Designing technology to support greater participation of people living with dementia in daily and meaningful activities
Background People living with dementia should be at the center of decision-making regarding their plans and goals for daily living and meaningful activities that help promote health and mental well-being. The human–computer interaction community has recently begun to recognize the need to design tec...
| Main Authors: | , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2024-01-01
|
| Series: | Digital Health |
| Online Access: | https://doi.org/10.1177/20552076231222427 |
| _version_ | 1797353836235456512 |
|---|---|
| author | Michael Wilson Julie Doyle Jonathan Turner Ciaran Nugent Dympna O’Sullivan |
| author_facet | Michael Wilson Julie Doyle Jonathan Turner Ciaran Nugent Dympna O’Sullivan |
| author_sort | Michael Wilson |
| collection | DOAJ |
| description | Background People living with dementia should be at the center of decision-making regarding their plans and goals for daily living and meaningful activities that help promote health and mental well-being. The human–computer interaction community has recently begun to recognize the need to design technologies where the person living with dementia is an active rather than a passive user of technology in the management of their care. Methods Data collection comprised semi-structured interviews and focus groups held with dyads of people with early-stage dementia (n = 5) and their informal carers (n = 4), as well as health professionals (n = 5). This article discusses findings from the thematic analysis of this qualitative data. Results Analysis resulted in the construction of three main themes: (1) maintaining a sense of purpose and identity, (2) learning helplessness and (3) shared decision-making and collaboration. Within each of the three main themes, related sub-themes were also constructed. Discussion There is a need to design technologies for persons living with dementia/carer dyads that can support collaborative care planning and engagement in meaningful activities while also balancing persons living with dementia empowerment and active engagement in self-management with carer support. |
| first_indexed | 2024-03-08T13:36:43Z |
| format | Article |
| id | doaj.art-cedd7e8b6533424ba4da14a73eda2854 |
| institution | Directory Open Access Journal |
| issn | 2055-2076 |
| language | English |
| last_indexed | 2024-03-08T13:36:43Z |
| publishDate | 2024-01-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Digital Health |
| spelling | doaj.art-cedd7e8b6533424ba4da14a73eda28542024-01-16T18:04:07ZengSAGE PublishingDigital Health2055-20762024-01-011010.1177/20552076231222427Designing technology to support greater participation of people living with dementia in daily and meaningful activitiesMichael Wilson0Julie Doyle1Jonathan Turner2Ciaran Nugent3Dympna O’Sullivan4 NetwellCASALA, , Ireland NetwellCASALA, , Ireland ASCNet Research Group, Department of Computer Science, , Ireland ASCNet Research Group, Department of Computer Science, , Ireland ASCNet Research Group, Department of Computer Science, , IrelandBackground People living with dementia should be at the center of decision-making regarding their plans and goals for daily living and meaningful activities that help promote health and mental well-being. The human–computer interaction community has recently begun to recognize the need to design technologies where the person living with dementia is an active rather than a passive user of technology in the management of their care. Methods Data collection comprised semi-structured interviews and focus groups held with dyads of people with early-stage dementia (n = 5) and their informal carers (n = 4), as well as health professionals (n = 5). This article discusses findings from the thematic analysis of this qualitative data. Results Analysis resulted in the construction of three main themes: (1) maintaining a sense of purpose and identity, (2) learning helplessness and (3) shared decision-making and collaboration. Within each of the three main themes, related sub-themes were also constructed. Discussion There is a need to design technologies for persons living with dementia/carer dyads that can support collaborative care planning and engagement in meaningful activities while also balancing persons living with dementia empowerment and active engagement in self-management with carer support.https://doi.org/10.1177/20552076231222427 |
| spellingShingle | Michael Wilson Julie Doyle Jonathan Turner Ciaran Nugent Dympna O’Sullivan Designing technology to support greater participation of people living with dementia in daily and meaningful activities Digital Health |
| title | Designing technology to support greater participation of people living with dementia
in daily and meaningful activities |
| title_full | Designing technology to support greater participation of people living with dementia
in daily and meaningful activities |
| title_fullStr | Designing technology to support greater participation of people living with dementia
in daily and meaningful activities |
| title_full_unstemmed | Designing technology to support greater participation of people living with dementia
in daily and meaningful activities |
| title_short | Designing technology to support greater participation of people living with dementia
in daily and meaningful activities |
| title_sort | designing technology to support greater participation of people living with dementia in daily and meaningful activities |
| url | https://doi.org/10.1177/20552076231222427 |
| work_keys_str_mv | AT michaelwilson designingtechnologytosupportgreaterparticipationofpeoplelivingwithdementiaindailyandmeaningfulactivities AT juliedoyle designingtechnologytosupportgreaterparticipationofpeoplelivingwithdementiaindailyandmeaningfulactivities AT jonathanturner designingtechnologytosupportgreaterparticipationofpeoplelivingwithdementiaindailyandmeaningfulactivities AT ciarannugent designingtechnologytosupportgreaterparticipationofpeoplelivingwithdementiaindailyandmeaningfulactivities AT dympnaosullivan designingtechnologytosupportgreaterparticipationofpeoplelivingwithdementiaindailyandmeaningfulactivities |