The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica
Aim: To explore the lived experiences of adolescents with sickle cell disease, in Kingston, Jamaica. Method: A descriptive qualitative design was used for this research. In-depth interviews were conducted with six adolescents with sickle cell disease at a Sickle Cell Unit operated by the University...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2015-09-01
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| Series: | International Journal of Qualitative Studies on Health & Well-Being |
| Subjects: | |
| Online Access: | http://www.ijqhw.net/index.php/qhw/article/view/28104/42017 |
| _version_ | 1819213083940225024 |
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| author | Andrea Brown Forrester Antoinette Barton-Gooden Cynthia Pitter Jascinth L. M. Lindo |
| author_facet | Andrea Brown Forrester Antoinette Barton-Gooden Cynthia Pitter Jascinth L. M. Lindo |
| author_sort | Andrea Brown Forrester |
| collection | DOAJ |
| description | Aim: To explore the lived experiences of adolescents with sickle cell disease, in Kingston, Jamaica. Method: A descriptive qualitative design was used for this research. In-depth interviews were conducted with six adolescents with sickle cell disease at a Sickle Cell Unit operated by the University of the West Indies. Interviews were audiotaped, transcribed, and thematically analyzed. Results: The majority of the adolescents demonstrated a positive self-concept. They reported strong family, school, and peer support which made them feel accepted. All were actively engaged in social activities such as parties, but had challenges participating in sporting activities. Various coping strategies were utilized to address challenges of the disease including praying, watching television, and surfing the Internet. Conclusion: Sickle cell disease can be very challenging for the adolescent, but with positive self-concept and increased social support, especially from family and peers, these adolescents were able to effectively cope with their condition and live productive lives. |
| first_indexed | 2024-12-23T06:53:14Z |
| format | Article |
| id | doaj.art-ccd561d6f2ee4aab8aede0529c9d8dbb |
| institution | Directory Open Access Journal |
| issn | 1748-2631 |
| language | English |
| last_indexed | 2024-12-23T06:53:14Z |
| publishDate | 2015-09-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | International Journal of Qualitative Studies on Health & Well-Being |
| spelling | doaj.art-ccd561d6f2ee4aab8aede0529c9d8dbb2022-12-21T17:56:23ZengTaylor & Francis GroupInternational Journal of Qualitative Studies on Health & Well-Being1748-26312015-09-011001910.3402/qhw.v10.2810428104The lived experiences of adolescents with sickle cell disease in Kingston, JamaicaAndrea Brown Forrester0Antoinette Barton-Gooden1Cynthia Pitter2Jascinth L. M. Lindo3The UWI School of Nursing, Faculty of Medical Sciences, University of the West Indies, Kingston, JamaicaThe UWI School of Nursing, Faculty of Medical Sciences, University of the West Indies, Kingston, JamaicaThe UWI School of Nursing, Faculty of Medical Sciences, University of the West Indies, Kingston, JamaicaThe UWI School of Nursing, Faculty of Medical Sciences, University of the West Indies, Kingston, JamaicaAim: To explore the lived experiences of adolescents with sickle cell disease, in Kingston, Jamaica. Method: A descriptive qualitative design was used for this research. In-depth interviews were conducted with six adolescents with sickle cell disease at a Sickle Cell Unit operated by the University of the West Indies. Interviews were audiotaped, transcribed, and thematically analyzed. Results: The majority of the adolescents demonstrated a positive self-concept. They reported strong family, school, and peer support which made them feel accepted. All were actively engaged in social activities such as parties, but had challenges participating in sporting activities. Various coping strategies were utilized to address challenges of the disease including praying, watching television, and surfing the Internet. Conclusion: Sickle cell disease can be very challenging for the adolescent, but with positive self-concept and increased social support, especially from family and peers, these adolescents were able to effectively cope with their condition and live productive lives.http://www.ijqhw.net/index.php/qhw/article/view/28104/42017Adolescencelived experiencepsychosocialsickle cell diseaseJamaica |
| spellingShingle | Andrea Brown Forrester Antoinette Barton-Gooden Cynthia Pitter Jascinth L. M. Lindo The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica International Journal of Qualitative Studies on Health & Well-Being Adolescence lived experience psychosocial sickle cell disease Jamaica |
| title | The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica |
| title_full | The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica |
| title_fullStr | The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica |
| title_full_unstemmed | The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica |
| title_short | The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica |
| title_sort | lived experiences of adolescents with sickle cell disease in kingston jamaica |
| topic | Adolescence lived experience psychosocial sickle cell disease Jamaica |
| url | http://www.ijqhw.net/index.php/qhw/article/view/28104/42017 |
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