Acceptability and usability of the Planning Advance Care Together (PACT) website for improving patients' engagement in advance care planning
Objectives: Most prior advance care planning (ACP) interventions lack integration of the social context of patients' ACP process, which patients indicate is critically important. The current study developed the Planning Advance Care Together (PACT) website to foster inclusion of loved ones in t...
| Main Authors: | , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2024-12-01
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| Series: | PEC Innovation |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2772628223001255 |
| _version_ | 1797388639922028544 |
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| author | Casey A. Walsh Sarah J. Miller Cardinale B. Smith Holly G. Prigerson Daniel McFarland Sarah Yarborough Claudia De Los Santos Robert Thomas Sara J. Czaja Arindam RoyChoudhury Eloise Chapman-Davis Mark Lachs Megan J. Shen |
| author_facet | Casey A. Walsh Sarah J. Miller Cardinale B. Smith Holly G. Prigerson Daniel McFarland Sarah Yarborough Claudia De Los Santos Robert Thomas Sara J. Czaja Arindam RoyChoudhury Eloise Chapman-Davis Mark Lachs Megan J. Shen |
| author_sort | Casey A. Walsh |
| collection | DOAJ |
| description | Objectives: Most prior advance care planning (ACP) interventions lack integration of the social context of patients' ACP process, which patients indicate is critically important. The current study developed the Planning Advance Care Together (PACT) website to foster inclusion of loved ones in the ACP process. Methods: To provide feedback about the PACT website, patients with advanced cancer (N = 11), their caregivers (N = 11), and experts (N = 10) participated in semi-structured interviews. Patients and caregivers also completed standardized ratings of acceptability and usability. Results: Overall, patient (n = 11) and caregiver (n = 11) ratings of acceptability and usability of the website exceeded benchmark cut-offs (≥24 on the Acceptability E-Scale and ≥ 68 on the System Usability Scale). Patients, caregivers, and experts liked the topic of ACP but felt that it could be emotionally challenging. They recommended focusing more on planning and less on end of life. They appreciated being able to include loved ones and recommended adding resources for caregivers. Conclusions: Study findings support the preliminary usability and acceptability of the PACT website. Findings will be used to inform a modified prototype of the PACT website that is interactive and ready for field testing with patients with advanced cancer and their loved ones. Innovation: We utilized a novel application of the shared mind framework to support patients with advanced cancer in engaging their loved ones in the ACP process. |
| first_indexed | 2024-03-08T22:43:43Z |
| format | Article |
| id | doaj.art-d6a1234409cb4a96ba57e05ad3f2dc05 |
| institution | Directory Open Access Journal |
| issn | 2772-6282 |
| language | English |
| last_indexed | 2024-03-08T22:43:43Z |
| publishDate | 2024-12-01 |
| publisher | Elsevier |
| record_format | Article |
| series | PEC Innovation |
| spelling | doaj.art-d6a1234409cb4a96ba57e05ad3f2dc052023-12-17T06:43:12ZengElsevierPEC Innovation2772-62822024-12-014100245Acceptability and usability of the Planning Advance Care Together (PACT) website for improving patients' engagement in advance care planningCasey A. Walsh0Sarah J. Miller1Cardinale B. Smith2Holly G. Prigerson3Daniel McFarland4Sarah Yarborough5Claudia De Los Santos6Robert Thomas7Sara J. Czaja8Arindam RoyChoudhury9Eloise Chapman-Davis10Mark Lachs11Megan J. Shen12Clinical Research Division, Fred Hutchinson Cancer Center, Seattle, WA, United States of AmericaDepartment of Population Health Science and Policy, Icahn School of Medicine at Mount Sinai, New York, NY, United States of AmericaDivision of Hematology and Medical Oncology, Division of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, NY, United States of AmericaDepartment of Medicine, Cornell Center for Research on End-of-Life Care, Weill Cornell Medical College, New York, NY, United States of AmericaDepartment of Psychiatry, Wilmot Cancer Center, University of Rochester Medical Center, Rochester, NY, United States of AmericaClinical Research Division, Fred Hutchinson Cancer Center, Seattle, WA, United States of AmericaClinical Research Division, Fred Hutchinson Cancer Center, Seattle, WA, United States of AmericaDivision of General Internal Medicine, Icahn School of Medicine at Mount Sinai, New York, NY, United States of AmericaDivision of Geriatrics and Palliative Medicine, Center on Aging and Behavioral Research, Weill Cornell Medicine, New York, NY, United States of AmericaDepartment of Population Health Sciences, Weill Cornell Medical College, New York, NY, United States of AmericaDivision of Obstetrics and Gynecology, Weill Cornell Medical College, New York, NY, United States of AmericaDepartment of Medicine, Weill Cornell Medical College, New York, NY, United States of America; Geriatrics and Palliative Medicine, New York Presbyterian Health Care System, United States of AmericaClinical Research Division, Fred Hutchinson Cancer Center, Seattle, WA, United States of America; Corresponding author at: Clinical Research Division, Fred Hutchinson Cancer Center, 1100 Fairview Ave N., Mail Stop D5-290, Seattle, WA 98109, United States of America.Objectives: Most prior advance care planning (ACP) interventions lack integration of the social context of patients' ACP process, which patients indicate is critically important. The current study developed the Planning Advance Care Together (PACT) website to foster inclusion of loved ones in the ACP process. Methods: To provide feedback about the PACT website, patients with advanced cancer (N = 11), their caregivers (N = 11), and experts (N = 10) participated in semi-structured interviews. Patients and caregivers also completed standardized ratings of acceptability and usability. Results: Overall, patient (n = 11) and caregiver (n = 11) ratings of acceptability and usability of the website exceeded benchmark cut-offs (≥24 on the Acceptability E-Scale and ≥ 68 on the System Usability Scale). Patients, caregivers, and experts liked the topic of ACP but felt that it could be emotionally challenging. They recommended focusing more on planning and less on end of life. They appreciated being able to include loved ones and recommended adding resources for caregivers. Conclusions: Study findings support the preliminary usability and acceptability of the PACT website. Findings will be used to inform a modified prototype of the PACT website that is interactive and ready for field testing with patients with advanced cancer and their loved ones. Innovation: We utilized a novel application of the shared mind framework to support patients with advanced cancer in engaging their loved ones in the ACP process.http://www.sciencedirect.com/science/article/pii/S2772628223001255CancerPatientsCaregiversAdvance care planningAdvance directives |
| spellingShingle | Casey A. Walsh Sarah J. Miller Cardinale B. Smith Holly G. Prigerson Daniel McFarland Sarah Yarborough Claudia De Los Santos Robert Thomas Sara J. Czaja Arindam RoyChoudhury Eloise Chapman-Davis Mark Lachs Megan J. Shen Acceptability and usability of the Planning Advance Care Together (PACT) website for improving patients' engagement in advance care planning PEC Innovation Cancer Patients Caregivers Advance care planning Advance directives |
| title | Acceptability and usability of the Planning Advance Care Together (PACT) website for improving patients' engagement in advance care planning |
| title_full | Acceptability and usability of the Planning Advance Care Together (PACT) website for improving patients' engagement in advance care planning |
| title_fullStr | Acceptability and usability of the Planning Advance Care Together (PACT) website for improving patients' engagement in advance care planning |
| title_full_unstemmed | Acceptability and usability of the Planning Advance Care Together (PACT) website for improving patients' engagement in advance care planning |
| title_short | Acceptability and usability of the Planning Advance Care Together (PACT) website for improving patients' engagement in advance care planning |
| title_sort | acceptability and usability of the planning advance care together pact website for improving patients engagement in advance care planning |
| topic | Cancer Patients Caregivers Advance care planning Advance directives |
| url | http://www.sciencedirect.com/science/article/pii/S2772628223001255 |
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