Design, construction, and implementation of an online platform for patients with type 1 diabetes: EncoDiab

Dácil Alvarado-Martel,1,2,* Francesca Cañas,3,* Rebeca Velasco,1 Nuria Alcubierre,3 Laura López-Ríos,1,2 Ferran Rius,4 Francisco Javier Nóvoa,1,2 Armando Carrillo,1,2 Marta Hernández,3,4 Ana María Wägner,1,2,* D&am...

Full description

Bibliographic Details
Main Authors: Alvarado-Martel D, Cañas F, Velasco R, Alcubierre N, López-Ríos L, Rius F, Nóvoa FJ, Carrillo A, Hernández M, Wägner AM, Mauricio D
Format: Article
Language:English
Published: Dove Medical Press 2015-06-01
Series:Patient Preference and Adherence
Online Access:http://www.dovepress.com/design-construction-and-implementation-ofnbspannbsponline-platform-for-peer-reviewed-article-PPA
_version_ 1818365137136910336
author Alvarado-Martel D
Cañas F
Velasco R
Alcubierre N
López-Ríos L
Rius F
Nóvoa FJ
Carrillo A
Hernández M
Wägner AM
Mauricio D
author_facet Alvarado-Martel D
Cañas F
Velasco R
Alcubierre N
López-Ríos L
Rius F
Nóvoa FJ
Carrillo A
Hernández M
Wägner AM
Mauricio D
author_sort Alvarado-Martel D
collection DOAJ
description Dácil Alvarado-Martel,1,2,* Francesca Cañas,3,* Rebeca Velasco,1 Nuria Alcubierre,3 Laura López-Ríos,1,2 Ferran Rius,4 Francisco Javier Nóvoa,1,2 Armando Carrillo,1,2 Marta Hernández,3,4 Ana María Wägner,1,2,* Dídac Mauricio5,6,* 1Department of Endocrinology and Nutrition, Complejo Hospitalario Universitario Insular Materno-Infantil de Gran Canaria, Las Palmas, Spain; 2Instituto Universitario de Investigaciones Biomédicas y Sanitarias, Universidad de Las Palmas de Gran Canaria, Las Palmas, Spain; 3Department of Endocrinology and Nutrition, Institut de Recerca Biomèdica de Lleida (IRBLleida), Lleida, Spain; 4Department of Endocrinology and Nutrition, Hospital Universitari Arnau de Vilanova, Lleida, Spain; 5Hospital Universitari Germans Trias i Pujol, Badalona, Spain; 6Health Sciences Research Institute Germans Trias i Pujol, Badalona, Spain *These authors contributed equally to this work Purpose: The purpose of this study was to develop, build, and implement a virtual platform equipped with practical tools, relevant contents, and communication rooms, with the aim of facilitating patients’ self-management of type 1 diabetes mellitus (T1DM).Materials and methods: The design of the platform was based on the suggestions of T1DM patients who were being managed at two reference hospitals. Patients’ needs and preferences were identified in group discussion sessions. Before having access to the platform, patients underwent a baseline assessment, which included physical examination and the administration of validated questionnaires for evaluation of clinical background, quality of life, treatment satisfaction, and well-being.Results: A total of 33 patients were included in the study; 54.5% of them were men, their median age was 34 (18–50) years, the median duration of diabetes was 15 (1–38) years, and the median A1C was 7.4% (6%–12.6%). Based on their suggestions and requests, the online platform EncoDiab was built and organized into four domains: a personal domain, two domains shared by the patients and the staff of each of the two participating hospitals, and one domain that was accessible to all participants. The platform included practical tools (a body mass index calculator, a carbohydrate counting tool, and an insulin-dose calculator), a library with relevant information (documents on prevention and treatment of acute complications, nutrition, exercise, etc), and a chat room.Conclusion: Although the study is still ongoing, our current results demonstrate the feasibility of building and implementing an online platform for helping T1DM patients in the self-management of their disease in the public health setting. Keywords: eHealth, behavioral health, telehealth, education
first_indexed 2024-12-13T22:15:29Z
format Article
id doaj.art-cb543c8264dd4f969633df6b36d25818
institution Directory Open Access Journal
issn 1177-889X
language English
last_indexed 2024-12-13T22:15:29Z
publishDate 2015-06-01
publisher Dove Medical Press
record_format Article
series Patient Preference and Adherence
spelling doaj.art-cb543c8264dd4f969633df6b36d258182022-12-21T23:29:36ZengDove Medical PressPatient Preference and Adherence1177-889X2015-06-012015default76777522162Design, construction, and implementation of an online platform for patients with type 1 diabetes: EncoDiabAlvarado-Martel DCañas FVelasco RAlcubierre NLópez-Ríos LRius FNóvoa FJCarrillo AHernández MWägner AMMauricio DDácil Alvarado-Martel,1,2,* Francesca Cañas,3,* Rebeca Velasco,1 Nuria Alcubierre,3 Laura López-Ríos,1,2 Ferran Rius,4 Francisco Javier Nóvoa,1,2 Armando Carrillo,1,2 Marta Hernández,3,4 Ana María Wägner,1,2,* Dídac Mauricio5,6,* 1Department of Endocrinology and Nutrition, Complejo Hospitalario Universitario Insular Materno-Infantil de Gran Canaria, Las Palmas, Spain; 2Instituto Universitario de Investigaciones Biomédicas y Sanitarias, Universidad de Las Palmas de Gran Canaria, Las Palmas, Spain; 3Department of Endocrinology and Nutrition, Institut de Recerca Biomèdica de Lleida (IRBLleida), Lleida, Spain; 4Department of Endocrinology and Nutrition, Hospital Universitari Arnau de Vilanova, Lleida, Spain; 5Hospital Universitari Germans Trias i Pujol, Badalona, Spain; 6Health Sciences Research Institute Germans Trias i Pujol, Badalona, Spain *These authors contributed equally to this work Purpose: The purpose of this study was to develop, build, and implement a virtual platform equipped with practical tools, relevant contents, and communication rooms, with the aim of facilitating patients’ self-management of type 1 diabetes mellitus (T1DM).Materials and methods: The design of the platform was based on the suggestions of T1DM patients who were being managed at two reference hospitals. Patients’ needs and preferences were identified in group discussion sessions. Before having access to the platform, patients underwent a baseline assessment, which included physical examination and the administration of validated questionnaires for evaluation of clinical background, quality of life, treatment satisfaction, and well-being.Results: A total of 33 patients were included in the study; 54.5% of them were men, their median age was 34 (18–50) years, the median duration of diabetes was 15 (1–38) years, and the median A1C was 7.4% (6%–12.6%). Based on their suggestions and requests, the online platform EncoDiab was built and organized into four domains: a personal domain, two domains shared by the patients and the staff of each of the two participating hospitals, and one domain that was accessible to all participants. The platform included practical tools (a body mass index calculator, a carbohydrate counting tool, and an insulin-dose calculator), a library with relevant information (documents on prevention and treatment of acute complications, nutrition, exercise, etc), and a chat room.Conclusion: Although the study is still ongoing, our current results demonstrate the feasibility of building and implementing an online platform for helping T1DM patients in the self-management of their disease in the public health setting. Keywords: eHealth, behavioral health, telehealth, educationhttp://www.dovepress.com/design-construction-and-implementation-ofnbspannbsponline-platform-for-peer-reviewed-article-PPA
spellingShingle Alvarado-Martel D
Cañas F
Velasco R
Alcubierre N
López-Ríos L
Rius F
Nóvoa FJ
Carrillo A
Hernández M
Wägner AM
Mauricio D
Design, construction, and implementation of an online platform for patients with type 1 diabetes: EncoDiab
Patient Preference and Adherence
title Design, construction, and implementation of an online platform for patients with type 1 diabetes: EncoDiab
title_full Design, construction, and implementation of an online platform for patients with type 1 diabetes: EncoDiab
title_fullStr Design, construction, and implementation of an online platform for patients with type 1 diabetes: EncoDiab
title_full_unstemmed Design, construction, and implementation of an online platform for patients with type 1 diabetes: EncoDiab
title_short Design, construction, and implementation of an online platform for patients with type 1 diabetes: EncoDiab
title_sort design construction and implementation of nbsp an nbsp online platform for patients with type 1 diabetes encodiab
url http://www.dovepress.com/design-construction-and-implementation-ofnbspannbsponline-platform-for-peer-reviewed-article-PPA
work_keys_str_mv AT alvaradomarteld designconstructionandimplementationofnbspannbsponlineplatformforpatientswithtype1diabetesencodiab
AT cantildeasf designconstructionandimplementationofnbspannbsponlineplatformforpatientswithtype1diabetesencodiab
AT velascor designconstructionandimplementationofnbspannbsponlineplatformforpatientswithtype1diabetesencodiab
AT alcubierren designconstructionandimplementationofnbspannbsponlineplatformforpatientswithtype1diabetesencodiab
AT loacutepezriacuteosl designconstructionandimplementationofnbspannbsponlineplatformforpatientswithtype1diabetesencodiab
AT riusf designconstructionandimplementationofnbspannbsponlineplatformforpatientswithtype1diabetesencodiab
AT noacutevoafj designconstructionandimplementationofnbspannbsponlineplatformforpatientswithtype1diabetesencodiab
AT carrilloa designconstructionandimplementationofnbspannbsponlineplatformforpatientswithtype1diabetesencodiab
AT hernaacutendezm designconstructionandimplementationofnbspannbsponlineplatformforpatientswithtype1diabetesencodiab
AT waumlgneram designconstructionandimplementationofnbspannbsponlineplatformforpatientswithtype1diabetesencodiab
AT mauriciod designconstructionandimplementationofnbspannbsponlineplatformforpatientswithtype1diabetesencodiab