Acceptability, Feasibility, and Quality of Telehealth for Adolescent Health Care Delivery During the COVID-19 Pandemic: Cross-sectional Study of Patient and Family Experiences

BackgroundData regarding the acceptability, feasibility, and quality of telehealth among adolescents and young adults (AYA) and their parents and caregivers (caregivers) are lacking. ObjectiveThe aim of this study was to assess the noninferiority of telehealth ver...

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Main Authors: Sarah M Wood, Julia Pickel, Alexis W Phillips, Kari Baber, John Chuo, Pegah Maleki, Haley L Faust, Danielle Petsis, Danielle E Apple, Nadia Dowshen, Lisa A Schwartz
Format: Article
Language:English
Published: JMIR Publications 2021-11-01
Series:JMIR Pediatrics and Parenting
Online Access:https://pediatrics.jmir.org/2021/4/e32708
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author Sarah M Wood
Julia Pickel
Alexis W Phillips
Kari Baber
John Chuo
Pegah Maleki
Haley L Faust
Danielle Petsis
Danielle E Apple
Nadia Dowshen
Lisa A Schwartz
author_facet Sarah M Wood
Julia Pickel
Alexis W Phillips
Kari Baber
John Chuo
Pegah Maleki
Haley L Faust
Danielle Petsis
Danielle E Apple
Nadia Dowshen
Lisa A Schwartz
author_sort Sarah M Wood
collection DOAJ
description BackgroundData regarding the acceptability, feasibility, and quality of telehealth among adolescents and young adults (AYA) and their parents and caregivers (caregivers) are lacking. ObjectiveThe aim of this study was to assess the noninferiority of telehealth versus in-person visits by comparing acceptability with respect to efficiency, effectiveness, equity, patient-centeredness, and confidentiality. MethodsCross-sectional web-based surveys were sent to caregivers and AYA following video visits within an Adolescent Medicine subspecialty clinic in May-July 2020. Proportions of AYA and caregivers who rated telehealth as noninferior were compared using chi-squared tests. Feasibility was assessed via items measuring technical difficulties. Deductive thematic analysis using the Institute of Medicine dimensions of health care quality was used to code open-ended question responses. ResultsSurvey response rates were 20.5% (55/268) for AYA and 21.8% (123/563) for caregivers. The majority of the respondents were White cisgender females. Most AYA and caregivers rated telehealth as noninferior to in-person visits with respect to confidentiality, communication, medication management, and mental health care. A higher proportion of AYA compared to caregivers found telehealth inferior with respect to confidentiality (11/51, 22% vs 3/118, 2.5%, P<.001). One-quarter (14/55) of the AYA patients and 31.7% (39/123) of the caregivers reported technical difficulties. The dominant themes in the qualitative data included advantages of telehealth for efficiency and equity of health care delivery. However, respondents’ concerns included reduced safety and effectiveness of care, particularly for patients with eating disorders, owing to lack of hands-on examinations, collection of vital signs, and laboratory testing. ConclusionsTelehealth was highly acceptable among AYA and caregivers. Future optimization should include improving privacy, ameliorating technical difficulties, and standardizing at-home methods of obtaining patient data to assure patient safety.
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spelling doaj.art-d046b4d6e7e3472aa77044b4112dc6142023-08-28T19:46:38ZengJMIR PublicationsJMIR Pediatrics and Parenting2561-67222021-11-0144e3270810.2196/32708Acceptability, Feasibility, and Quality of Telehealth for Adolescent Health Care Delivery During the COVID-19 Pandemic: Cross-sectional Study of Patient and Family ExperiencesSarah M Woodhttps://orcid.org/0000-0003-2478-4930Julia Pickelhttps://orcid.org/0000-0001-7484-7042Alexis W Phillipshttps://orcid.org/0000-0003-3973-9323Kari Baberhttps://orcid.org/0000-0001-6666-1694John Chuohttps://orcid.org/0000-0002-8981-9906Pegah Malekihttps://orcid.org/0000-0002-3634-2411Haley L Fausthttps://orcid.org/0000-0002-5406-9658Danielle Petsishttps://orcid.org/0000-0001-9533-4764Danielle E Applehttps://orcid.org/0000-0003-0278-311XNadia Dowshenhttps://orcid.org/0000-0002-8466-1628Lisa A Schwartzhttps://orcid.org/0000-0002-7034-9553 BackgroundData regarding the acceptability, feasibility, and quality of telehealth among adolescents and young adults (AYA) and their parents and caregivers (caregivers) are lacking. ObjectiveThe aim of this study was to assess the noninferiority of telehealth versus in-person visits by comparing acceptability with respect to efficiency, effectiveness, equity, patient-centeredness, and confidentiality. MethodsCross-sectional web-based surveys were sent to caregivers and AYA following video visits within an Adolescent Medicine subspecialty clinic in May-July 2020. Proportions of AYA and caregivers who rated telehealth as noninferior were compared using chi-squared tests. Feasibility was assessed via items measuring technical difficulties. Deductive thematic analysis using the Institute of Medicine dimensions of health care quality was used to code open-ended question responses. ResultsSurvey response rates were 20.5% (55/268) for AYA and 21.8% (123/563) for caregivers. The majority of the respondents were White cisgender females. Most AYA and caregivers rated telehealth as noninferior to in-person visits with respect to confidentiality, communication, medication management, and mental health care. A higher proportion of AYA compared to caregivers found telehealth inferior with respect to confidentiality (11/51, 22% vs 3/118, 2.5%, P<.001). One-quarter (14/55) of the AYA patients and 31.7% (39/123) of the caregivers reported technical difficulties. The dominant themes in the qualitative data included advantages of telehealth for efficiency and equity of health care delivery. However, respondents’ concerns included reduced safety and effectiveness of care, particularly for patients with eating disorders, owing to lack of hands-on examinations, collection of vital signs, and laboratory testing. ConclusionsTelehealth was highly acceptable among AYA and caregivers. Future optimization should include improving privacy, ameliorating technical difficulties, and standardizing at-home methods of obtaining patient data to assure patient safety.https://pediatrics.jmir.org/2021/4/e32708
spellingShingle Sarah M Wood
Julia Pickel
Alexis W Phillips
Kari Baber
John Chuo
Pegah Maleki
Haley L Faust
Danielle Petsis
Danielle E Apple
Nadia Dowshen
Lisa A Schwartz
Acceptability, Feasibility, and Quality of Telehealth for Adolescent Health Care Delivery During the COVID-19 Pandemic: Cross-sectional Study of Patient and Family Experiences
JMIR Pediatrics and Parenting
title Acceptability, Feasibility, and Quality of Telehealth for Adolescent Health Care Delivery During the COVID-19 Pandemic: Cross-sectional Study of Patient and Family Experiences
title_full Acceptability, Feasibility, and Quality of Telehealth for Adolescent Health Care Delivery During the COVID-19 Pandemic: Cross-sectional Study of Patient and Family Experiences
title_fullStr Acceptability, Feasibility, and Quality of Telehealth for Adolescent Health Care Delivery During the COVID-19 Pandemic: Cross-sectional Study of Patient and Family Experiences
title_full_unstemmed Acceptability, Feasibility, and Quality of Telehealth for Adolescent Health Care Delivery During the COVID-19 Pandemic: Cross-sectional Study of Patient and Family Experiences
title_short Acceptability, Feasibility, and Quality of Telehealth for Adolescent Health Care Delivery During the COVID-19 Pandemic: Cross-sectional Study of Patient and Family Experiences
title_sort acceptability feasibility and quality of telehealth for adolescent health care delivery during the covid 19 pandemic cross sectional study of patient and family experiences
url https://pediatrics.jmir.org/2021/4/e32708
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