Intensive management for moderate rheumatoid arthritis: a qualitative study of patients’ and practitioners’ views
Abstract Background The TITRATE trial seeks to test whether intensive management is valuable in achieving disease remission in moderately active rheumatoid arthritis. Intensive management is a complex intervention consisting of: 1) 12 x monthly appointments, 2) tailored ‘treatment support’ based on...
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| Format: | Article |
| Language: | English |
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BMC
2019-03-01
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| Series: | BMC Rheumatology |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s41927-019-0057-8 |
| _version_ | 1819116980259520512 |
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| author | Louise Prothero Jackie Sturt Savia de Souza Heidi Lempp on behalf of TITRATE Programme Investigators |
| author_facet | Louise Prothero Jackie Sturt Savia de Souza Heidi Lempp on behalf of TITRATE Programme Investigators |
| author_sort | Louise Prothero |
| collection | DOAJ |
| description | Abstract Background The TITRATE trial seeks to test whether intensive management is valuable in achieving disease remission in moderately active rheumatoid arthritis. Intensive management is a complex intervention consisting of: 1) 12 x monthly appointments, 2) tailored ‘treatment support’ based on motivational interviewing techniques, 3) optimised medication (including the opportunity for biologics), 4) provision of a Patient Handbook, and 5) shared treatment planning. This study aims to understand: a) patients’ and practitioners’ views on the feasibility and acceptability of intensive management, and b) patients’ and practitioners’ experience of receiving/providing intensive management. Methods A qualitative study, nested within a randomised controlled trial. Participants were patients (n = 15) in the intensive management arm of the trial and rheumatology practitioners (n = 16) providing the intensive management intervention, from 18/42 clinics across England. Data were collected via semi-structured interviews and analysed using thematic analysis and iterative categorization. Results Monthly appointments were largely acceptable to both groups who cited several treatment benefits (e.g. regular review of medication, practitioners built close relationships with patients). Practitioners were ‘fairly confident’ using the motivational interviewing techniques. Learning to pace was the most commonly reported self-management technique that patients and healthcare professionals worked on together, followed by gaining control over pain and fatigue. Practitioners liked having the option to offer biologics to patients with moderate RA. Most patients found the optimised medication (following monthly joint assessment) helpful and side-effects experienced were resolved. Variation existed in the extent to which patients engaged with the Patient Handbook and shared treatment planning, with those who did engage doing so in the early stages. Conclusions Feedback from patient participants about the intensive management intervention was positive. They found increased medication helpful. Continuity of care with the same healthcare professional at regular intensive management sessions, and the treatment support provided, were highly rated. Feedback from practitioners indicated that intensive management training is feasible. Evidence from the interviews showed that some practitioners applied motivational interviewing techniques during standard care appointments and they would like the opportunity to address lifestyle issues with patients. |
| first_indexed | 2024-12-22T05:25:42Z |
| format | Article |
| id | doaj.art-d6ffcd62b94d40288ad3025a9a4f71ff |
| institution | Directory Open Access Journal |
| issn | 2520-1026 |
| language | English |
| last_indexed | 2024-12-22T05:25:42Z |
| publishDate | 2019-03-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Rheumatology |
| spelling | doaj.art-d6ffcd62b94d40288ad3025a9a4f71ff2022-12-21T18:37:36ZengBMCBMC Rheumatology2520-10262019-03-013111110.1186/s41927-019-0057-8Intensive management for moderate rheumatoid arthritis: a qualitative study of patients’ and practitioners’ viewsLouise Prothero0Jackie Sturt1Savia de Souza2Heidi Lempp3on behalf of TITRATE Programme InvestigatorsDepartment of Inflammation Biology, School of Immunology and Microbial Sciences, Faculty of Life Sciences and Medicine, King’s College LondonFlorence Nightingale Faculty of Nursing, Midwifery and Palliative Care, King’s College LondonDepartment of Inflammation Biology, School of Immunology and Microbial Sciences, Faculty of Life Sciences and Medicine, King’s College LondonDepartment of Inflammation Biology, School of Immunology and Microbial Sciences, Faculty of Life Sciences and Medicine, King’s College LondonAbstract Background The TITRATE trial seeks to test whether intensive management is valuable in achieving disease remission in moderately active rheumatoid arthritis. Intensive management is a complex intervention consisting of: 1) 12 x monthly appointments, 2) tailored ‘treatment support’ based on motivational interviewing techniques, 3) optimised medication (including the opportunity for biologics), 4) provision of a Patient Handbook, and 5) shared treatment planning. This study aims to understand: a) patients’ and practitioners’ views on the feasibility and acceptability of intensive management, and b) patients’ and practitioners’ experience of receiving/providing intensive management. Methods A qualitative study, nested within a randomised controlled trial. Participants were patients (n = 15) in the intensive management arm of the trial and rheumatology practitioners (n = 16) providing the intensive management intervention, from 18/42 clinics across England. Data were collected via semi-structured interviews and analysed using thematic analysis and iterative categorization. Results Monthly appointments were largely acceptable to both groups who cited several treatment benefits (e.g. regular review of medication, practitioners built close relationships with patients). Practitioners were ‘fairly confident’ using the motivational interviewing techniques. Learning to pace was the most commonly reported self-management technique that patients and healthcare professionals worked on together, followed by gaining control over pain and fatigue. Practitioners liked having the option to offer biologics to patients with moderate RA. Most patients found the optimised medication (following monthly joint assessment) helpful and side-effects experienced were resolved. Variation existed in the extent to which patients engaged with the Patient Handbook and shared treatment planning, with those who did engage doing so in the early stages. Conclusions Feedback from patient participants about the intensive management intervention was positive. They found increased medication helpful. Continuity of care with the same healthcare professional at regular intensive management sessions, and the treatment support provided, were highly rated. Feedback from practitioners indicated that intensive management training is feasible. Evidence from the interviews showed that some practitioners applied motivational interviewing techniques during standard care appointments and they would like the opportunity to address lifestyle issues with patients.http://link.springer.com/article/10.1186/s41927-019-0057-8AcceptabilityComplex interventionFeasibilityIntensive managementMotivational interviewingPractitioners |
| spellingShingle | Louise Prothero Jackie Sturt Savia de Souza Heidi Lempp on behalf of TITRATE Programme Investigators Intensive management for moderate rheumatoid arthritis: a qualitative study of patients’ and practitioners’ views BMC Rheumatology Acceptability Complex intervention Feasibility Intensive management Motivational interviewing Practitioners |
| title | Intensive management for moderate rheumatoid arthritis: a qualitative study of patients’ and practitioners’ views |
| title_full | Intensive management for moderate rheumatoid arthritis: a qualitative study of patients’ and practitioners’ views |
| title_fullStr | Intensive management for moderate rheumatoid arthritis: a qualitative study of patients’ and practitioners’ views |
| title_full_unstemmed | Intensive management for moderate rheumatoid arthritis: a qualitative study of patients’ and practitioners’ views |
| title_short | Intensive management for moderate rheumatoid arthritis: a qualitative study of patients’ and practitioners’ views |
| title_sort | intensive management for moderate rheumatoid arthritis a qualitative study of patients and practitioners views |
| topic | Acceptability Complex intervention Feasibility Intensive management Motivational interviewing Practitioners |
| url | http://link.springer.com/article/10.1186/s41927-019-0057-8 |
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