Leveraging routine data in impact evaluation: Understanding data systems in primary healthcare prior to a matched cluster-randomised evaluation of adherence guidelines in South Africa

Background. An essential part of providing high-quality patient care and a means of efficiently conducting research studies relies upon high-quality routinely collected medical information. Objectives. To describe the registers, paper records and databases used in a sample of primary healthcare cli...

Full description

Bibliographic Details
Main Authors: AN Huber, S Pascoe, MP Fox, J Murphy, M Mphokojoe, M Gorgens, D Wilson, Y Pillay, N Fraser-Hurt
Format: Article
Language:English
Published: South African Medical Association 2022-10-01
Series:South African Medical Journal
Subjects:
Online Access:https://samajournals.co.za/index.php/samj/article/view/260
_version_ 1797369973218213888
author AN Huber
S Pascoe
MP Fox
J Murphy
M Mphokojoe
M Gorgens
D Wilson
Y Pillay
N Fraser-Hurt
author_facet AN Huber
S Pascoe
MP Fox
J Murphy
M Mphokojoe
M Gorgens
D Wilson
Y Pillay
N Fraser-Hurt
author_sort AN Huber
collection DOAJ
description Background. An essential part of providing high-quality patient care and a means of efficiently conducting research studies relies upon high-quality routinely collected medical information. Objectives. To describe the registers, paper records and databases used in a sample of primary healthcare clinics in South Africa (SA) with the view to conduct an impact evaluation using routine data. Methods. Between October 2015 and December 2015, we collected information on the presence, quality and completeness of registers, clinical stationery and databases at 24 public health facilities in SA. We describe each register and type of clinical stationery we encountered, their primary uses, and the quality of completion. We also mapped the ideal flow of data through a site to better understand how its data collection works. Results. We identified 13 registers (9 standard, 4 non-standard), 5 types of stationery and 4 databases as sources of medical information within a site. Not all clinics used all the standardised registers, and in those that did, registers were kept in various degrees of completeness: a common problem was inconsistent recording of folder numbers. The quality of patient stationery was generally high, with only the chronic patient record being considered of varied quality. The TIER.Net database had high-quality information on key variables, but national identification (ID) number was incompletely captured (42% complete). Very few evaluation sites used electronic data collection systems for conditions other than HIV/AIDS. Conclusion. Registers, databases and clinical stationery were not implemented or completed consistently across the 24 evaluation sites. For those considering using routinely collected data for research and evaluation purposes, we would recommend a thorough review of clinic data collection systems for both quality and completeness before considering them to be a reliable data source.
first_indexed 2024-03-08T17:54:41Z
format Article
id doaj.art-d5de658c459540a186bec948bc318b95
institution Directory Open Access Journal
issn 0256-9574
2078-5135
language English
last_indexed 2024-03-08T17:54:41Z
publishDate 2022-10-01
publisher South African Medical Association
record_format Article
series South African Medical Journal
spelling doaj.art-d5de658c459540a186bec948bc318b952024-01-02T05:56:26ZengSouth African Medical AssociationSouth African Medical Journal0256-95742078-51352022-10-011121010.7196/SAMJ.2022.v112i10.14909264Leveraging routine data in impact evaluation: Understanding data systems in primary healthcare prior to a matched cluster-randomised evaluation of adherence guidelines in South AfricaAN Huber0S Pascoe1MP Fox2J Murphy3M Mphokojoe4M Gorgens5D Wilson6Y Pillay7N Fraser-Hurt81 Health Economics and Epidemiology Research Office, Department of Internal Medicine, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South AfricaHealth Economics and Epidemiology Research Office, Department of Internal Medicine, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South AfricaHealth Economics and Epidemiology Research Office, Department of Internal Medicine, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa; Department of Global Health, Boston University School of Public Health, USA; Department of Epidemiology, Boston University School of Public Health, USA Health Economics and Epidemiology Research Office, Department of Internal Medicine, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South AfricaDivision of Health Systems and Public Health, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South AfricaThe World Bank Group,Washington DC, USAThe World Bank Group,Washington DC, USADivision of Health Systems and Public Health, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South AfricaThe World Bank Group,Washington DC, USA Background. An essential part of providing high-quality patient care and a means of efficiently conducting research studies relies upon high-quality routinely collected medical information. Objectives. To describe the registers, paper records and databases used in a sample of primary healthcare clinics in South Africa (SA) with the view to conduct an impact evaluation using routine data. Methods. Between October 2015 and December 2015, we collected information on the presence, quality and completeness of registers, clinical stationery and databases at 24 public health facilities in SA. We describe each register and type of clinical stationery we encountered, their primary uses, and the quality of completion. We also mapped the ideal flow of data through a site to better understand how its data collection works. Results. We identified 13 registers (9 standard, 4 non-standard), 5 types of stationery and 4 databases as sources of medical information within a site. Not all clinics used all the standardised registers, and in those that did, registers were kept in various degrees of completeness: a common problem was inconsistent recording of folder numbers. The quality of patient stationery was generally high, with only the chronic patient record being considered of varied quality. The TIER.Net database had high-quality information on key variables, but national identification (ID) number was incompletely captured (42% complete). Very few evaluation sites used electronic data collection systems for conditions other than HIV/AIDS. Conclusion. Registers, databases and clinical stationery were not implemented or completed consistently across the 24 evaluation sites. For those considering using routinely collected data for research and evaluation purposes, we would recommend a thorough review of clinic data collection systems for both quality and completeness before considering them to be a reliable data source. https://samajournals.co.za/index.php/samj/article/view/260HIV and AIDSPrimary care
spellingShingle AN Huber
S Pascoe
MP Fox
J Murphy
M Mphokojoe
M Gorgens
D Wilson
Y Pillay
N Fraser-Hurt
Leveraging routine data in impact evaluation: Understanding data systems in primary healthcare prior to a matched cluster-randomised evaluation of adherence guidelines in South Africa
South African Medical Journal
HIV and AIDS
Primary care
title Leveraging routine data in impact evaluation: Understanding data systems in primary healthcare prior to a matched cluster-randomised evaluation of adherence guidelines in South Africa
title_full Leveraging routine data in impact evaluation: Understanding data systems in primary healthcare prior to a matched cluster-randomised evaluation of adherence guidelines in South Africa
title_fullStr Leveraging routine data in impact evaluation: Understanding data systems in primary healthcare prior to a matched cluster-randomised evaluation of adherence guidelines in South Africa
title_full_unstemmed Leveraging routine data in impact evaluation: Understanding data systems in primary healthcare prior to a matched cluster-randomised evaluation of adherence guidelines in South Africa
title_short Leveraging routine data in impact evaluation: Understanding data systems in primary healthcare prior to a matched cluster-randomised evaluation of adherence guidelines in South Africa
title_sort leveraging routine data in impact evaluation understanding data systems in primary healthcare prior to a matched cluster randomised evaluation of adherence guidelines in south africa
topic HIV and AIDS
Primary care
url https://samajournals.co.za/index.php/samj/article/view/260
work_keys_str_mv AT anhuber leveragingroutinedatainimpactevaluationunderstandingdatasystemsinprimaryhealthcarepriortoamatchedclusterrandomisedevaluationofadherenceguidelinesinsouthafrica
AT spascoe leveragingroutinedatainimpactevaluationunderstandingdatasystemsinprimaryhealthcarepriortoamatchedclusterrandomisedevaluationofadherenceguidelinesinsouthafrica
AT mpfox leveragingroutinedatainimpactevaluationunderstandingdatasystemsinprimaryhealthcarepriortoamatchedclusterrandomisedevaluationofadherenceguidelinesinsouthafrica
AT jmurphy leveragingroutinedatainimpactevaluationunderstandingdatasystemsinprimaryhealthcarepriortoamatchedclusterrandomisedevaluationofadherenceguidelinesinsouthafrica
AT mmphokojoe leveragingroutinedatainimpactevaluationunderstandingdatasystemsinprimaryhealthcarepriortoamatchedclusterrandomisedevaluationofadherenceguidelinesinsouthafrica
AT mgorgens leveragingroutinedatainimpactevaluationunderstandingdatasystemsinprimaryhealthcarepriortoamatchedclusterrandomisedevaluationofadherenceguidelinesinsouthafrica
AT dwilson leveragingroutinedatainimpactevaluationunderstandingdatasystemsinprimaryhealthcarepriortoamatchedclusterrandomisedevaluationofadherenceguidelinesinsouthafrica
AT ypillay leveragingroutinedatainimpactevaluationunderstandingdatasystemsinprimaryhealthcarepriortoamatchedclusterrandomisedevaluationofadherenceguidelinesinsouthafrica
AT nfraserhurt leveragingroutinedatainimpactevaluationunderstandingdatasystemsinprimaryhealthcarepriortoamatchedclusterrandomisedevaluationofadherenceguidelinesinsouthafrica