amber Thompson Melody Mickens |
| author_facet | Kara B. Dassel Gail L. Towsley Rebecca L. Utz Lee Ellington Alexandra Terrill Debra Scammon Alycia A. Bristol Amber Thompson Melody Mickens |
| author_sort | Kara B. Dassel |
| collection | DOAJ |
| description | Background: Little is known about how COVID-19 has influenced the role of family caregivers in advance care planning (ACP).
Objectives: To explore the experiences of family caregivers and ACP in the United States during the COVID-19 pandemic.
Design: Exploratory sequential mixed-methods design of caregiver characteristics and pandemic response to ACP.
Settings/Subjects: Family caregivers of care recipients with varied caregiving needs (dementia, mental illness, etc.).
Measurements: Quantitative survey was done of fixed-choice questions of 82 caregivers. Semistructured qualitative telephone interviews were performed of a subsample of participants (n?=?28).
Results: Some (19%) of family caregivers revisited or updated advance directives of care recipients and/or had some type of contingency plan (33%) if they were to become ill. We identified three barriers caregivers faced during the pandemic that may have limited their engagement with ACP.
Conclusions: Family caregivers need education regarding ACP and specific resources that can guide and support them through the process of ACP, for both themselves and care recipients. |
| first_indexed | 2024-03-08T11:28:21Z |
| format | Article |
| id | doaj.art-cb4863ac0b5e4d4093e6afc3e9c4391e |
| institution | Directory Open Access Journal |
| issn | 2689-2820 |
| language | English |
| last_indexed | 2024-03-08T11:28:21Z |
| publishDate | 2021-06-01 |
| publisher | Mary Ann Liebert |
| record_format | Article |
| series | Palliative Medicine Reports |
| spelling | doaj.art-cb4863ac0b5e4d4093e6afc3e9c4391e2024-01-26T04:57:35ZengMary Ann LiebertPalliative Medicine Reports2689-28202021-06-012119419810.1089/PMR.2021.0013A Limited Opportunity: COVID-19 and Promotion of Advance Care PlanningKara B. DasselGail L. TowsleyRebecca L. UtzLee EllingtonAlexandra TerrillDebra ScammonAlycia A. BristolAmber ThompsonMelody MickensBackground: Little is known about how COVID-19 has influenced the role of family caregivers in advance care planning (ACP). Objectives: To explore the experiences of family caregivers and ACP in the United States during the COVID-19 pandemic. Design: Exploratory sequential mixed-methods design of caregiver characteristics and pandemic response to ACP. Settings/Subjects: Family caregivers of care recipients with varied caregiving needs (dementia, mental illness, etc.). Measurements: Quantitative survey was done of fixed-choice questions of 82 caregivers. Semistructured qualitative telephone interviews were performed of a subsample of participants (n?=?28). Results: Some (19%) of family caregivers revisited or updated advance directives of care recipients and/or had some type of contingency plan (33%) if they were to become ill. We identified three barriers caregivers faced during the pandemic that may have limited their engagement with ACP. Conclusions: Family caregivers need education regarding ACP and specific resources that can guide and support them through the process of ACP, for both themselves and care recipients.https://www.liebertpub.com/doi/full/10.1089/PMR.2021.0013caregivingend-of-life carepandemic |
| spellingShingle | Kara B. Dassel Gail L. Towsley Rebecca L. Utz Lee Ellington Alexandra Terrill Debra Scammon Alycia A. Bristol Amber Thompson Melody Mickens A Limited Opportunity: COVID-19 and Promotion of Advance Care Planning Palliative Medicine Reports caregiving end-of-life care pandemic |
| title | A Limited Opportunity: COVID-19 and Promotion of Advance Care Planning |
| title_full | A Limited Opportunity: COVID-19 and Promotion of Advance Care Planning |
| title_fullStr | A Limited Opportunity: COVID-19 and Promotion of Advance Care Planning |
| title_full_unstemmed | A Limited Opportunity: COVID-19 and Promotion of Advance Care Planning |
| title_short | A Limited Opportunity: COVID-19 and Promotion of Advance Care Planning |
| title_sort | limited opportunity covid 19 and promotion of advance care planning |
| topic | caregiving end-of-life care pandemic |
| url | https://www.liebertpub.com/doi/full/10.1089/PMR.2021.0013 |
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