“Don’t Promise Something You can’t Deliver:” Caregivers’ Advice for Improving Services to Adolescents and Young Adults with Autism
Approximately 50,000 youths with autism spectrum disorders (ASD) exit U.S. high schools yearly to enter adult systems of care, many of whom remain dependent on family for day-to-day care and service system navigation. As part of a larger study, 174 family caregivers for adolescents or young adults w...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Hindawi Limited
2023-01-01
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| Series: | Autism Research and Treatment |
| Online Access: | http://dx.doi.org/10.1155/2023/6597554 |
| _version_ | 1797858244807360512 |
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| author | Kristen A. Berg Karen J. Ishler Sarah Lytle Ronna Kaplan Fei Wang Tugba Olgac Stacy Miner Marjorie N. Edguer David E. Biegel |
| author_facet | Kristen A. Berg Karen J. Ishler Sarah Lytle Ronna Kaplan Fei Wang Tugba Olgac Stacy Miner Marjorie N. Edguer David E. Biegel |
| author_sort | Kristen A. Berg |
| collection | DOAJ |
| description | Approximately 50,000 youths with autism spectrum disorders (ASD) exit U.S. high schools yearly to enter adult systems of care, many of whom remain dependent on family for day-to-day care and service system navigation. As part of a larger study, 174 family caregivers for adolescents or young adults with ASD were asked what advice they would give service providers about how to improve services for youth with ASD. Reflexive thematic analysis identified a framework of five directives: (1) provide a roadmap to services; (2) improve service access; (3) fill gaps to address unmet needs; (4) educate themselves, their families, and society about autism; and (5) operate from a relationship-building paradigm with families. Education, health, and social service providers, as well as policymakers, can use these directives to better assist youth with ASD and their families in the transition to adulthood. |
| first_indexed | 2024-04-09T21:10:16Z |
| format | Article |
| id | doaj.art-d9c40a7612474dcab8b33640a68c1d9a |
| institution | Directory Open Access Journal |
| issn | 2090-1933 |
| language | English |
| last_indexed | 2024-04-09T21:10:16Z |
| publishDate | 2023-01-01 |
| publisher | Hindawi Limited |
| record_format | Article |
| series | Autism Research and Treatment |
| spelling | doaj.art-d9c40a7612474dcab8b33640a68c1d9a2023-03-29T00:00:03ZengHindawi LimitedAutism Research and Treatment2090-19332023-01-01202310.1155/2023/6597554“Don’t Promise Something You can’t Deliver:” Caregivers’ Advice for Improving Services to Adolescents and Young Adults with AutismKristen A. Berg0Karen J. Ishler1Sarah Lytle2Ronna Kaplan3Fei Wang4Tugba Olgac5Stacy Miner6Marjorie N. Edguer7David E. Biegel8Jack, Joseph and Morton Mandel School of Applied Social SciencesJack, Joseph and Morton Mandel School of Applied Social SciencesUniversity Hospitals Cleveland Medical CenterCleveland State UniversityJack, Joseph and Morton Mandel School of Applied Social SciencesJack, Joseph and Morton Mandel School of Applied Social SciencesUniversity Hospitals Cleveland Medical CenterJack, Joseph and Morton Mandel School of Applied Social SciencesJack, Joseph and Morton Mandel School of Applied Social SciencesApproximately 50,000 youths with autism spectrum disorders (ASD) exit U.S. high schools yearly to enter adult systems of care, many of whom remain dependent on family for day-to-day care and service system navigation. As part of a larger study, 174 family caregivers for adolescents or young adults with ASD were asked what advice they would give service providers about how to improve services for youth with ASD. Reflexive thematic analysis identified a framework of five directives: (1) provide a roadmap to services; (2) improve service access; (3) fill gaps to address unmet needs; (4) educate themselves, their families, and society about autism; and (5) operate from a relationship-building paradigm with families. Education, health, and social service providers, as well as policymakers, can use these directives to better assist youth with ASD and their families in the transition to adulthood.http://dx.doi.org/10.1155/2023/6597554 |
| spellingShingle | Kristen A. Berg Karen J. Ishler Sarah Lytle Ronna Kaplan Fei Wang Tugba Olgac Stacy Miner Marjorie N. Edguer David E. Biegel “Don’t Promise Something You can’t Deliver:” Caregivers’ Advice for Improving Services to Adolescents and Young Adults with Autism Autism Research and Treatment |
| title | “Don’t Promise Something You can’t Deliver:” Caregivers’ Advice for Improving Services to Adolescents and Young Adults with Autism |
| title_full | “Don’t Promise Something You can’t Deliver:” Caregivers’ Advice for Improving Services to Adolescents and Young Adults with Autism |
| title_fullStr | “Don’t Promise Something You can’t Deliver:” Caregivers’ Advice for Improving Services to Adolescents and Young Adults with Autism |
| title_full_unstemmed | “Don’t Promise Something You can’t Deliver:” Caregivers’ Advice for Improving Services to Adolescents and Young Adults with Autism |
| title_short | “Don’t Promise Something You can’t Deliver:” Caregivers’ Advice for Improving Services to Adolescents and Young Adults with Autism |
| title_sort | don t promise something you can t deliver caregivers advice for improving services to adolescents and young adults with autism |
| url | http://dx.doi.org/10.1155/2023/6597554 |
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