QUALITY OF LIFE IN PATIENTS WITH THALASSEMIA MAJOR AND INTERMEDIA IN KERMAN-IRAN (I.R.)
Thalassemia is the most common hemoglobin disorder in the world and thalassemia major and intermedia stand among the most severe forms. Due to recent improvements in treatment, patients with thalassemia have longer life expectancies; hence it is of utmost importance to pay careful attention to their...
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| Format: | Article |
| Language: | English |
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Mattioli1885
2012-10-01
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| Series: | Mediterranean Journal of Hematology and Infectious Diseases |
| Subjects: | |
| Online Access: | http://www.mjhid.org/index.php/mjhid/article/view/376 |
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| author | Hossein Safizadeh Zahra Farahmandinia Simin Soltani nejad Nasim Pourdamghan Majid Araste |
| author_facet | Hossein Safizadeh Zahra Farahmandinia Simin Soltani nejad Nasim Pourdamghan Majid Araste |
| author_sort | Hossein Safizadeh |
| collection | DOAJ |
| description | Thalassemia is the most common hemoglobin disorder in the world and thalassemia major and intermedia stand among the most severe forms. Due to recent improvements in treatment, patients with thalassemia have longer life expectancies; hence it is of utmost importance to pay careful attention to their quality of life together with life expectancy. This study was conducted to assess the quality of life in patients with thalassemia and also to compare it between thalassemia major and intermedia. In this cross-sectional study, patients who referred for blood transfusion or follow-up visits were evaluated for their quality of life (QOL). Short Form-36 questionnaire was applied to evaluate QOL. In this study, 308 patients with a mean age of 22.95±4.82 years were evaluated. The scores of QOL were regarded as moderate in eight domains under evaluation; the least score was given to General Health (53.05±16.96) whereas the highest score was given to Physical Functioning (67.95±22.68). The QOL in the patients with thalassemia major was better than those with thalassemia intermedia regarding Physical Functioning and Role Limitation Emotional domains. Compared to injecting chelators, patients who received oral chelators showed to have a better QOL considering Social Functioning and Mental Health domain. The patients under study didn’t have a satisfying QOL ; the QOL of patients with thalassemia major was better than that of patients with thalassemia intermedia in only 2 domains of sf-36(Physical Functioning & Role limitation-Emotional). It is then essential that experts pay proper attention to improve QOL among patients. |
| first_indexed | 2024-12-22T05:55:57Z |
| format | Article |
| id | doaj.art-cbfb48328fda44ab8c7a21c0668ed252 |
| institution | Directory Open Access Journal |
| issn | 2035-3006 |
| language | English |
| last_indexed | 2024-12-22T05:55:57Z |
| publishDate | 2012-10-01 |
| publisher | Mattioli1885 |
| record_format | Article |
| series | Mediterranean Journal of Hematology and Infectious Diseases |
| spelling | doaj.art-cbfb48328fda44ab8c7a21c0668ed2522022-12-21T18:36:44ZengMattioli1885Mediterranean Journal of Hematology and Infectious Diseases2035-30062012-10-0141e2012058e201205810.4084/mjhid.2012.058268QUALITY OF LIFE IN PATIENTS WITH THALASSEMIA MAJOR AND INTERMEDIA IN KERMAN-IRAN (I.R.)Hossein Safizadeh0Zahra Farahmandinia1Simin Soltani nejad2Nasim Pourdamghan3Majid Araste4Neurosciences Research Center, Kerman University of Medical SciencesDepartment of pediatrics, Afzalipour Medicine School, Kerman University of Medical SciencesMedical Student Research Committee, Kerman University of Medical SciencesKerman University of Medical SciencesIranian Thalassemia SocietyThalassemia is the most common hemoglobin disorder in the world and thalassemia major and intermedia stand among the most severe forms. Due to recent improvements in treatment, patients with thalassemia have longer life expectancies; hence it is of utmost importance to pay careful attention to their quality of life together with life expectancy. This study was conducted to assess the quality of life in patients with thalassemia and also to compare it between thalassemia major and intermedia. In this cross-sectional study, patients who referred for blood transfusion or follow-up visits were evaluated for their quality of life (QOL). Short Form-36 questionnaire was applied to evaluate QOL. In this study, 308 patients with a mean age of 22.95±4.82 years were evaluated. The scores of QOL were regarded as moderate in eight domains under evaluation; the least score was given to General Health (53.05±16.96) whereas the highest score was given to Physical Functioning (67.95±22.68). The QOL in the patients with thalassemia major was better than those with thalassemia intermedia regarding Physical Functioning and Role Limitation Emotional domains. Compared to injecting chelators, patients who received oral chelators showed to have a better QOL considering Social Functioning and Mental Health domain. The patients under study didn’t have a satisfying QOL ; the QOL of patients with thalassemia major was better than that of patients with thalassemia intermedia in only 2 domains of sf-36(Physical Functioning & Role limitation-Emotional). It is then essential that experts pay proper attention to improve QOL among patients.http://www.mjhid.org/index.php/mjhid/article/view/376ThalassemiaQuality of LifeIran |
| spellingShingle | Hossein Safizadeh Zahra Farahmandinia Simin Soltani nejad Nasim Pourdamghan Majid Araste QUALITY OF LIFE IN PATIENTS WITH THALASSEMIA MAJOR AND INTERMEDIA IN KERMAN-IRAN (I.R.) Mediterranean Journal of Hematology and Infectious Diseases Thalassemia Quality of Life Iran |
| title | QUALITY OF LIFE IN PATIENTS WITH THALASSEMIA MAJOR AND INTERMEDIA IN KERMAN-IRAN (I.R.) |
| title_full | QUALITY OF LIFE IN PATIENTS WITH THALASSEMIA MAJOR AND INTERMEDIA IN KERMAN-IRAN (I.R.) |
| title_fullStr | QUALITY OF LIFE IN PATIENTS WITH THALASSEMIA MAJOR AND INTERMEDIA IN KERMAN-IRAN (I.R.) |
| title_full_unstemmed | QUALITY OF LIFE IN PATIENTS WITH THALASSEMIA MAJOR AND INTERMEDIA IN KERMAN-IRAN (I.R.) |
| title_short | QUALITY OF LIFE IN PATIENTS WITH THALASSEMIA MAJOR AND INTERMEDIA IN KERMAN-IRAN (I.R.) |
| title_sort | quality of life in patients with thalassemia major and intermedia in kerman iran i r |
| topic | Thalassemia Quality of Life Iran |
| url | http://www.mjhid.org/index.php/mjhid/article/view/376 |
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