Federating patients identities: the case of rare diseases

Federating patients identities: the case of rare diseases

Abstract Background Patient information in rare disease registries is generally collected from numerous data sources, necessitating the data to be federated. In addition, data for research purposes must be de-identified. Transforming nominative data into de-identified data is thus a key issue, while...

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Detalhes bibliográficos
Principais autores: Meriem Maaroufi, Paul Landais, Claude Messiaen, Marie-Christine Jaulent, Rémy Choquet
Formato: Artigo
Idioma:English
Publicado em: BMC 2018-11-01
coleção:Orphanet Journal of Rare Diseases
Assuntos:
Rare diseases
Health information exchange
Patient identification systems
Identity federation
Patient data privacy
Acesso em linha:http://link.springer.com/article/10.1186/s13023-018-0948-6

Internet

http://link.springer.com/article/10.1186/s13023-018-0948-6

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