Participatory Prototype Design: Developing a Sustainable Metadata Curation Workflow for Maternal Child Health Research

This paper describes the findings from a participatory prototype design project, where the authors worked with maternal and child health (MCH) researchers and stakeholders to develop a MCH metadata profile and sustainable curation workflow. This work led to the development of three prototypes: 1) a...

Full description

Bibliographic Details
Main Authors: Amanda Harrigan, Saurabh Vashishtha, Sharon Farnel, Kendall Roark
Format: Article
Language:English
Published: University of Edinburgh 2018-12-01
Series:International Journal of Digital Curation
Online Access:http://www.ijdc.net/article/view/534
_version_ 1828746284109922304
author Amanda Harrigan
Saurabh Vashishtha
Sharon Farnel
Kendall Roark
author_facet Amanda Harrigan
Saurabh Vashishtha
Sharon Farnel
Kendall Roark
author_sort Amanda Harrigan
collection DOAJ
description This paper describes the findings from a participatory prototype design project, where the authors worked with maternal and child health (MCH) researchers and stakeholders to develop a MCH metadata profile and sustainable curation workflow. This work led to the development of three prototypes: 1) a study catalogue hosted in Dataverse, 2) a metadata and research records repository hosted in REDCap and 3) a metadata harvesting tool/dashboard hosted within the Shiny RStudio environment. We present a brief overview of the methods used to develop the metadata profile, curation workflow and prototypes. Researchers and other stakeholders were participant-collaborators throughout the project. The participatory process involved a number of steps, including but not limited to: initial project design and grant writing; scoping and mapping existing practices, workflows and relevant metadata standards; creating the metadata profile; developing semi-automated and manual techniques to harvest and transform metadata; and end project sustainability/future planning. In this paper, we discuss the design process and project outcomes, limitations and benefits of the approach, and implications for researcher-oriented metadata and data curation initiatives.
first_indexed 2024-04-14T04:22:22Z
format Article
id doaj.art-da5fec665e404312984b0a109522ffcf
institution Directory Open Access Journal
issn 1746-8256
language English
last_indexed 2024-04-14T04:22:22Z
publishDate 2018-12-01
publisher University of Edinburgh
record_format Article
series International Journal of Digital Curation
spelling doaj.art-da5fec665e404312984b0a109522ffcf2022-12-22T02:12:29ZengUniversity of EdinburghInternational Journal of Digital Curation1746-82562018-12-0113110.2218/ijdc.v13i1.534Participatory Prototype Design: Developing a Sustainable Metadata Curation Workflow for Maternal Child Health ResearchAmanda Harrigan0Saurabh Vashishtha1Sharon Farnel2Kendall Roark3University of AlbertaUniversity of AlbertaUniversity of AlbertaPurdue UniversityThis paper describes the findings from a participatory prototype design project, where the authors worked with maternal and child health (MCH) researchers and stakeholders to develop a MCH metadata profile and sustainable curation workflow. This work led to the development of three prototypes: 1) a study catalogue hosted in Dataverse, 2) a metadata and research records repository hosted in REDCap and 3) a metadata harvesting tool/dashboard hosted within the Shiny RStudio environment. We present a brief overview of the methods used to develop the metadata profile, curation workflow and prototypes. Researchers and other stakeholders were participant-collaborators throughout the project. The participatory process involved a number of steps, including but not limited to: initial project design and grant writing; scoping and mapping existing practices, workflows and relevant metadata standards; creating the metadata profile; developing semi-automated and manual techniques to harvest and transform metadata; and end project sustainability/future planning. In this paper, we discuss the design process and project outcomes, limitations and benefits of the approach, and implications for researcher-oriented metadata and data curation initiatives.http://www.ijdc.net/article/view/534
spellingShingle Amanda Harrigan
Saurabh Vashishtha
Sharon Farnel
Kendall Roark
Participatory Prototype Design: Developing a Sustainable Metadata Curation Workflow for Maternal Child Health Research
International Journal of Digital Curation
title Participatory Prototype Design: Developing a Sustainable Metadata Curation Workflow for Maternal Child Health Research
title_full Participatory Prototype Design: Developing a Sustainable Metadata Curation Workflow for Maternal Child Health Research
title_fullStr Participatory Prototype Design: Developing a Sustainable Metadata Curation Workflow for Maternal Child Health Research
title_full_unstemmed Participatory Prototype Design: Developing a Sustainable Metadata Curation Workflow for Maternal Child Health Research
title_short Participatory Prototype Design: Developing a Sustainable Metadata Curation Workflow for Maternal Child Health Research
title_sort participatory prototype design developing a sustainable metadata curation workflow for maternal child health research
url http://www.ijdc.net/article/view/534
work_keys_str_mv AT amandaharrigan participatoryprototypedesigndevelopingasustainablemetadatacurationworkflowformaternalchildhealthresearch
AT saurabhvashishtha participatoryprototypedesigndevelopingasustainablemetadatacurationworkflowformaternalchildhealthresearch
AT sharonfarnel participatoryprototypedesigndevelopingasustainablemetadatacurationworkflowformaternalchildhealthresearch
AT kendallroark participatoryprototypedesigndevelopingasustainablemetadatacurationworkflowformaternalchildhealthresearch