Impact of biobanks on research outcomes in rare diseases: a systematic review

Impact of biobanks on research outcomes in rare diseases: a systematic review

Abstract Background Alleviating the burden of rare diseases requires research into new diagnostic and therapeutic strategies. We undertook a systematic review to identify and compare the impact of stand-alone registries, registries with biobanks, and rare disease biobanks on research outcomes in rar...

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Bibliographic Details
Main Authors: Monique Garcia, Jenny Downs, Alyce Russell, Wei Wang
Format: Article
Language:English
Published: BMC 2018-11-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Rare disease
Registries
Biobank
Systematic review
Online Access:http://link.springer.com/article/10.1186/s13023-018-0942-z

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