Improving health literacy and treatment understanding of hidradenitis suppurativa using group educational interventions
Background: Hidradenitis suppurativa (HS) is a chronic immune-mediated skin disorder characterized by inflamed, painful abscesses most commonly located in the intertriginous regions that may lead to significant scarring and social stigma. It is unclear how much patients with HS understand about thei...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Taylor & Francis Group
2019-10-01
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| Series: | Journal of Dermatological Treatment |
| Subjects: | |
| Online Access: | http://dx.doi.org/10.1080/09546634.2018.1562536 |
| _version_ | 1797683709137125376 |
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| author | Lisa Prussick Sarah Tonelli Alice B. Gottlieb Deep Joshipura Abdulaziz Alomran Pedro Zancanaro RN Courtney Kachuk Nicole Dumont David Rosmarin |
| author_facet | Lisa Prussick Sarah Tonelli Alice B. Gottlieb Deep Joshipura Abdulaziz Alomran Pedro Zancanaro RN Courtney Kachuk Nicole Dumont David Rosmarin |
| author_sort | Lisa Prussick |
| collection | DOAJ |
| description | Background: Hidradenitis suppurativa (HS) is a chronic immune-mediated skin disorder characterized by inflamed, painful abscesses most commonly located in the intertriginous regions that may lead to significant scarring and social stigma. It is unclear how much patients with HS understand about their disease. Objective: We sought to evaluate baseline knowledge of patients who have HS, as well as to evaluate if an educational intervention of a teaching session about the disease will help increase patient’s knowledge of their ailment and treatment options. These sessions also act as a support group for the participants, during which they have time to connect with one another and discuss their experiences with HS. Methods: Participants were recruited at Tufts Medical Center by searching for an ICD-10 code of HS or were identified via advertisement. Eligible subjects were given a study specific questionnaire pre- and post an educational lecture on HS. Results: Twenty subjects participated in the study, conducted from June 2017 through January 2018. Mean test score improved from 62.7% to 82.7% (p < .0001). Additionally, participants reported an average of 20.3% (p = .0002) improvement in their knowledge of HS postintervention. Conclusions: Group information sessions can be an effective means to educate patients with hidradenitis suppurativa and were preferable to the majority of participants in this study. |
| first_indexed | 2024-03-12T00:18:29Z |
| format | Article |
| id | doaj.art-cd50ce09d2d340f0a18f86365666b8bd |
| institution | Directory Open Access Journal |
| issn | 0954-6634 1471-1753 |
| language | English |
| last_indexed | 2024-03-12T00:18:29Z |
| publishDate | 2019-10-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | Journal of Dermatological Treatment |
| spelling | doaj.art-cd50ce09d2d340f0a18f86365666b8bd2023-09-15T14:08:34ZengTaylor & Francis GroupJournal of Dermatological Treatment0954-66341471-17532019-10-0130770871310.1080/09546634.2018.15625361562536Improving health literacy and treatment understanding of hidradenitis suppurativa using group educational interventionsLisa Prussick0Sarah Tonelli1Alice B. Gottlieb2Deep Joshipura3Abdulaziz Alomran4Pedro Zancanaro5RN Courtney Kachuk6Nicole Dumont7David Rosmarin8Tufts Medical CenterTufts Medical CenterNew York Medical College, Metropolitan HospitalTufts Medical CenterTufts Medical CenterTufts Medical CenterTufts Medical CenterTufts Medical CenterTufts Medical CenterBackground: Hidradenitis suppurativa (HS) is a chronic immune-mediated skin disorder characterized by inflamed, painful abscesses most commonly located in the intertriginous regions that may lead to significant scarring and social stigma. It is unclear how much patients with HS understand about their disease. Objective: We sought to evaluate baseline knowledge of patients who have HS, as well as to evaluate if an educational intervention of a teaching session about the disease will help increase patient’s knowledge of their ailment and treatment options. These sessions also act as a support group for the participants, during which they have time to connect with one another and discuss their experiences with HS. Methods: Participants were recruited at Tufts Medical Center by searching for an ICD-10 code of HS or were identified via advertisement. Eligible subjects were given a study specific questionnaire pre- and post an educational lecture on HS. Results: Twenty subjects participated in the study, conducted from June 2017 through January 2018. Mean test score improved from 62.7% to 82.7% (p < .0001). Additionally, participants reported an average of 20.3% (p = .0002) improvement in their knowledge of HS postintervention. Conclusions: Group information sessions can be an effective means to educate patients with hidradenitis suppurativa and were preferable to the majority of participants in this study.http://dx.doi.org/10.1080/09546634.2018.1562536hidradenitis suppurativaeducationsupport group |
| spellingShingle | Lisa Prussick Sarah Tonelli Alice B. Gottlieb Deep Joshipura Abdulaziz Alomran Pedro Zancanaro RN Courtney Kachuk Nicole Dumont David Rosmarin Improving health literacy and treatment understanding of hidradenitis suppurativa using group educational interventions Journal of Dermatological Treatment hidradenitis suppurativa education support group |
| title | Improving health literacy and treatment understanding of hidradenitis suppurativa using group educational interventions |
| title_full | Improving health literacy and treatment understanding of hidradenitis suppurativa using group educational interventions |
| title_fullStr | Improving health literacy and treatment understanding of hidradenitis suppurativa using group educational interventions |
| title_full_unstemmed | Improving health literacy and treatment understanding of hidradenitis suppurativa using group educational interventions |
| title_short | Improving health literacy and treatment understanding of hidradenitis suppurativa using group educational interventions |
| title_sort | improving health literacy and treatment understanding of hidradenitis suppurativa using group educational interventions |
| topic | hidradenitis suppurativa education support group |
| url | http://dx.doi.org/10.1080/09546634.2018.1562536 |
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