Experiences and perceptions of youth living with HIV in Western Uganda on school attendance: barriers and facilitators

Abstract Background The globally recognized socio-economic benefits of education have stirred many countries in Sub-Saharan Africa like Uganda to promote universal access to schooling by removing fiscal barricades for those in primary and secondary schools. However, the proportion of Youth Living Wi...

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Main Authors: Emmanuel Kimera, Sofie Vindevogel, Mugenyi Justuce Kintu, John Rubaihayo, Jessica De Maeyer, Didier Reynaert, Anne-Mie Engelen, Fred Nuwaha, Johan Bilsen
Format: Article
Language:English
Published: BMC 2020-01-01
Series:BMC Public Health
Subjects:
Online Access:https://doi.org/10.1186/s12889-020-8198-7
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author Emmanuel Kimera
Sofie Vindevogel
Mugenyi Justuce Kintu
John Rubaihayo
Jessica De Maeyer
Didier Reynaert
Anne-Mie Engelen
Fred Nuwaha
Johan Bilsen
author_facet Emmanuel Kimera
Sofie Vindevogel
Mugenyi Justuce Kintu
John Rubaihayo
Jessica De Maeyer
Didier Reynaert
Anne-Mie Engelen
Fred Nuwaha
Johan Bilsen
author_sort Emmanuel Kimera
collection DOAJ
description Abstract Background The globally recognized socio-economic benefits of education have stirred many countries in Sub-Saharan Africa like Uganda to promote universal access to schooling by removing fiscal barricades for those in primary and secondary schools. However, the proportion of Youth Living With HIV/AIDS (YLWHA) missing school, studying with difficulties and dropping out of school in Uganda has been observed to be higher than that of other youth. This study aimed at understanding the barriers and facilitators for YLWHA in Uganda to attend school. Methods We conducted a qualitative inquiry with 35 purposively selected YLWHA aged 12 to 19 years, including 16 females at three accredited Antiretroviral Therapy (ART) treatment centres in Kabarole district in Western Uganda. Individual semi-structured interviews were tape-recorded, transcribed verbatim and subjected to thematic inductive analysis. Results We identified five main themes in which barriers to attend school were reported and four main themes in which facilitators were reported by participants. The main themes for barriers were: 1) management of ART and illnesses, 2) fear, negative thoughts and self-devaluation, 3) lack of meaningful and supportive relationships, 4) reactionary attitudes and behaviours from others at school, 5) financial challenges. The main themes for facilitators were: 1) practical support at school, home and community, 2) counselling, encouragement and spirituality, 3) individual coping strategies, 4) hopes, dreams and opportunities for the future. Conclusion Most of the barriers reported arose from HIV-related stigma and financial challenges whose genesis transcends school boundaries. While YLWHA reported measures to cope, and support from other people, these were non-sustainable and on a limited scale due to disclosure apprehension at school and the indiscretion of those who learnt about their status. To promote supportive school environments for YLWHA, integrated curricular and extracurricular interventions are necessary to increase HIV knowledge, dispel misconceptions about HIV and consequently transform the school community from a stigmatizing one to a supportive one.
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spelling doaj.art-ccfb082330404d99a76c6d9982ca2b352022-12-21T22:33:32ZengBMCBMC Public Health1471-24582020-01-0120111210.1186/s12889-020-8198-7Experiences and perceptions of youth living with HIV in Western Uganda on school attendance: barriers and facilitatorsEmmanuel Kimera0Sofie Vindevogel1Mugenyi Justuce Kintu2John Rubaihayo3Jessica De Maeyer4Didier Reynaert5Anne-Mie Engelen6Fred Nuwaha7Johan Bilsen8Department of Public Health, School of Health Sciences, Mountain of the Moon UniversityDepartment of Orthopedagogy, Faculty of Education, Health and Social Work, University of Applied Sciences and Arts GentDepartment of Public Health, School of Health Sciences, Mountain of the Moon UniversityDepartment of Public Health, School of Health Sciences, Mountain of the Moon UniversityDepartment of Orthopedagogy, Faculty of Education, Health and Social Work, University of Applied Sciences and Arts GentDepartment of Orthopedagogy, Faculty of Education, Health and Social Work, University of Applied Sciences and Arts GentDepartment of Occupational therapy, Faculty of Education, Health and Social Work, University of Applied Sciences and Arts GentCollege of Health Sciences, School of Public Health, Makerere UniversityDepartment of Public Health, Mental Health and Wellbeing research group, Vrije Universiteit BrusselsAbstract Background The globally recognized socio-economic benefits of education have stirred many countries in Sub-Saharan Africa like Uganda to promote universal access to schooling by removing fiscal barricades for those in primary and secondary schools. However, the proportion of Youth Living With HIV/AIDS (YLWHA) missing school, studying with difficulties and dropping out of school in Uganda has been observed to be higher than that of other youth. This study aimed at understanding the barriers and facilitators for YLWHA in Uganda to attend school. Methods We conducted a qualitative inquiry with 35 purposively selected YLWHA aged 12 to 19 years, including 16 females at three accredited Antiretroviral Therapy (ART) treatment centres in Kabarole district in Western Uganda. Individual semi-structured interviews were tape-recorded, transcribed verbatim and subjected to thematic inductive analysis. Results We identified five main themes in which barriers to attend school were reported and four main themes in which facilitators were reported by participants. The main themes for barriers were: 1) management of ART and illnesses, 2) fear, negative thoughts and self-devaluation, 3) lack of meaningful and supportive relationships, 4) reactionary attitudes and behaviours from others at school, 5) financial challenges. The main themes for facilitators were: 1) practical support at school, home and community, 2) counselling, encouragement and spirituality, 3) individual coping strategies, 4) hopes, dreams and opportunities for the future. Conclusion Most of the barriers reported arose from HIV-related stigma and financial challenges whose genesis transcends school boundaries. While YLWHA reported measures to cope, and support from other people, these were non-sustainable and on a limited scale due to disclosure apprehension at school and the indiscretion of those who learnt about their status. To promote supportive school environments for YLWHA, integrated curricular and extracurricular interventions are necessary to increase HIV knowledge, dispel misconceptions about HIV and consequently transform the school community from a stigmatizing one to a supportive one.https://doi.org/10.1186/s12889-020-8198-7HIVYouthSchoolQualitativeBarriersChallenges
spellingShingle Emmanuel Kimera
Sofie Vindevogel
Mugenyi Justuce Kintu
John Rubaihayo
Jessica De Maeyer
Didier Reynaert
Anne-Mie Engelen
Fred Nuwaha
Johan Bilsen
Experiences and perceptions of youth living with HIV in Western Uganda on school attendance: barriers and facilitators
BMC Public Health
HIV
Youth
School
Qualitative
Barriers
Challenges
title Experiences and perceptions of youth living with HIV in Western Uganda on school attendance: barriers and facilitators
title_full Experiences and perceptions of youth living with HIV in Western Uganda on school attendance: barriers and facilitators
title_fullStr Experiences and perceptions of youth living with HIV in Western Uganda on school attendance: barriers and facilitators
title_full_unstemmed Experiences and perceptions of youth living with HIV in Western Uganda on school attendance: barriers and facilitators
title_short Experiences and perceptions of youth living with HIV in Western Uganda on school attendance: barriers and facilitators
title_sort experiences and perceptions of youth living with hiv in western uganda on school attendance barriers and facilitators
topic HIV
Youth
School
Qualitative
Barriers
Challenges
url https://doi.org/10.1186/s12889-020-8198-7
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