Development of recommendations for a minimum dataset for Identifying Social factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in pain research

There is increasing recognition of the need for researchers to collect and report data that can illuminate health inequities. In pain research, routinely collecting equity-relevant data has the potential to inform about the generalisability of findings; whether the intervention has differential effe...

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Main Authors: Emma L. Karran, Aidan G. Cashin, Trevor Barker, Mark A. Boyd, Alessandro Chiarotto, Vina Mohabir, Jennifer Petkovic, Saurab Sharma, Peter Tugwell, G. Lorimer Moseley
Format: Article
Language:English
Published: Elsevier 2024-06-01
Series:MethodsX
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S2215016123004922
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author Emma L. Karran
Aidan G. Cashin
Trevor Barker
Mark A. Boyd
Alessandro Chiarotto
Vina Mohabir
Jennifer Petkovic
Saurab Sharma
Peter Tugwell
G. Lorimer Moseley
author_facet Emma L. Karran
Aidan G. Cashin
Trevor Barker
Mark A. Boyd
Alessandro Chiarotto
Vina Mohabir
Jennifer Petkovic
Saurab Sharma
Peter Tugwell
G. Lorimer Moseley
author_sort Emma L. Karran
collection DOAJ
description There is increasing recognition of the need for researchers to collect and report data that can illuminate health inequities. In pain research, routinely collecting equity-relevant data has the potential to inform about the generalisability of findings; whether the intervention has differential effects across strata of society; or it could be used to guide population targeting for clinical studies. Developing clarity and consensus on what data should be collected and how to collect it is required to prompt researchers to further consider equity issues in the planning, conduct, interpretation, and reporting of research. The overarching aim of the ‘Identifying Social Factors that Stratify Health Opportunities and Outcomes’ (ISSHOOs) in pain research project is to provide researchers in the pain field with recommendations to guide the routine collection of equity-relevant data. The design of this project is consistent with the methods outlined in the ‘Guidance for Developers of Health Research Reporting Guidelines’ and involves 4 stages: (i) Scoping review; (ii) Delphi Study; (iii) Consensus Meeting; and (iv) Focus Groups. This stakeholder-engaged project will produce a minimum dataset that has global, expert consensus. Results will be disseminated along with explanation and elaboration as a crucial step towards facilitating future action to address avoidable disparities in pain outcomes.
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spelling doaj.art-da36c332117a4806a6029d50cf9a7a8a2023-12-02T06:59:46ZengElsevierMethodsX2215-01612024-06-0112102496Development of recommendations for a minimum dataset for Identifying Social factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in pain researchEmma L. Karran0Aidan G. Cashin1Trevor Barker2Mark A. Boyd3Alessandro Chiarotto4Vina Mohabir5Jennifer Petkovic6Saurab Sharma7Peter Tugwell8G. Lorimer Moseley9The ‘Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research’ Collaboration; Innovation, Implementation and Clinical Translation (IIMPACT) in Health, University of South Australia, Kaurna Country, Adelaide, South Australia, Australia; Corresponding author at: University of South Australia, GPO Box 2471, Adelaide, South Australia, Australia.The ‘Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research’ Collaboration; Centre for Pain IMPACT, Neuroscience Research Australia, Sydney, New South Wales, Australia; School of Health Sciences, University of New South Wales, Sydney, New South Wales, AustraliaThe ‘Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research’ CollaborationThe ‘Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research’ Collaboration; Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, South Australia, Australia; Northern Adelaide Local health Network, Adelaide, South Australia, AustraliaThe ‘Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research’ Collaboration; Department of General Practice, Erasmus MC, University Medical Center, Rotterdam, the NetherlandsThe ‘Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research’ Collaboration; Child Health Evaluative Sciences, Peter Gilgan Centre for Research and Learning, The Hospital for Sick Children, Toronto, Ontario, CanadaThe ‘Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research’ Collaboration; Bruyere Research Institute, University of Ottawa, Ottawa, CanadaThe ‘Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research’ Collaboration; Centre for Pain IMPACT, Neuroscience Research Australia, Sydney, New South Wales, Australia; School of Health Sciences, University of New South Wales, Sydney, New South Wales, AustraliaThe ‘Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research’ Collaboration; Bruyere Research Institute, University of Ottawa, Ottawa, Canada; Department of Medicine and School of Epidemiology, University of Ottawa, Ottawa, CanadaThe ‘Identifying Social Factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in Pain Research’ Collaboration; Innovation, Implementation and Clinical Translation (IIMPACT) in Health, University of South Australia, Kaurna Country, Adelaide, South Australia, AustraliaThere is increasing recognition of the need for researchers to collect and report data that can illuminate health inequities. In pain research, routinely collecting equity-relevant data has the potential to inform about the generalisability of findings; whether the intervention has differential effects across strata of society; or it could be used to guide population targeting for clinical studies. Developing clarity and consensus on what data should be collected and how to collect it is required to prompt researchers to further consider equity issues in the planning, conduct, interpretation, and reporting of research. The overarching aim of the ‘Identifying Social Factors that Stratify Health Opportunities and Outcomes’ (ISSHOOs) in pain research project is to provide researchers in the pain field with recommendations to guide the routine collection of equity-relevant data. The design of this project is consistent with the methods outlined in the ‘Guidance for Developers of Health Research Reporting Guidelines’ and involves 4 stages: (i) Scoping review; (ii) Delphi Study; (iii) Consensus Meeting; and (iv) Focus Groups. This stakeholder-engaged project will produce a minimum dataset that has global, expert consensus. Results will be disseminated along with explanation and elaboration as a crucial step towards facilitating future action to address avoidable disparities in pain outcomes.http://www.sciencedirect.com/science/article/pii/S2215016123004922PainHealth equitySocial determinants of healthProtocolConsensus methods
spellingShingle Emma L. Karran
Aidan G. Cashin
Trevor Barker
Mark A. Boyd
Alessandro Chiarotto
Vina Mohabir
Jennifer Petkovic
Saurab Sharma
Peter Tugwell
G. Lorimer Moseley
Development of recommendations for a minimum dataset for Identifying Social factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in pain research
MethodsX
Pain
Health equity
Social determinants of health
Protocol
Consensus methods
title Development of recommendations for a minimum dataset for Identifying Social factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in pain research
title_full Development of recommendations for a minimum dataset for Identifying Social factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in pain research
title_fullStr Development of recommendations for a minimum dataset for Identifying Social factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in pain research
title_full_unstemmed Development of recommendations for a minimum dataset for Identifying Social factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in pain research
title_short Development of recommendations for a minimum dataset for Identifying Social factors that Stratify Health Opportunities and Outcomes (ISSHOOs) in pain research
title_sort development of recommendations for a minimum dataset for identifying social factors that stratify health opportunities and outcomes isshoos in pain research
topic Pain
Health equity
Social determinants of health
Protocol
Consensus methods
url http://www.sciencedirect.com/science/article/pii/S2215016123004922
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