Outcomes valued by people living with dementia and their care partners: protocol for a qualitative systematic review and synthesis
Introduction Growing numbers of interventions are being developed to support people and families living with dementia, but the extent to which they address the areas of most importance to the intended recipients is unclear. This qualitative review will synthesise outcomes identified as important fro...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2021-08-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/11/8/e050909.full |
| _version_ | 1818985336745754624 |
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| author | Louise Robinson Claire Bamford Sube Banerjee Alison Wheatley Greta Brunskill Laura Booi |
| author_facet | Louise Robinson Claire Bamford Sube Banerjee Alison Wheatley Greta Brunskill Laura Booi |
| author_sort | Louise Robinson |
| collection | DOAJ |
| description | Introduction Growing numbers of interventions are being developed to support people and families living with dementia, but the extent to which they address the areas of most importance to the intended recipients is unclear. This qualitative review will synthesise outcomes identified as important from the perspectives of people living with dementia and their care partners, both for themselves and each other.Methods and analysis The review will employ thematic synthesis methodology. Studies from 1990 or later will be eligible if they include qualitative data on the views of people living with dementia or their care partners on valued outcomes or the lived experience of dementia. Databases to be searched include MEDLINE, Cumulative Index to Nursing and Allied Health Literature (CINAHL), PsycInfo and Social Sciences Premium Collection, in addition to systematically gathered grey literature. Rayyan QCRI software will be used to manage the screening processes, and NVivo software will be used to manage data extraction and analysis. The review will also critically evaluate the extent to which international recommendations address the areas of importance to people living with dementia and their families. The findings will be of relevance to researchers, policy makers and providers and commissioners of dementia services. The protocol is written in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Protocols guidelines.Ethics and dissemination As the methodology of this study consists of collecting data from publicly available articles, it does not require ethical approval. We will share the results through conference presentations and an open-access publication in a peer-reviewed journal. Our mixed stakeholder involvement group will advise on dissemination to non-academic audiences.PROSPERO registration number CRD42020219274. |
| first_indexed | 2024-12-20T18:33:17Z |
| format | Article |
| id | doaj.art-d23b5b0c975b4ee69829f36645772be8 |
| institution | Directory Open Access Journal |
| issn | 2044-6055 |
| language | English |
| last_indexed | 2024-12-20T18:33:17Z |
| publishDate | 2021-08-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj.art-d23b5b0c975b4ee69829f36645772be82022-12-21T19:30:00ZengBMJ Publishing GroupBMJ Open2044-60552021-08-0111810.1136/bmjopen-2021-050909Outcomes valued by people living with dementia and their care partners: protocol for a qualitative systematic review and synthesisLouise Robinson0Claire Bamford1Sube Banerjee2Alison Wheatley3Greta Brunskill4Laura Booi55 Lancashire Care NHS Foundation Trust, Preston, UKNewcastle UniversityFaculty of Health, University of Plymouth, Plymouth, Devon, UKPopulation Health Sciences Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UKPopulation Health Sciences Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UKPopulation Health Sciences Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UKIntroduction Growing numbers of interventions are being developed to support people and families living with dementia, but the extent to which they address the areas of most importance to the intended recipients is unclear. This qualitative review will synthesise outcomes identified as important from the perspectives of people living with dementia and their care partners, both for themselves and each other.Methods and analysis The review will employ thematic synthesis methodology. Studies from 1990 or later will be eligible if they include qualitative data on the views of people living with dementia or their care partners on valued outcomes or the lived experience of dementia. Databases to be searched include MEDLINE, Cumulative Index to Nursing and Allied Health Literature (CINAHL), PsycInfo and Social Sciences Premium Collection, in addition to systematically gathered grey literature. Rayyan QCRI software will be used to manage the screening processes, and NVivo software will be used to manage data extraction and analysis. The review will also critically evaluate the extent to which international recommendations address the areas of importance to people living with dementia and their families. The findings will be of relevance to researchers, policy makers and providers and commissioners of dementia services. The protocol is written in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Protocols guidelines.Ethics and dissemination As the methodology of this study consists of collecting data from publicly available articles, it does not require ethical approval. We will share the results through conference presentations and an open-access publication in a peer-reviewed journal. Our mixed stakeholder involvement group will advise on dissemination to non-academic audiences.PROSPERO registration number CRD42020219274.https://bmjopen.bmj.com/content/11/8/e050909.full |
| spellingShingle | Louise Robinson Claire Bamford Sube Banerjee Alison Wheatley Greta Brunskill Laura Booi Outcomes valued by people living with dementia and their care partners: protocol for a qualitative systematic review and synthesis BMJ Open |
| title | Outcomes valued by people living with dementia and their care partners: protocol for a qualitative systematic review and synthesis |
| title_full | Outcomes valued by people living with dementia and their care partners: protocol for a qualitative systematic review and synthesis |
| title_fullStr | Outcomes valued by people living with dementia and their care partners: protocol for a qualitative systematic review and synthesis |
| title_full_unstemmed | Outcomes valued by people living with dementia and their care partners: protocol for a qualitative systematic review and synthesis |
| title_short | Outcomes valued by people living with dementia and their care partners: protocol for a qualitative systematic review and synthesis |
| title_sort | outcomes valued by people living with dementia and their care partners protocol for a qualitative systematic review and synthesis |
| url | https://bmjopen.bmj.com/content/11/8/e050909.full |
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