HIV-positive migrants’ encounters with the Swedish health care system

Background: There is limited knowledge about human immunodeficiency virus (HIV)-positive migrants and their experiences in the Swedish health care system. It is necessary to increase our knowledge in this field to improve the quality of care and social support for this vulnerable group of patients....

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Main Authors: Manijeh Mehdiyar, Rune Andersson, Katarina Hjelm, Lene Povlsen
Format: Article
Language:English
Published: Taylor & Francis Group 2016-11-01
Series:Global Health Action
Subjects:
Online Access:http://www.globalhealthaction.net/index.php/gha/article/view/31753/pdf_388
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author Manijeh Mehdiyar
Rune Andersson
Katarina Hjelm
Lene Povlsen
author_facet Manijeh Mehdiyar
Rune Andersson
Katarina Hjelm
Lene Povlsen
author_sort Manijeh Mehdiyar
collection DOAJ
description Background: There is limited knowledge about human immunodeficiency virus (HIV)-positive migrants and their experiences in the Swedish health care system. It is necessary to increase our knowledge in this field to improve the quality of care and social support for this vulnerable group of patients. Objective: The aim of this study was to describe the experiences of HIV-positive migrants and their encounters with the health care system in Sweden. Design: This is a Grounded Theory study based on qualitative interviews with 14 HIV-positive migrants living in Sweden, aged 29–55 years. Results: ‘A hybrid of access and adversity’ was identified as the core category of the study. Three additional categories were ‘appreciation of free access to treatment’, ‘the impact of the Swedish Disease Act on everyday life’, and ‘encountering discrimination in the general health care system’. The main finding indicated that participants experienced frustration and discrimination because they were required to provide sexual partners with information about their HIV status, which is compulsory under the Swedish Disease Act. The study also showed that the bias or fear regarding HIV infection among general health care professionals outside of the infectious diseases clinics limited the access to the general health care system for HIV-positive migrants. Conclusions: The HIV-positive migrants appreciated the free access to antiviral therapy, but wished to have more time for patient–physician communications. The participants of this study felt discrimination in health care settings outside of the infectious diseases clinics. There is a need to reduce the discrimination in general health care services and to optimize the social support system and social network of this vulnerable group.
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spelling doaj.art-d49f2486dfad468aad3f9a495df7cc0c2022-12-21T17:31:09ZengTaylor & Francis GroupGlobal Health Action1654-98802016-11-01901710.3402/gha.v9.3175331753HIV-positive migrants’ encounters with the Swedish health care systemManijeh Mehdiyar0Rune Andersson1Katarina Hjelm2Lene Povlsen3 Department of Infectious Diseases, Institute of Biomedicine, The Sahlgrenska Academy, University of Gothenburg and Sahlgrenska University Hospital, Gothenburg, Sweden Department of Infectious Diseases, Institute of Biomedicine, The Sahlgrenska Academy, University of Gothenburg and Sahlgrenska University Hospital, Gothenburg, Sweden Department of Social and Welfare studies, Linköping University, Campus Norrköping, Norrköping, Sweden Unit for Health Promotion Research, University of Southern Denmark, Esbjerg, DenmarkBackground: There is limited knowledge about human immunodeficiency virus (HIV)-positive migrants and their experiences in the Swedish health care system. It is necessary to increase our knowledge in this field to improve the quality of care and social support for this vulnerable group of patients. Objective: The aim of this study was to describe the experiences of HIV-positive migrants and their encounters with the health care system in Sweden. Design: This is a Grounded Theory study based on qualitative interviews with 14 HIV-positive migrants living in Sweden, aged 29–55 years. Results: ‘A hybrid of access and adversity’ was identified as the core category of the study. Three additional categories were ‘appreciation of free access to treatment’, ‘the impact of the Swedish Disease Act on everyday life’, and ‘encountering discrimination in the general health care system’. The main finding indicated that participants experienced frustration and discrimination because they were required to provide sexual partners with information about their HIV status, which is compulsory under the Swedish Disease Act. The study also showed that the bias or fear regarding HIV infection among general health care professionals outside of the infectious diseases clinics limited the access to the general health care system for HIV-positive migrants. Conclusions: The HIV-positive migrants appreciated the free access to antiviral therapy, but wished to have more time for patient–physician communications. The participants of this study felt discrimination in health care settings outside of the infectious diseases clinics. There is a need to reduce the discrimination in general health care services and to optimize the social support system and social network of this vulnerable group.http://www.globalhealthaction.net/index.php/gha/article/view/31753/pdf_388HIV-positivemigrantshealth care systemSwedenGrounded Theory
spellingShingle Manijeh Mehdiyar
Rune Andersson
Katarina Hjelm
Lene Povlsen
HIV-positive migrants’ encounters with the Swedish health care system
Global Health Action
HIV-positive
migrants
health care system
Sweden
Grounded Theory
title HIV-positive migrants’ encounters with the Swedish health care system
title_full HIV-positive migrants’ encounters with the Swedish health care system
title_fullStr HIV-positive migrants’ encounters with the Swedish health care system
title_full_unstemmed HIV-positive migrants’ encounters with the Swedish health care system
title_short HIV-positive migrants’ encounters with the Swedish health care system
title_sort hiv positive migrants encounters with the swedish health care system
topic HIV-positive
migrants
health care system
Sweden
Grounded Theory
url http://www.globalhealthaction.net/index.php/gha/article/view/31753/pdf_388
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