Participatory Evaluation of a Direct Payment Program for Equity in Dementia Care in Nova Scotia, Canada: A Study Protocol
Nova Scotia's Supportive Care Program (SCP) is an individualized funding program that provides funds for people living with dementia (PLWD) or acquired brain injuries to purchase basic home care services such as personal care, respite, cleaning and cooking. The SCP has the potential to address...
| Main Authors: | , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2023-08-01
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| Series: | International Journal of Qualitative Methods |
| Online Access: | https://doi.org/10.1177/16094069231197962 |
| _version_ | 1797536005734006784 |
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| author | Emily Reid-Musson PhD Katie Aubrecht PhD Christine Kelly PhD Mark G. Embrett PhD Lars K. Hallstrom PhD Barbara Hamilton-Hinch PhD Shanthi Johnson PhD, RD, FDC, FACSM, FGSA Shala Knocton MSc Logan Lawrence PhD Marilyn MacDonald PhD Jasmine Mah MD Patrik Marier PhD Elaine Moody PhD Meaghan Sim PhD, RD |
| author_facet | Emily Reid-Musson PhD Katie Aubrecht PhD Christine Kelly PhD Mark G. Embrett PhD Lars K. Hallstrom PhD Barbara Hamilton-Hinch PhD Shanthi Johnson PhD, RD, FDC, FACSM, FGSA Shala Knocton MSc Logan Lawrence PhD Marilyn MacDonald PhD Jasmine Mah MD Patrik Marier PhD Elaine Moody PhD Meaghan Sim PhD, RD |
| author_sort | Emily Reid-Musson PhD |
| collection | DOAJ |
| description | Nova Scotia's Supportive Care Program (SCP) is an individualized funding program that provides funds for people living with dementia (PLWD) or acquired brain injuries to purchase basic home care services such as personal care, respite, cleaning and cooking. The SCP has the potential to address the Quintuple Aim of enhancing care experience, improving population health, reducing costs, improving provider experience and improving health equity, yet qualitative evidence is lacking. The aim of this study is to use participatory program evaluation methods to evaluate the SCP and consider how effective it is in addressing the Quintuple Aim. The study objectives and corresponding methods are to (1) Co-develop a SCP logic model to guide the evaluation through consultations with a diverse group of stakeholders including PLWD, caregivers, care providers, researchers, government representatives, and nongovernment organizations, with attention to gender; (2) Evaluate the SCP based on the outcomes and outputs identified in the logic model using focus groups with PLWD, caregivers and home care providers, and interviews with PLWD and their caregivers; and (3) Mobilize knowledge about the ways the SCP addresses the Quintuple Aim through integrated knowledge translation activities with public, policy and research audiences. By focusing on clinically and socially vulnerable populations of PLWD and caregivers, the proposed evaluation of the SCP offers a valuable case in assessing the effectiveness of individually-funded home care in addressing the Quintuple Aim including health equity within the context of dementia care. |
| first_indexed | 2024-03-10T11:53:27Z |
| format | Article |
| id | doaj.art-cf3360946dba40d6b863d4b03b8cd01b |
| institution | Directory Open Access Journal |
| issn | 1609-4069 |
| language | English |
| last_indexed | 2024-03-10T11:53:27Z |
| publishDate | 2023-08-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | International Journal of Qualitative Methods |
| spelling | doaj.art-cf3360946dba40d6b863d4b03b8cd01b2023-11-21T17:34:18ZengSAGE PublishingInternational Journal of Qualitative Methods1609-40692023-08-012210.1177/16094069231197962Participatory Evaluation of a Direct Payment Program for Equity in Dementia Care in Nova Scotia, Canada: A Study ProtocolEmily Reid-Musson PhDKatie Aubrecht PhDChristine Kelly PhDMark G. Embrett PhDLars K. Hallstrom PhDBarbara Hamilton-Hinch PhDShanthi Johnson PhD, RD, FDC, FACSM, FGSAShala Knocton MScLogan Lawrence PhDMarilyn MacDonald PhDJasmine Mah MDPatrik Marier PhDElaine Moody PhDMeaghan Sim PhD, RDNova Scotia's Supportive Care Program (SCP) is an individualized funding program that provides funds for people living with dementia (PLWD) or acquired brain injuries to purchase basic home care services such as personal care, respite, cleaning and cooking. The SCP has the potential to address the Quintuple Aim of enhancing care experience, improving population health, reducing costs, improving provider experience and improving health equity, yet qualitative evidence is lacking. The aim of this study is to use participatory program evaluation methods to evaluate the SCP and consider how effective it is in addressing the Quintuple Aim. The study objectives and corresponding methods are to (1) Co-develop a SCP logic model to guide the evaluation through consultations with a diverse group of stakeholders including PLWD, caregivers, care providers, researchers, government representatives, and nongovernment organizations, with attention to gender; (2) Evaluate the SCP based on the outcomes and outputs identified in the logic model using focus groups with PLWD, caregivers and home care providers, and interviews with PLWD and their caregivers; and (3) Mobilize knowledge about the ways the SCP addresses the Quintuple Aim through integrated knowledge translation activities with public, policy and research audiences. By focusing on clinically and socially vulnerable populations of PLWD and caregivers, the proposed evaluation of the SCP offers a valuable case in assessing the effectiveness of individually-funded home care in addressing the Quintuple Aim including health equity within the context of dementia care.https://doi.org/10.1177/16094069231197962 |
| spellingShingle | Emily Reid-Musson PhD Katie Aubrecht PhD Christine Kelly PhD Mark G. Embrett PhD Lars K. Hallstrom PhD Barbara Hamilton-Hinch PhD Shanthi Johnson PhD, RD, FDC, FACSM, FGSA Shala Knocton MSc Logan Lawrence PhD Marilyn MacDonald PhD Jasmine Mah MD Patrik Marier PhD Elaine Moody PhD Meaghan Sim PhD, RD Participatory Evaluation of a Direct Payment Program for Equity in Dementia Care in Nova Scotia, Canada: A Study Protocol International Journal of Qualitative Methods |
| title | Participatory Evaluation of a Direct Payment Program for Equity in Dementia Care in Nova Scotia, Canada: A Study Protocol |
| title_full | Participatory Evaluation of a Direct Payment Program for Equity in Dementia Care in Nova Scotia, Canada: A Study Protocol |
| title_fullStr | Participatory Evaluation of a Direct Payment Program for Equity in Dementia Care in Nova Scotia, Canada: A Study Protocol |
| title_full_unstemmed | Participatory Evaluation of a Direct Payment Program for Equity in Dementia Care in Nova Scotia, Canada: A Study Protocol |
| title_short | Participatory Evaluation of a Direct Payment Program for Equity in Dementia Care in Nova Scotia, Canada: A Study Protocol |
| title_sort | participatory evaluation of a direct payment program for equity in dementia care in nova scotia canada a study protocol |
| url | https://doi.org/10.1177/16094069231197962 |
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