Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations
Awareness of Human Immunodeficiency Virus (HIV) status improves health outcomes in children living with HIV, yet caregivers often delay disclosure. This qualitative investigation explored, through observation, how 30 caregivers responded to a HIV Disclosure study conducted between 2017 and 2020 at C...
| Main Authors: | , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Public Library of Science (PLoS)
2022-01-01
|
| Series: | PLoS ONE |
| Online Access: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9707749/?tool=EBI |
| _version_ | 1811297842905481216 |
|---|---|
| author | Celeste Joyce Candice Ramsammy Lisa Galvin Given Leshabane Afaaf Liberty Kennedy Otwombe Janice Buckley Minja Milovanovic Avy Violari |
| author_facet | Celeste Joyce Candice Ramsammy Lisa Galvin Given Leshabane Afaaf Liberty Kennedy Otwombe Janice Buckley Minja Milovanovic Avy Violari |
| author_sort | Celeste Joyce |
| collection | DOAJ |
| description | Awareness of Human Immunodeficiency Virus (HIV) status improves health outcomes in children living with HIV, yet caregivers often delay disclosure. This qualitative investigation explored, through observation, how 30 caregivers responded to a HIV Disclosure study conducted between 2017 and 2020 at Chris Hani Baragwanath Academic Hospital, Soweto, South Africa. Caregivers were assisted in disclosing to their children, aged 7–13 years; followed by a sub-sample of caregivers providing in-depth interviews to elaborate on findings.1) Barriers to disclosure included: caregivers being ill equipped, the fear of negative consequences and children considered lacking emotional or cognitive readiness. 2) Deflecting diagnosis from their children and the need for medication, motivated caregivers to disclosure. 3) Apprehension was evident during disclosure; however, overall disclosure was a positive experience with the support of the healthcare providers. These results highlight the significant role healthcare providers’ play in supporting caregivers through the disclosure process. |
| first_indexed | 2024-04-13T06:11:10Z |
| format | Article |
| id | doaj.art-d86355bc744749ed9d7c42f56ae554f8 |
| institution | Directory Open Access Journal |
| issn | 1932-6203 |
| language | English |
| last_indexed | 2024-04-13T06:11:10Z |
| publishDate | 2022-01-01 |
| publisher | Public Library of Science (PLoS) |
| record_format | Article |
| series | PLoS ONE |
| spelling | doaj.art-d86355bc744749ed9d7c42f56ae554f82022-12-22T02:59:04ZengPublic Library of Science (PLoS)PLoS ONE1932-62032022-01-011711Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigationsCeleste JoyceCandice RamsammyLisa GalvinGiven LeshabaneAfaaf LibertyKennedy OtwombeJanice BuckleyMinja MilovanovicAvy ViolariAwareness of Human Immunodeficiency Virus (HIV) status improves health outcomes in children living with HIV, yet caregivers often delay disclosure. This qualitative investigation explored, through observation, how 30 caregivers responded to a HIV Disclosure study conducted between 2017 and 2020 at Chris Hani Baragwanath Academic Hospital, Soweto, South Africa. Caregivers were assisted in disclosing to their children, aged 7–13 years; followed by a sub-sample of caregivers providing in-depth interviews to elaborate on findings.1) Barriers to disclosure included: caregivers being ill equipped, the fear of negative consequences and children considered lacking emotional or cognitive readiness. 2) Deflecting diagnosis from their children and the need for medication, motivated caregivers to disclosure. 3) Apprehension was evident during disclosure; however, overall disclosure was a positive experience with the support of the healthcare providers. These results highlight the significant role healthcare providers’ play in supporting caregivers through the disclosure process.https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9707749/?tool=EBI |
| spellingShingle | Celeste Joyce Candice Ramsammy Lisa Galvin Given Leshabane Afaaf Liberty Kennedy Otwombe Janice Buckley Minja Milovanovic Avy Violari Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations PLoS ONE |
| title | Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations |
| title_full | Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations |
| title_fullStr | Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations |
| title_full_unstemmed | Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations |
| title_short | Experiences of South African caregivers disclosing to their children living with HIV: Qualitative investigations |
| title_sort | experiences of south african caregivers disclosing to their children living with hiv qualitative investigations |
| url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9707749/?tool=EBI |
| work_keys_str_mv | AT celestejoyce experiencesofsouthafricancaregiversdisclosingtotheirchildrenlivingwithhivqualitativeinvestigations AT candiceramsammy experiencesofsouthafricancaregiversdisclosingtotheirchildrenlivingwithhivqualitativeinvestigations AT lisagalvin experiencesofsouthafricancaregiversdisclosingtotheirchildrenlivingwithhivqualitativeinvestigations AT givenleshabane experiencesofsouthafricancaregiversdisclosingtotheirchildrenlivingwithhivqualitativeinvestigations AT afaafliberty experiencesofsouthafricancaregiversdisclosingtotheirchildrenlivingwithhivqualitativeinvestigations AT kennedyotwombe experiencesofsouthafricancaregiversdisclosingtotheirchildrenlivingwithhivqualitativeinvestigations AT janicebuckley experiencesofsouthafricancaregiversdisclosingtotheirchildrenlivingwithhivqualitativeinvestigations AT minjamilovanovic experiencesofsouthafricancaregiversdisclosingtotheirchildrenlivingwithhivqualitativeinvestigations AT avyviolari experiencesofsouthafricancaregiversdisclosingtotheirchildrenlivingwithhivqualitativeinvestigations |