Haemophilia item bank based on International Classification of Functioning, Disability and Health: a systematic review
ABSTRACTBackground and Objectives Haemophilia comprises a continuum of blood disorders that often include joint and muscular dysfunction, which may lead to a constellation of activity limitations and participation restrictions. However, there is scant research incorporating functional assessment sca...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2023-12-01
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| Series: | Hematology |
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| Online Access: | https://www.tandfonline.com/doi/10.1080/16078454.2023.2191077 |
| _version_ | 1797862540908167168 |
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| author | Bao-Feng Geng Chun Feng Shou-Guo Liu Zhong-Li Jiang Feng Lin |
| author_facet | Bao-Feng Geng Chun Feng Shou-Guo Liu Zhong-Li Jiang Feng Lin |
| author_sort | Bao-Feng Geng |
| collection | DOAJ |
| description | ABSTRACTBackground and Objectives Haemophilia comprises a continuum of blood disorders that often include joint and muscular dysfunction, which may lead to a constellation of activity limitations and participation restrictions. However, there is scant research incorporating functional assessment scales into the common language provided by the International Classification of Functioning, Disability and Health (ICF). This study aims to identify the ICF categories to include in an item bank of functioning aspects relevant for haemophilia.Design and Methods A systematic search was carried out in July 2021 based on the PubMed MEDLINE, CLINICAL, and Cochrane databases for qualified articles, investigating haemophilia-specific scales and the scales recommended by the World Federation of Haemophilia (WFH) linked to ICF categories between 2001 and 2021. Well-trained healthcare professionals in the haemophilia field and ICF evaluation conducted group discussions to determine the ICF items for haemophilia.Results A total of 112 out of 176 items measuring function were collected for the haemophilia ICF item bank, including 32 items for body function (b), 45 items for activity and participation (d), 27 items for environmental factors (e), and 8 items for body structure(s).Interpretation and Conclusions We recommend that future haemophilia research use the haemophilia-specific ICF item bank, which could capture a whole spectrum of functional measurements and facilitate multidisciplinary and worldwide communication. This study also indicates that further development and analysis of the psychometric properties of the 112 haemophilia-related ICF items is warranted. |
| first_indexed | 2024-04-09T22:22:05Z |
| format | Article |
| id | doaj.art-cddd2d64dd2b464c90fde89382aad022 |
| institution | Directory Open Access Journal |
| issn | 1607-8454 |
| language | English |
| last_indexed | 2024-04-09T22:22:05Z |
| publishDate | 2023-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | Hematology |
| spelling | doaj.art-cddd2d64dd2b464c90fde89382aad0222023-03-22T14:25:54ZengTaylor & Francis GroupHematology1607-84542023-12-0128110.1080/16078454.2023.2191077Haemophilia item bank based on International Classification of Functioning, Disability and Health: a systematic reviewBao-Feng Geng0Chun Feng1Shou-Guo Liu2Zhong-Li Jiang3Feng Lin4Department of Rehabilitation Medicine, Sir Run Run Hospital, Nanjing Medical University, Nanjing, People’s Republic of ChinaThe Center of Rehabilitation Therapy, The First Rehabilitation Hospital of Shanghai, Rehabilitation Hospital Affiliated to Tongji University, Shanghai, People’s Republic of ChinaDepartment of Rehabilitation Medicine, The First Affiliated Hospital of Nanjing Medical University, Nanjing, People’s Republic of ChinaDepartment of Rehabilitation Medicine, Sir Run Run Hospital, Nanjing Medical University, Nanjing, People’s Republic of ChinaDepartment of Rehabilitation Medicine, Sir Run Run Hospital, Nanjing Medical University, Nanjing, People’s Republic of ChinaABSTRACTBackground and Objectives Haemophilia comprises a continuum of blood disorders that often include joint and muscular dysfunction, which may lead to a constellation of activity limitations and participation restrictions. However, there is scant research incorporating functional assessment scales into the common language provided by the International Classification of Functioning, Disability and Health (ICF). This study aims to identify the ICF categories to include in an item bank of functioning aspects relevant for haemophilia.Design and Methods A systematic search was carried out in July 2021 based on the PubMed MEDLINE, CLINICAL, and Cochrane databases for qualified articles, investigating haemophilia-specific scales and the scales recommended by the World Federation of Haemophilia (WFH) linked to ICF categories between 2001 and 2021. Well-trained healthcare professionals in the haemophilia field and ICF evaluation conducted group discussions to determine the ICF items for haemophilia.Results A total of 112 out of 176 items measuring function were collected for the haemophilia ICF item bank, including 32 items for body function (b), 45 items for activity and participation (d), 27 items for environmental factors (e), and 8 items for body structure(s).Interpretation and Conclusions We recommend that future haemophilia research use the haemophilia-specific ICF item bank, which could capture a whole spectrum of functional measurements and facilitate multidisciplinary and worldwide communication. This study also indicates that further development and analysis of the psychometric properties of the 112 haemophilia-related ICF items is warranted.https://www.tandfonline.com/doi/10.1080/16078454.2023.2191077HaemophiliaInternational Classification of Functioning, Disability and Health (ICF)Measure of functioningICF core setSystematic review |
| spellingShingle | Bao-Feng Geng Chun Feng Shou-Guo Liu Zhong-Li Jiang Feng Lin Haemophilia item bank based on International Classification of Functioning, Disability and Health: a systematic review Hematology Haemophilia International Classification of Functioning, Disability and Health (ICF) Measure of functioning ICF core set Systematic review |
| title | Haemophilia item bank based on International Classification of Functioning, Disability and Health: a systematic review |
| title_full | Haemophilia item bank based on International Classification of Functioning, Disability and Health: a systematic review |
| title_fullStr | Haemophilia item bank based on International Classification of Functioning, Disability and Health: a systematic review |
| title_full_unstemmed | Haemophilia item bank based on International Classification of Functioning, Disability and Health: a systematic review |
| title_short | Haemophilia item bank based on International Classification of Functioning, Disability and Health: a systematic review |
| title_sort | haemophilia item bank based on international classification of functioning disability and health a systematic review |
| topic | Haemophilia International Classification of Functioning, Disability and Health (ICF) Measure of functioning ICF core set Systematic review |
| url | https://www.tandfonline.com/doi/10.1080/16078454.2023.2191077 |
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