Engaging under- and/or never-engaged populations in health services: A systematic review

Patient engagement is a mechanism used to facilitate person-centred care, however, has not been realized in all patient populations. Often, many marginalized populations still remain under- and/or never-engaged. The purpose of this systematic review was to: 1) identify methods or interventions that...

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Main Authors: Lesley Moody, Erica Bridge, Vidhi Thakkar, Naomi Peek, Tanvi Patel, Suman Dhanju, Simron Singh
Format: Article
Language:English
Published: The Beryl Institute 2019-11-01
Series:Patient Experience Journal
Subjects:
Online Access:https://pxjournal.org/journal/vol6/iss3/4
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author Lesley Moody
Erica Bridge
Vidhi Thakkar
Naomi Peek
Tanvi Patel
Suman Dhanju
Simron Singh
author_facet Lesley Moody
Erica Bridge
Vidhi Thakkar
Naomi Peek
Tanvi Patel
Suman Dhanju
Simron Singh
author_sort Lesley Moody
collection DOAJ
description Patient engagement is a mechanism used to facilitate person-centred care, however, has not been realized in all patient populations. Often, many marginalized populations still remain under- and/or never-engaged. The purpose of this systematic review was to: 1) identify methods or interventions that have been used to engage under- and/or never-engaged populations in health services and 2) identify outcomes that are associated with engaging under- and/or never-engaged populations in health services. A comprehensive search using the Ovid MEDLINE, EMBASE and CINAHL databases was conducted to examine literature between January 2002 and January 2015. Twenty-nine studies met the inclusion criteria. Data was extracted from these studies and findings are synthesized based on discrete themes that map to the research objectives. The majority of studies were quantitative, repeated-measures designs and concentrated in the United States. Hispanic and Latino/a populations were most frequently included in these studies. The main methods of recruitment included: 1) referral from a healthcare provider, 2) patient self-referral after seeing advertisements on mass media or targeted media, 3) directly approached by researcher in-person or telephone, and 4) administrative databases. Interventions occurred primarily at the individual-level, however some system-level interventions were identified. Five main outcomes resulted from the interventions, including: 1) behavioural change, 2) physiological, 3) psychosocial, 4) system and 5) process. Finally, culture-specific components were embedded in the interventions, both as surface and deep structures. This study provides future direction for patient engagement related projects, as it relates to under-and never-engaged population in healthcare. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>
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spelling doaj.art-d20ad9a99b684a08b0e29cfa58d972b22022-12-21T17:33:57ZengThe Beryl InstitutePatient Experience Journal2372-02472019-11-01Engaging under- and/or never-engaged populations in health services: A systematic reviewLesley MoodyErica BridgeVidhi ThakkarNaomi PeekTanvi PatelSuman DhanjuSimron SinghPatient engagement is a mechanism used to facilitate person-centred care, however, has not been realized in all patient populations. Often, many marginalized populations still remain under- and/or never-engaged. The purpose of this systematic review was to: 1) identify methods or interventions that have been used to engage under- and/or never-engaged populations in health services and 2) identify outcomes that are associated with engaging under- and/or never-engaged populations in health services. A comprehensive search using the Ovid MEDLINE, EMBASE and CINAHL databases was conducted to examine literature between January 2002 and January 2015. Twenty-nine studies met the inclusion criteria. Data was extracted from these studies and findings are synthesized based on discrete themes that map to the research objectives. The majority of studies were quantitative, repeated-measures designs and concentrated in the United States. Hispanic and Latino/a populations were most frequently included in these studies. The main methods of recruitment included: 1) referral from a healthcare provider, 2) patient self-referral after seeing advertisements on mass media or targeted media, 3) directly approached by researcher in-person or telephone, and 4) administrative databases. Interventions occurred primarily at the individual-level, however some system-level interventions were identified. Five main outcomes resulted from the interventions, including: 1) behavioural change, 2) physiological, 3) psychosocial, 4) system and 5) process. Finally, culture-specific components were embedded in the interventions, both as surface and deep structures. This study provides future direction for patient engagement related projects, as it relates to under-and never-engaged population in healthcare. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework. (<a href="http://bit.ly/ExperienceFramework">http://bit.ly/ExperienceFramework</a>) <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_20%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%2C%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%2C%7B%22field%22%3A%22field_41%22%2C%22operator%22%3A%22is%22%2C%22value%22%3A%5B%22%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>https://pxjournal.org/journal/vol6/iss3/4patient-centred carepatient and family engagementhealth equitypatient participationhealth services researchsystematic review
spellingShingle Lesley Moody
Erica Bridge
Vidhi Thakkar
Naomi Peek
Tanvi Patel
Suman Dhanju
Simron Singh
Engaging under- and/or never-engaged populations in health services: A systematic review
Patient Experience Journal
patient-centred care
patient and family engagement
health equity
patient participation
health services research
systematic review
title Engaging under- and/or never-engaged populations in health services: A systematic review
title_full Engaging under- and/or never-engaged populations in health services: A systematic review
title_fullStr Engaging under- and/or never-engaged populations in health services: A systematic review
title_full_unstemmed Engaging under- and/or never-engaged populations in health services: A systematic review
title_short Engaging under- and/or never-engaged populations in health services: A systematic review
title_sort engaging under and or never engaged populations in health services a systematic review
topic patient-centred care
patient and family engagement
health equity
patient participation
health services research
systematic review
url https://pxjournal.org/journal/vol6/iss3/4
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AT ericabridge engagingunderandorneverengagedpopulationsinhealthservicesasystematicreview
AT vidhithakkar engagingunderandorneverengagedpopulationsinhealthservicesasystematicreview
AT naomipeek engagingunderandorneverengagedpopulationsinhealthservicesasystematicreview
AT tanvipatel engagingunderandorneverengagedpopulationsinhealthservicesasystematicreview
AT sumandhanju engagingunderandorneverengagedpopulationsinhealthservicesasystematicreview
AT simronsingh engagingunderandorneverengagedpopulationsinhealthservicesasystematicreview