Health-related quality of life of intellectually disabled children attending a special school in Puducherry-A cross-sectional study
Introduction: Health-related quality of life (HRQOL) is a measure of an individual's psychosocial, emotional, and physical well-being. Around 1 in 20 children are less than 15 years of age and are living with a moderate-to-severe form of disability. Thus, our study aims to determine the HRQOL o...
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| Format: | Article |
| Language: | English |
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Wolters Kluwer Medknow Publications
2022-01-01
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| Series: | Journal of Family Medicine and Primary Care |
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| Online Access: | http://www.jfmpc.com/article.asp?issn=2249-4863;year=2022;volume=11;issue=8;spage=4549;epage=4554;aulast=Sasinthar |
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| author | Karthikayini Sasinthar Arun Sugumaran Abhijit V Boratne Raj K Patil |
| author_facet | Karthikayini Sasinthar Arun Sugumaran Abhijit V Boratne Raj K Patil |
| author_sort | Karthikayini Sasinthar |
| collection | DOAJ |
| description | Introduction: Health-related quality of life (HRQOL) is a measure of an individual's psychosocial, emotional, and physical well-being. Around 1 in 20 children are less than 15 years of age and are living with a moderate-to-severe form of disability. Thus, our study aims to determine the HRQOL of intellectual disabled (ID) children attending a special school in Puducherry and to determine the socio-demographic factors influencing the level of HRQOL. Methodology: A cross-sectional analytical study was conducted among 350 ID children attending a selected special school in Puducherry over 1 year. By the universal sampling method, all the caregivers of ID children were recruited and the parent proxy form of Pediatric Quality of life Inventory scale version 4.0 (PedsQL ver 4.0) was used to assess the level of HRQOL of ID children. The data were analyzed using the Statistical Package for Social Science version 16.0 (SPSS ver. 16.0) and the statistical significance was set at P value <0.05. Results: Among the 350 respondents, a majority of the caregivers were mothers (78.9%) and 65.7% were homemakers by occupation. Most of the respondents were from the nuclear family (77.7%) and 55.1% were from urban areas. The mean age of ID children was 12 (±3.8) years; 61.2% were males and 40.8% of the children had a moderate form of ID. Conclusion: The HRQOL of ID children is found to be lower. The factors influencing the lower HRQOL were age, the intelligent quotient (IQ) of ID children, and type of marriage of the caregivers. |
| first_indexed | 2024-04-11T10:04:21Z |
| format | Article |
| id | doaj.art-ce5de40ac6354055bdf77ef6aaa74853 |
| institution | Directory Open Access Journal |
| issn | 2249-4863 |
| language | English |
| last_indexed | 2024-04-11T10:04:21Z |
| publishDate | 2022-01-01 |
| publisher | Wolters Kluwer Medknow Publications |
| record_format | Article |
| series | Journal of Family Medicine and Primary Care |
| spelling | doaj.art-ce5de40ac6354055bdf77ef6aaa748532022-12-22T04:30:18ZengWolters Kluwer Medknow PublicationsJournal of Family Medicine and Primary Care2249-48632022-01-011184549455410.4103/jfmpc.jfmpc_520_21Health-related quality of life of intellectually disabled children attending a special school in Puducherry-A cross-sectional studyKarthikayini SasintharArun SugumaranAbhijit V BoratneRaj K PatilIntroduction: Health-related quality of life (HRQOL) is a measure of an individual's psychosocial, emotional, and physical well-being. Around 1 in 20 children are less than 15 years of age and are living with a moderate-to-severe form of disability. Thus, our study aims to determine the HRQOL of intellectual disabled (ID) children attending a special school in Puducherry and to determine the socio-demographic factors influencing the level of HRQOL. Methodology: A cross-sectional analytical study was conducted among 350 ID children attending a selected special school in Puducherry over 1 year. By the universal sampling method, all the caregivers of ID children were recruited and the parent proxy form of Pediatric Quality of life Inventory scale version 4.0 (PedsQL ver 4.0) was used to assess the level of HRQOL of ID children. The data were analyzed using the Statistical Package for Social Science version 16.0 (SPSS ver. 16.0) and the statistical significance was set at P value <0.05. Results: Among the 350 respondents, a majority of the caregivers were mothers (78.9%) and 65.7% were homemakers by occupation. Most of the respondents were from the nuclear family (77.7%) and 55.1% were from urban areas. The mean age of ID children was 12 (±3.8) years; 61.2% were males and 40.8% of the children had a moderate form of ID. Conclusion: The HRQOL of ID children is found to be lower. The factors influencing the lower HRQOL were age, the intelligent quotient (IQ) of ID children, and type of marriage of the caregivers.http://www.jfmpc.com/article.asp?issn=2249-4863;year=2022;volume=11;issue=8;spage=4549;epage=4554;aulast=Sasintharchildrenhealth-related quality of lifeintellectual disability |
| spellingShingle | Karthikayini Sasinthar Arun Sugumaran Abhijit V Boratne Raj K Patil Health-related quality of life of intellectually disabled children attending a special school in Puducherry-A cross-sectional study Journal of Family Medicine and Primary Care children health-related quality of life intellectual disability |
| title | Health-related quality of life of intellectually disabled children attending a special school in Puducherry-A cross-sectional study |
| title_full | Health-related quality of life of intellectually disabled children attending a special school in Puducherry-A cross-sectional study |
| title_fullStr | Health-related quality of life of intellectually disabled children attending a special school in Puducherry-A cross-sectional study |
| title_full_unstemmed | Health-related quality of life of intellectually disabled children attending a special school in Puducherry-A cross-sectional study |
| title_short | Health-related quality of life of intellectually disabled children attending a special school in Puducherry-A cross-sectional study |
| title_sort | health related quality of life of intellectually disabled children attending a special school in puducherry a cross sectional study |
| topic | children health-related quality of life intellectual disability |
| url | http://www.jfmpc.com/article.asp?issn=2249-4863;year=2022;volume=11;issue=8;spage=4549;epage=4554;aulast=Sasinthar |
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