Understanding Intersectional Ageism and Stigma of Dementia: Protocol for a Scoping Review

BackgroundAgeism and stigma reduce the quality of life of older adults living with dementia. However, there is a paucity of literature addressing the intersection and combined effects of ageism and stigma of dementia. This intersectionality, rooted in the social determinants...

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Main Authors: Juanita-Dawne Bacsu, August Kortzman, Sarah Fraser, Alison L Chasteen, Jennifer MacDonald, Megan E O'Connell
Format: Article
Language:English
Published: JMIR Publications 2023-04-01
Series:JMIR Research Protocols
Online Access:https://www.researchprotocols.org/2023/1/e46093
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author Juanita-Dawne Bacsu
August Kortzman
Sarah Fraser
Alison L Chasteen
Jennifer MacDonald
Megan E O'Connell
author_facet Juanita-Dawne Bacsu
August Kortzman
Sarah Fraser
Alison L Chasteen
Jennifer MacDonald
Megan E O'Connell
author_sort Juanita-Dawne Bacsu
collection DOAJ
description BackgroundAgeism and stigma reduce the quality of life of older adults living with dementia. However, there is a paucity of literature addressing the intersection and combined effects of ageism and stigma of dementia. This intersectionality, rooted in the social determinants of health (ie, social support and access to health care), compounds health disparities and is, therefore, an important area of inquiry. ObjectiveThis scoping review protocol outlines a methodology that will be used to examine ageism and stigma confronting older adults living with dementia. The aim of this scoping review will be to identify the definitional components, indicators, and measures used to track and evaluate the impact of ageism and stigma of dementia. More specifically, this review will focus on examining the commonalities and differences in definitions and measures to develop a better understanding of intersectional ageism and stigma of dementia as well as the current state of the literature. MethodsGuided by Arksey and O’Malley’s 5-stage framework, our scoping review will be conducted by searching 6 electronic databases (PsycINFO, MEDLINE, Web of Science, CINAHL, Scopus, and Embase) and a web-based search engine (ie, Google Scholar). Reference lists of relevant journal articles will be hand-searched to identify additional articles. The results from our scoping review will be presented using the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses for Scoping Reviews) checklist. ResultsThis scoping review protocol was registered with the Open Science Framework on January 17, 2023. Data collection and analysis and manuscript writing will occur from March to September 2023. The target date for manuscript submission will be October 2023. Findings from our scoping review will be disseminated through various means, such as journal articles, webinars, national networks, and conference presentations. ConclusionsOur scoping review will summarize and compare the core definitions and measures used to understand ageism and stigma toward older adults with dementia. This is significant because there is limited research addressing the intersectionality of ageism and stigma of dementia. Accordingly, findings from our study may provide critical knowledge and insight to help inform future research, programs, and policies to address intersectional ageism and stigma of dementia. Trial RegistrationOpen Science Framework; https://osf.io/yt49k International Registered Report Identifier (IRRID)PRR1-10.2196/46093
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spelling doaj.art-d5162387f304446aa104859c9564da682023-08-28T23:52:06ZengJMIR PublicationsJMIR Research Protocols1929-07482023-04-0112e4609310.2196/46093Understanding Intersectional Ageism and Stigma of Dementia: Protocol for a Scoping ReviewJuanita-Dawne Bacsuhttps://orcid.org/0000-0002-2819-1617August Kortzmanhttps://orcid.org/0000-0002-7442-3757Sarah Fraserhttps://orcid.org/0000-0003-4291-6298Alison L Chasteenhttps://orcid.org/0000-0002-4720-5586Jennifer MacDonaldhttps://orcid.org/0000-0001-6521-6898Megan E O'Connellhttps://orcid.org/0000-0001-6159-4322 BackgroundAgeism and stigma reduce the quality of life of older adults living with dementia. However, there is a paucity of literature addressing the intersection and combined effects of ageism and stigma of dementia. This intersectionality, rooted in the social determinants of health (ie, social support and access to health care), compounds health disparities and is, therefore, an important area of inquiry. ObjectiveThis scoping review protocol outlines a methodology that will be used to examine ageism and stigma confronting older adults living with dementia. The aim of this scoping review will be to identify the definitional components, indicators, and measures used to track and evaluate the impact of ageism and stigma of dementia. More specifically, this review will focus on examining the commonalities and differences in definitions and measures to develop a better understanding of intersectional ageism and stigma of dementia as well as the current state of the literature. MethodsGuided by Arksey and O’Malley’s 5-stage framework, our scoping review will be conducted by searching 6 electronic databases (PsycINFO, MEDLINE, Web of Science, CINAHL, Scopus, and Embase) and a web-based search engine (ie, Google Scholar). Reference lists of relevant journal articles will be hand-searched to identify additional articles. The results from our scoping review will be presented using the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses for Scoping Reviews) checklist. ResultsThis scoping review protocol was registered with the Open Science Framework on January 17, 2023. Data collection and analysis and manuscript writing will occur from March to September 2023. The target date for manuscript submission will be October 2023. Findings from our scoping review will be disseminated through various means, such as journal articles, webinars, national networks, and conference presentations. ConclusionsOur scoping review will summarize and compare the core definitions and measures used to understand ageism and stigma toward older adults with dementia. This is significant because there is limited research addressing the intersectionality of ageism and stigma of dementia. Accordingly, findings from our study may provide critical knowledge and insight to help inform future research, programs, and policies to address intersectional ageism and stigma of dementia. Trial RegistrationOpen Science Framework; https://osf.io/yt49k International Registered Report Identifier (IRRID)PRR1-10.2196/46093https://www.researchprotocols.org/2023/1/e46093
spellingShingle Juanita-Dawne Bacsu
August Kortzman
Sarah Fraser
Alison L Chasteen
Jennifer MacDonald
Megan E O'Connell
Understanding Intersectional Ageism and Stigma of Dementia: Protocol for a Scoping Review
JMIR Research Protocols
title Understanding Intersectional Ageism and Stigma of Dementia: Protocol for a Scoping Review
title_full Understanding Intersectional Ageism and Stigma of Dementia: Protocol for a Scoping Review
title_fullStr Understanding Intersectional Ageism and Stigma of Dementia: Protocol for a Scoping Review
title_full_unstemmed Understanding Intersectional Ageism and Stigma of Dementia: Protocol for a Scoping Review
title_short Understanding Intersectional Ageism and Stigma of Dementia: Protocol for a Scoping Review
title_sort understanding intersectional ageism and stigma of dementia protocol for a scoping review
url https://www.researchprotocols.org/2023/1/e46093
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