Treating for stability: an ethnographic study of aspirations and limitations in haemophilia treatment in Europe
Recent improvements in approaches to treatment have opened a window of opportunity to redefine and expand the goals of treatment in haemophilia This article explores treatment culture in light of these improvements and its potential impact on the range of possibilitis in the lived experience of haem...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Sciendo
2020-12-01
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| Series: | The Journal of Haemophilia Practice |
| Subjects: | |
| Online Access: | https://doi.org/10.17225/jhp00169 |
| _version_ | 1797832454406406144 |
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| author | Hughes Thomas Brok-Kristensen Mikkel Gargeya Yosha Worsøe Lottrup Anne Mette Bo Larsen Ask Torres-Ortuño Ana Mackett Nicki Stevens John |
| author_facet | Hughes Thomas Brok-Kristensen Mikkel Gargeya Yosha Worsøe Lottrup Anne Mette Bo Larsen Ask Torres-Ortuño Ana Mackett Nicki Stevens John |
| author_sort | Hughes Thomas |
| collection | DOAJ |
| description | Recent improvements in approaches to treatment have opened a window of opportunity to redefine and expand the goals of treatment in haemophilia This article explores treatment culture in light of these improvements and its potential impact on the range of possibilitis in the lived experience of haemophilia. |
| first_indexed | 2024-04-09T14:08:05Z |
| format | Article |
| id | doaj.art-d66c6dc66cee43239673d1dce29e548d |
| institution | Directory Open Access Journal |
| issn | 2055-3390 |
| language | English |
| last_indexed | 2024-04-09T14:08:05Z |
| publishDate | 2020-12-01 |
| publisher | Sciendo |
| record_format | Article |
| series | The Journal of Haemophilia Practice |
| spelling | doaj.art-d66c6dc66cee43239673d1dce29e548d2023-05-06T15:59:46ZengSciendoThe Journal of Haemophilia Practice2055-33902020-12-017116517210.17225/jhp00169Treating for stability: an ethnographic study of aspirations and limitations in haemophilia treatment in EuropeHughes Thomas0Brok-Kristensen Mikkel1Gargeya Yosha2Worsøe Lottrup Anne Mette3Bo Larsen Ask4Torres-Ortuño Ana5Mackett Nicki6Stevens John7ReD Associates, Copenhagen, DenmarkReD Associates, Copenhagen, DenmarkReD Associates, Copenhagen, DemnarkReD Associates, Copenhagen, DenmarkReD Associates, Copenhagen, DenmarkUniversity of Murcia, SpainAlder Hey Children's NHS Foundation Trust, UKSwedish Orphan Biovitrum AB (Sobi), Stockholm, SwedenRecent improvements in approaches to treatment have opened a window of opportunity to redefine and expand the goals of treatment in haemophilia This article explores treatment culture in light of these improvements and its potential impact on the range of possibilitis in the lived experience of haemophilia.https://doi.org/10.17225/jhp00169treatment goalshaemophiliametrics of successflexible treatmentannual bleed rateethnography |
| spellingShingle | Hughes Thomas Brok-Kristensen Mikkel Gargeya Yosha Worsøe Lottrup Anne Mette Bo Larsen Ask Torres-Ortuño Ana Mackett Nicki Stevens John Treating for stability: an ethnographic study of aspirations and limitations in haemophilia treatment in Europe The Journal of Haemophilia Practice treatment goals haemophilia metrics of success flexible treatment annual bleed rate ethnography |
| title | Treating for stability: an ethnographic study of aspirations and limitations in haemophilia treatment in Europe |
| title_full | Treating for stability: an ethnographic study of aspirations and limitations in haemophilia treatment in Europe |
| title_fullStr | Treating for stability: an ethnographic study of aspirations and limitations in haemophilia treatment in Europe |
| title_full_unstemmed | Treating for stability: an ethnographic study of aspirations and limitations in haemophilia treatment in Europe |
| title_short | Treating for stability: an ethnographic study of aspirations and limitations in haemophilia treatment in Europe |
| title_sort | treating for stability an ethnographic study of aspirations and limitations in haemophilia treatment in europe |
| topic | treatment goals haemophilia metrics of success flexible treatment annual bleed rate ethnography |
| url | https://doi.org/10.17225/jhp00169 |
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