Processing of Positive Newborn Screening Results for Congenital Hypothyroidism: A Qualitative Exploration of Current Practice in England
The objective of this research was to explore current communication practices for positive newborn bloodspot screening results for congenital hypothyroidism from the newborn bloodspot screening laboratory to clinicians and then families, in order to (i) understand how the pathway is implemented in p...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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MDPI AG
2021-10-01
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| Series: | International Journal of Neonatal Screening |
| Subjects: | |
| Online Access: | https://www.mdpi.com/2409-515X/7/4/64 |
| _version_ | 1797503766239379456 |
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| author | Pru Holder Tim Cheetham Alessandra Cocca Holly Chinnery Jane Chudleigh |
| author_facet | Pru Holder Tim Cheetham Alessandra Cocca Holly Chinnery Jane Chudleigh |
| author_sort | Pru Holder |
| collection | DOAJ |
| description | The objective of this research was to explore current communication practices for positive newborn bloodspot screening results for congenital hypothyroidism from the newborn bloodspot screening laboratory to clinicians and then families, in order to (i) understand how the pathway is implemented in practice, (ii) highlight regional differences and (iii) identify barriers and facilitators. A qualitative exploratory design was employed using semi-structured interviews across 13 newborn bloodspot screening laboratories in England. Participants included 35 clinicians and 17 NBS laboratory staff across the 13 laboratories and 18 members of relevant clinical teams. Findings illuminated variations in how positive newborn bloodspot screening results for congenital hypothyroidism are communicated in practice. This included regional variations due to historical arrangements and local resources. Contacting the appropriate person could be challenging and obtaining feedback from clinical teams to the laboratory after the child has been seen could be time consuming for those involved. Standardised communication model(s) for positive newborn bloodspot screening results for congenital hypothyroidism, which include named contact individuals, defined pathways of care and processes for feeding back to laboratories, may help to ensure the process is less labour intensive, particularly from a laboratory perspective. |
| first_indexed | 2024-03-10T03:55:01Z |
| format | Article |
| id | doaj.art-d17129c4a45645e0853f5b23960352cb |
| institution | Directory Open Access Journal |
| issn | 2409-515X |
| language | English |
| last_indexed | 2024-03-10T03:55:01Z |
| publishDate | 2021-10-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | International Journal of Neonatal Screening |
| spelling | doaj.art-d17129c4a45645e0853f5b23960352cb2023-11-23T08:49:59ZengMDPI AGInternational Journal of Neonatal Screening2409-515X2021-10-01746410.3390/ijns7040064Processing of Positive Newborn Screening Results for Congenital Hypothyroidism: A Qualitative Exploration of Current Practice in EnglandPru Holder0Tim Cheetham1Alessandra Cocca2Holly Chinnery3Jane Chudleigh4Centre for Maternal and Child Health Research, School of Health Sciences, City, University of London, London EC1V 0HB, UKDepartment of Paediatric Endocrinology, Royal Victoria Infirmary, Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne NE1 4LP, UKDepartment of Paediatric Diabetes and Endocrinology, Evelina London Children’s Hospital, Guy’s and St Thomas’ NHS Foundation Trust, London SE1 7EH, UKFaculty of Sports, Health and Applied Science, St Mary’s University Twickenham, Twickenham TW1 4SX, UKCentre for Maternal and Child Health Research, School of Health Sciences, City, University of London, London EC1V 0HB, UKThe objective of this research was to explore current communication practices for positive newborn bloodspot screening results for congenital hypothyroidism from the newborn bloodspot screening laboratory to clinicians and then families, in order to (i) understand how the pathway is implemented in practice, (ii) highlight regional differences and (iii) identify barriers and facilitators. A qualitative exploratory design was employed using semi-structured interviews across 13 newborn bloodspot screening laboratories in England. Participants included 35 clinicians and 17 NBS laboratory staff across the 13 laboratories and 18 members of relevant clinical teams. Findings illuminated variations in how positive newborn bloodspot screening results for congenital hypothyroidism are communicated in practice. This included regional variations due to historical arrangements and local resources. Contacting the appropriate person could be challenging and obtaining feedback from clinical teams to the laboratory after the child has been seen could be time consuming for those involved. Standardised communication model(s) for positive newborn bloodspot screening results for congenital hypothyroidism, which include named contact individuals, defined pathways of care and processes for feeding back to laboratories, may help to ensure the process is less labour intensive, particularly from a laboratory perspective.https://www.mdpi.com/2409-515X/7/4/64congenital hypothyroidismnewborn bloodspot screeningcommunication |
| spellingShingle | Pru Holder Tim Cheetham Alessandra Cocca Holly Chinnery Jane Chudleigh Processing of Positive Newborn Screening Results for Congenital Hypothyroidism: A Qualitative Exploration of Current Practice in England International Journal of Neonatal Screening congenital hypothyroidism newborn bloodspot screening communication |
| title | Processing of Positive Newborn Screening Results for Congenital Hypothyroidism: A Qualitative Exploration of Current Practice in England |
| title_full | Processing of Positive Newborn Screening Results for Congenital Hypothyroidism: A Qualitative Exploration of Current Practice in England |
| title_fullStr | Processing of Positive Newborn Screening Results for Congenital Hypothyroidism: A Qualitative Exploration of Current Practice in England |
| title_full_unstemmed | Processing of Positive Newborn Screening Results for Congenital Hypothyroidism: A Qualitative Exploration of Current Practice in England |
| title_short | Processing of Positive Newborn Screening Results for Congenital Hypothyroidism: A Qualitative Exploration of Current Practice in England |
| title_sort | processing of positive newborn screening results for congenital hypothyroidism a qualitative exploration of current practice in england |
| topic | congenital hypothyroidism newborn bloodspot screening communication |
| url | https://www.mdpi.com/2409-515X/7/4/64 |
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