Health data sharing attitudes towards primary and secondary use of data: a systematic reviewResearch in context

Health data sharing attitudes towards primary and secondary use of data: a systematic reviewResearch in context

Summary: Background: To receive the best care, people share their health data (HD) with their health practitioners (known as sharing HD for primary purposes). However, during the past two decades, sharing for other (i.e., secondary) purposes has become of great importance in numerous fields, includ...

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Bibliographic Details
Main Authors: Fidelia Cascini, Ana Pantovic, Yazan A. Al-Ajlouni, Valeria Puleo, Lucia De Maio, Walter Ricciardi
Format: Article
Language:English
Published: Elsevier 2024-05-01
Series:EClinicalMedicine
Subjects:
Data sharing
Personal health data
Secondary use
Genomic data
Biobank
Person-generated data
Online Access:http://www.sciencedirect.com/science/article/pii/S2589537024001305

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