Perceived stigma and burden in natural caregivers of patients with schizophrenia

Introduction Natural caregivers of patients with schizophrenia are often subjected to stigma by virtue of their association with patients. Affiliate stigma expose caregivers to community rejection, isolation and may have a negative impact on their psychological wellbeing. Objectives This study a...

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Main Authors: F. Znaidi, R. Jenhani, A. Arousse, O. Moula, R. Ghachem
Format: Article
Language:English
Published: Cambridge University Press 2021-04-01
Series:European Psychiatry
Subjects:
Online Access:https://www.cambridge.org/core/product/identifier/S092493382101422X/type/journal_article
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author F. Znaidi
R. Jenhani
A. Arousse
O. Moula
R. Ghachem
author_facet F. Znaidi
R. Jenhani
A. Arousse
O. Moula
R. Ghachem
author_sort F. Znaidi
collection DOAJ
description Introduction Natural caregivers of patients with schizophrenia are often subjected to stigma by virtue of their association with patients. Affiliate stigma expose caregivers to community rejection, isolation and may have a negative impact on their psychological wellbeing. Objectives This study aimed to assess perceived stigma and burden in a Tunisian population of natural caregivers of patients with schizophrenia and to identify risk factors for developing such disorders. Methods We conducted a cross-sectional, descriptive and analytical study, including 80 natural caregivers of patients with schizophrenia. We used the Stigma Devaluation Scale (SDS) to assess stigma and the Zarit Burden Interview (ZBI) to evaluate burden. Results The average age of natural caregivers was 55.7 years. The sex ratio (M/F) was 0.86. The mean score of perceived stigma in patients was 24.7. That of perceived stigma in caregivers was 15.34. Assessing the burden on caregivers estimated an average score of 58, corresponding to a severe burden. Medium to high burden was found in 78% of participants. Perceived stigma scores were significantly higher among illiterate caregivers, those linking schizophrenia to hereditary causes, among parents, and in case of daily contact with the patient. Scores of perceived stigma in caregivers were also significantly correlated with burden score. Conclusions Natural caregivers of patients with schizophrenia are exposed to affiliate stigma and experience an important level of burden. Our findings emphasize the need to support natural caregivers of persons with schizophrenia and to develop strategies to combat stigmatization among patients as well as their natural caregivers.
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spelling doaj.art-d247ae2116bd48c98579014b03546f4d2023-11-17T05:09:08ZengCambridge University PressEuropean Psychiatry0924-93381778-35852021-04-0164S533S53310.1192/j.eurpsy.2021.1422Perceived stigma and burden in natural caregivers of patients with schizophreniaF. Znaidi0R. Jenhani1A. Arousse2O. Moula3R. Ghachem4Manouba, Razi Hospital, Manouba, TunisiaManouba, Razi Hospital, Manouba, TunisiaManouba, Razi Hospital, Manouba, TunisiaManouba, Razi Hospital, Manouba, TunisiaManouba, Razi Hospital, Manouba, Tunisia Introduction Natural caregivers of patients with schizophrenia are often subjected to stigma by virtue of their association with patients. Affiliate stigma expose caregivers to community rejection, isolation and may have a negative impact on their psychological wellbeing. Objectives This study aimed to assess perceived stigma and burden in a Tunisian population of natural caregivers of patients with schizophrenia and to identify risk factors for developing such disorders. Methods We conducted a cross-sectional, descriptive and analytical study, including 80 natural caregivers of patients with schizophrenia. We used the Stigma Devaluation Scale (SDS) to assess stigma and the Zarit Burden Interview (ZBI) to evaluate burden. Results The average age of natural caregivers was 55.7 years. The sex ratio (M/F) was 0.86. The mean score of perceived stigma in patients was 24.7. That of perceived stigma in caregivers was 15.34. Assessing the burden on caregivers estimated an average score of 58, corresponding to a severe burden. Medium to high burden was found in 78% of participants. Perceived stigma scores were significantly higher among illiterate caregivers, those linking schizophrenia to hereditary causes, among parents, and in case of daily contact with the patient. Scores of perceived stigma in caregivers were also significantly correlated with burden score. Conclusions Natural caregivers of patients with schizophrenia are exposed to affiliate stigma and experience an important level of burden. Our findings emphasize the need to support natural caregivers of persons with schizophrenia and to develop strategies to combat stigmatization among patients as well as their natural caregivers. https://www.cambridge.org/core/product/identifier/S092493382101422X/type/journal_articleschizophréniaNatural caregiverStigmaBurden
spellingShingle F. Znaidi
R. Jenhani
A. Arousse
O. Moula
R. Ghachem
Perceived stigma and burden in natural caregivers of patients with schizophrenia
European Psychiatry
schizophrénia
Natural caregiver
Stigma
Burden
title Perceived stigma and burden in natural caregivers of patients with schizophrenia
title_full Perceived stigma and burden in natural caregivers of patients with schizophrenia
title_fullStr Perceived stigma and burden in natural caregivers of patients with schizophrenia
title_full_unstemmed Perceived stigma and burden in natural caregivers of patients with schizophrenia
title_short Perceived stigma and burden in natural caregivers of patients with schizophrenia
title_sort perceived stigma and burden in natural caregivers of patients with schizophrenia
topic schizophrénia
Natural caregiver
Stigma
Burden
url https://www.cambridge.org/core/product/identifier/S092493382101422X/type/journal_article
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