Creating a care pathway for patients with longstanding, complex eating disorders
Plain English summary It is known that as many as 20% of people with eating disorders do not recover, and go on to live with their eating disorder for a number of years. However, there is relatively little research or guidance for professionals about how to support this group of people. Therefore, t...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
| Published: |
BMC
2022-08-01
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| Series: | Journal of Eating Disorders |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s40337-022-00648-0 |
| _version_ | 1797758731981684736 |
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| author | Megan Reay Joanna Holliday John Stewart Joanna Adams |
| author_facet | Megan Reay Joanna Holliday John Stewart Joanna Adams |
| author_sort | Megan Reay |
| collection | DOAJ |
| description | Plain English summary It is known that as many as 20% of people with eating disorders do not recover, and go on to live with their eating disorder for a number of years. However, there is relatively little research or guidance for professionals about how to support this group of people. Therefore, this project aimed to design a pathway for patients with longstanding eating disorders by combining the research evidence, staff’s expert opinion and patient’s views. The results highlighted that the majority of participants in this sample expressed a dislike for the term ‘SEED’ (severe and enduring eating disorder) and preferred ‘longstanding eating disorder’ or having no label. The results were used to generate a set of recommendations about how services can best support this group of patients which covered how to structure the service, individualise care, manage patient’s relationship to the service, and build a life after eating disorder services. Key ideas included the importance of remaining hopeful about future recovery, introducing peer support, and supporting patients to improve their quality of life. |
| first_indexed | 2024-03-12T18:34:21Z |
| format | Article |
| id | doaj.art-da4984dbfab3470f88b22f892048b3e8 |
| institution | Directory Open Access Journal |
| issn | 2050-2974 |
| language | English |
| last_indexed | 2024-03-12T18:34:21Z |
| publishDate | 2022-08-01 |
| publisher | BMC |
| record_format | Article |
| series | Journal of Eating Disorders |
| spelling | doaj.art-da4984dbfab3470f88b22f892048b3e82023-08-02T08:08:55ZengBMCJournal of Eating Disorders2050-29742022-08-0110111410.1186/s40337-022-00648-0Creating a care pathway for patients with longstanding, complex eating disordersMegan Reay0Joanna Holliday1John Stewart2Joanna Adams3Oxford Health NHS Foundation TrustOxford Health NHS Foundation TrustOxford Health NHS Foundation TrustThe Oxford Institute for Clinical Psychology Training and ResearchPlain English summary It is known that as many as 20% of people with eating disorders do not recover, and go on to live with their eating disorder for a number of years. However, there is relatively little research or guidance for professionals about how to support this group of people. Therefore, this project aimed to design a pathway for patients with longstanding eating disorders by combining the research evidence, staff’s expert opinion and patient’s views. The results highlighted that the majority of participants in this sample expressed a dislike for the term ‘SEED’ (severe and enduring eating disorder) and preferred ‘longstanding eating disorder’ or having no label. The results were used to generate a set of recommendations about how services can best support this group of patients which covered how to structure the service, individualise care, manage patient’s relationship to the service, and build a life after eating disorder services. Key ideas included the importance of remaining hopeful about future recovery, introducing peer support, and supporting patients to improve their quality of life.https://doi.org/10.1186/s40337-022-00648-0Longstanding eating disorderSevere and enduring eating disorder (SEED)Service improvementTreatmentCare pathway |
| spellingShingle | Megan Reay Joanna Holliday John Stewart Joanna Adams Creating a care pathway for patients with longstanding, complex eating disorders Journal of Eating Disorders Longstanding eating disorder Severe and enduring eating disorder (SEED) Service improvement Treatment Care pathway |
| title | Creating a care pathway for patients with longstanding, complex eating disorders |
| title_full | Creating a care pathway for patients with longstanding, complex eating disorders |
| title_fullStr | Creating a care pathway for patients with longstanding, complex eating disorders |
| title_full_unstemmed | Creating a care pathway for patients with longstanding, complex eating disorders |
| title_short | Creating a care pathway for patients with longstanding, complex eating disorders |
| title_sort | creating a care pathway for patients with longstanding complex eating disorders |
| topic | Longstanding eating disorder Severe and enduring eating disorder (SEED) Service improvement Treatment Care pathway |
| url | https://doi.org/10.1186/s40337-022-00648-0 |
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