An overlook on the current registries for rare and complex connective tissue diseases and the future scenario of TogethERN ReCONNET

An overlook on the current registries for rare and complex connective tissue diseases and the future scenario of TogethERN ReCONNET

BackgroundPatient registries play a crucial role in supporting clinical practice, healthcare planning and medical research, offering a real-world picture on rare and complex connective tissue diseases (rCTDs). ERN ReCONNET launched the first European Registry Infrastructure with the aim to plan, upg...

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Bibliographic Details
Main Authors: Matilde Bandeira, Federica Di Cianni, Diana Marinello, Laurent Arnaud, Sara Cannizzo, Claudio Carta, Alain Cornet, Sara M. Barril, Inita Bulina, Alessandro Ferraris, João Fonseca, Andrea Gaglioti, Marteen Limper, Valentina Lorenzoni, Judith Majnik, Marco Matucci-Cerinic, Ilaria Palla, Simona Rednic, Matthias Schneider, Vanessa Smith, Alberto Sulli, Klaus Søndergaard, Simone Ticciati, Angela Tincani, Giuseppe Turchetti, Rosaria Talarico, Maurizio Cutolo, Marta Mosca, Domenica Taruscio
Format: Article
Language:English
Published: Frontiers Media S.A. 2022-09-01
Series:Frontiers in Medicine
Subjects:
rare and complex connective tissue diseases
registries
ERN ReCONNET
TogethERN ReCONNET
European Reference Networks
Online Access:https://www.frontiersin.org/articles/10.3389/fmed.2022.889997/full

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