A Minimum Data Set of Educational Self-care Software for Patients with Cirrhosis

Introduction: Liver cirrhosis has grown significantly in Asian countries over the last few years. However, there is no tool for collecting liver cirrhosis data. The purpose of this study was to design a minimum data set for the self-care education of liver cirrhosis. Methods: This descriptive study...

Full description

Bibliographic Details
Main Authors: Haleh Farsadhabibi, Mostafa Langarizadeh, Mostafa Alavi Moghadam
Format: Article
Language:fas
Published: Kerman University of Medical Sciences 2020-03-01
Series:مجله انفورماتیک سلامت و زیست پزشکی
Subjects:
Online Access:http://jhbmi.ir/article-1-316-en.html
_version_ 1811176328504803328
author Haleh Farsadhabibi
Mostafa Langarizadeh
Mostafa Alavi Moghadam
author_facet Haleh Farsadhabibi
Mostafa Langarizadeh
Mostafa Alavi Moghadam
author_sort Haleh Farsadhabibi
collection DOAJ
description Introduction: Liver cirrhosis has grown significantly in Asian countries over the last few years. However, there is no tool for collecting liver cirrhosis data. The purpose of this study was to design a minimum data set for the self-care education of liver cirrhosis. Methods: This descriptive study was conducted in the first half of 2018 in cooperation with 16 liver specialists of Rasool Akram Hospital and Firoozgar Hospital in Tehran. The research tool was a researcher-made questionnaire. The content validity method was used to validate the questionnaire and its reliability was confirmed through test-retest method (r = 0.84). Data were analyzed using SPSS21 software. Results: The minimum data set was organized in six categories: demographic, clinical, disease symptoms, dietary recommendations, general recommendations, medications and reminders. The demographic data collection consisted of 15 data elements, clinical data included 27 data elements, clinical symptoms included 9 data elements, food recommendations, consisted of 7 parts and 14 data elements, general recommendations consisted of 7 parts and 12 elements of data, and medications and reminders had two parts and 12 elements. Conclusion: Considering the importance of data and information in the self-care of patients with liver cirrhosis and the role of software in collecting and sharing data with physicians, as well as reducing the number of visits to the hospital, attention should be paid to the minimum data set of self-care in patients with liver cirrhosis.
first_indexed 2024-04-10T19:49:57Z
format Article
id doaj.art-cda7094e4de046b7bcefa533701b0ccf
institution Directory Open Access Journal
issn 2423-3870
2423-3498
language fas
last_indexed 2024-04-10T19:49:57Z
publishDate 2020-03-01
publisher Kerman University of Medical Sciences
record_format Article
series مجله انفورماتیک سلامت و زیست پزشکی
spelling doaj.art-cda7094e4de046b7bcefa533701b0ccf2023-01-28T10:30:48ZfasKerman University of Medical Sciencesمجله انفورماتیک سلامت و زیست پزشکی2423-38702423-34982020-03-0164264271A Minimum Data Set of Educational Self-care Software for Patients with CirrhosisHaleh Farsadhabibi0Mostafa Langarizadeh1Mostafa Alavi Moghadam2 M.Sc. in Health Information Technology, Health Information Management Dept., School of Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran Ph.D. in Medical Informatics, Associate Professor, Health Information Management Dept., School of Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran Specialist of Liver and Digestion, Professor, School of Medical, Shahid Beheshti University of Medical Sciences, Tehran, Iran Introduction: Liver cirrhosis has grown significantly in Asian countries over the last few years. However, there is no tool for collecting liver cirrhosis data. The purpose of this study was to design a minimum data set for the self-care education of liver cirrhosis. Methods: This descriptive study was conducted in the first half of 2018 in cooperation with 16 liver specialists of Rasool Akram Hospital and Firoozgar Hospital in Tehran. The research tool was a researcher-made questionnaire. The content validity method was used to validate the questionnaire and its reliability was confirmed through test-retest method (r = 0.84). Data were analyzed using SPSS21 software. Results: The minimum data set was organized in six categories: demographic, clinical, disease symptoms, dietary recommendations, general recommendations, medications and reminders. The demographic data collection consisted of 15 data elements, clinical data included 27 data elements, clinical symptoms included 9 data elements, food recommendations, consisted of 7 parts and 14 data elements, general recommendations consisted of 7 parts and 12 elements of data, and medications and reminders had two parts and 12 elements. Conclusion: Considering the importance of data and information in the self-care of patients with liver cirrhosis and the role of software in collecting and sharing data with physicians, as well as reducing the number of visits to the hospital, attention should be paid to the minimum data set of self-care in patients with liver cirrhosis.http://jhbmi.ir/article-1-316-en.htmldata minimum setself-carecirrhosis
spellingShingle Haleh Farsadhabibi
Mostafa Langarizadeh
Mostafa Alavi Moghadam
A Minimum Data Set of Educational Self-care Software for Patients with Cirrhosis
مجله انفورماتیک سلامت و زیست پزشکی
data minimum set
self-care
cirrhosis
title A Minimum Data Set of Educational Self-care Software for Patients with Cirrhosis
title_full A Minimum Data Set of Educational Self-care Software for Patients with Cirrhosis
title_fullStr A Minimum Data Set of Educational Self-care Software for Patients with Cirrhosis
title_full_unstemmed A Minimum Data Set of Educational Self-care Software for Patients with Cirrhosis
title_short A Minimum Data Set of Educational Self-care Software for Patients with Cirrhosis
title_sort minimum data set of educational self care software for patients with cirrhosis
topic data minimum set
self-care
cirrhosis
url http://jhbmi.ir/article-1-316-en.html
work_keys_str_mv AT halehfarsadhabibi aminimumdatasetofeducationalselfcaresoftwareforpatientswithcirrhosis
AT mostafalangarizadeh aminimumdatasetofeducationalselfcaresoftwareforpatientswithcirrhosis
AT mostafaalavimoghadam aminimumdatasetofeducationalselfcaresoftwareforpatientswithcirrhosis
AT halehfarsadhabibi minimumdatasetofeducationalselfcaresoftwareforpatientswithcirrhosis
AT mostafalangarizadeh minimumdatasetofeducationalselfcaresoftwareforpatientswithcirrhosis
AT mostafaalavimoghadam minimumdatasetofeducationalselfcaresoftwareforpatientswithcirrhosis