Developing a taxonomy of care coordination for people living with rare conditions: a qualitative study

Developing a taxonomy of care coordination for people living with rare conditions: a qualitative study

Abstract Background Improving care coordination is particularly important for individuals with rare conditions (who may experience multiple inputs into their care, across different providers and settings). To develop and evaluate strategies to potentially improve care coordination, it is necessary t...

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Bibliographic Details
Main Authors: Holly Walton, Amy Simpson, Angus I. G. Ramsay, Emma Hudson, Amy Hunter, Jennifer Jones, Pei Li Ng, Kerry Leeson-Beevers, Lara Bloom, Joe Kai, Larissa Kerecuk, Maria Kokocinska, Alastair G. Sutcliffe, Stephen Morris, Naomi J. Fulop
Format: Article
Language:English
Published: BMC 2022-04-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Rare conditions
Rare diseases
Care coordination
Taxonomy
Qualitative
Health care organisation
Online Access:https://doi.org/10.1186/s13023-022-02321-w

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