The patient journey to diagnosis and treatment of autoinflammatory diseases
Abstract Background Limited data are available on the experiences of patients with autoinflammatory diseases (AIDs) and their families along the path to diagnosis and treatment. We sought to describe these experiences in patients with AIDs including tumor necrosis factor receptor-associated periodic...
Main Authors: | Jonathan S. Hausmann, Kathleen G. Lomax, Ari Shapiro, Karen Durrant |
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Format: | Article |
Language: | English |
Published: |
BMC
2018-09-01
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Series: | Orphanet Journal of Rare Diseases |
Subjects: | |
Online Access: | http://link.springer.com/article/10.1186/s13023-018-0902-7 |
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