Community advisory boards: Experiences and common practices of clinical and translational science award programs

Community advisory boards (CABs) are a valuable strategy for engaging and partnering with communities in research. Eighty-nine percent of Clinical and Translational Science Awardees (CTSA) responding to a 2011 survey reported having a CAB. CTSAs’ experiences with CABs are valuable for informing futu...

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Main Authors: M. Kathryn Stewart, Beatrice Boateng, Yvonne Joosten, Dana Burshell, Hilary Broughton, Karen Calhoun, Anna Huff Davis, Rachel Hale, Nicola Spencer, Patricia Piechowski, Laura James
Format: Article
Language:English
Published: Cambridge University Press 2019-10-01
Series:Journal of Clinical and Translational Science
Subjects:
Online Access:https://www.cambridge.org/core/product/identifier/S2059866119003893/type/journal_article
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author M. Kathryn Stewart
Beatrice Boateng
Yvonne Joosten
Dana Burshell
Hilary Broughton
Karen Calhoun
Anna Huff Davis
Rachel Hale
Nicola Spencer
Patricia Piechowski
Laura James
author_facet M. Kathryn Stewart
Beatrice Boateng
Yvonne Joosten
Dana Burshell
Hilary Broughton
Karen Calhoun
Anna Huff Davis
Rachel Hale
Nicola Spencer
Patricia Piechowski
Laura James
author_sort M. Kathryn Stewart
collection DOAJ
description Community advisory boards (CABs) are a valuable strategy for engaging and partnering with communities in research. Eighty-nine percent of Clinical and Translational Science Awardees (CTSA) responding to a 2011 survey reported having a CAB. CTSAs’ experiences with CABs are valuable for informing future practice. This study was conducted to describe common CAB implementation practices among CTSAs; document perceived benefits, challenges, and contributions; and examine their progress toward desirable outcomes. A cross-CTSA collaborative team collected survey data from respondents representing academic and/or community members affiliated with CTSAs with CABs. Data representing 44 CTSAs with CABs were analyzed using descriptive statistics. A majority of respondents reported practices reflecting respect for CAB members’ expertise and input such as compensation (75%), advisory purview beyond their CTSA’s Community Engagement program (88%), and influence over CAB operations. Three-quarters provide members with orientation and training on roles and responsibilities and 89% reported evaluating their CAB. Almost all respondents indicated their CTSA incorporates the feedback of their CABs to some degree; over half do so a lot or completely. This study profiles practices that inform CTSAs implementing a CAB and provide an evaluative benchmark for those with existing CABs.
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spelling doaj.art-daa176879cf6428aa8d53818135bd5f82023-03-09T12:29:47ZengCambridge University PressJournal of Clinical and Translational Science2059-86612019-10-01321822610.1017/cts.2019.389Community advisory boards: Experiences and common practices of clinical and translational science award programsM. Kathryn Stewart0Beatrice Boateng1https://orcid.org/0000-0001-8977-0666Yvonne Joosten2Dana Burshell3Hilary Broughton4Karen Calhoun5Anna Huff Davis6Rachel Hale7Nicola Spencer8Patricia Piechowski9Laura James10Health Policy and Management, Fay W. Boozman College of Public Health, Translational Research Institute, University of Arkansas for Medical Sciences, Little Rock, AR, USADepartment of Pediatrics, College of Medicine, Translational Research Institute, University of Arkansas for Medical Sciences, Little Rock, AR, USAInstitute for Medicine and Public Health, Vanderbilt Institute for Clinical and Translational Research, Vanderbilt University, Nashville, TN, USASouth Carolina Clinical and Translational Research Institute, Medical University of South Carolina, Charleston, SC, USAInstitute of Clinical and Translational Sciences, Washington University in St. Louis, St. Louis, MO, USAMichigan Institute for Clinical and Health Research, University of Michigan, Ann Arbor, MI, USATranslational Research Institute, University of Arkansas for Medical Sciences, Little Rock, AR, USATranslational Research Institute, University of Arkansas for Medical Sciences, Little Rock, AR, USATranslational Research Institute, University of Arkansas for Medical Sciences, Little Rock, AR, USAMichigan Institute for Clinical and Health Research, University of Michigan, Ann Arbor, MI, USADepartment of Pediatrics, College of Medicine, Translational Research Institute, University of Arkansas for Medical Sciences, Little Rock, AR, USACommunity advisory boards (CABs) are a valuable strategy for engaging and partnering with communities in research. Eighty-nine percent of Clinical and Translational Science Awardees (CTSA) responding to a 2011 survey reported having a CAB. CTSAs’ experiences with CABs are valuable for informing future practice. This study was conducted to describe common CAB implementation practices among CTSAs; document perceived benefits, challenges, and contributions; and examine their progress toward desirable outcomes. A cross-CTSA collaborative team collected survey data from respondents representing academic and/or community members affiliated with CTSAs with CABs. Data representing 44 CTSAs with CABs were analyzed using descriptive statistics. A majority of respondents reported practices reflecting respect for CAB members’ expertise and input such as compensation (75%), advisory purview beyond their CTSA’s Community Engagement program (88%), and influence over CAB operations. Three-quarters provide members with orientation and training on roles and responsibilities and 89% reported evaluating their CAB. Almost all respondents indicated their CTSA incorporates the feedback of their CABs to some degree; over half do so a lot or completely. This study profiles practices that inform CTSAs implementing a CAB and provide an evaluative benchmark for those with existing CABs.https://www.cambridge.org/core/product/identifier/S2059866119003893/type/journal_articleCommunity advisory boardcommunity engagementcommunity partnershipsbest practicesimplementationsurvey
spellingShingle M. Kathryn Stewart
Beatrice Boateng
Yvonne Joosten
Dana Burshell
Hilary Broughton
Karen Calhoun
Anna Huff Davis
Rachel Hale
Nicola Spencer
Patricia Piechowski
Laura James
Community advisory boards: Experiences and common practices of clinical and translational science award programs
Journal of Clinical and Translational Science
Community advisory board
community engagement
community partnerships
best practices
implementation
survey
title Community advisory boards: Experiences and common practices of clinical and translational science award programs
title_full Community advisory boards: Experiences and common practices of clinical and translational science award programs
title_fullStr Community advisory boards: Experiences and common practices of clinical and translational science award programs
title_full_unstemmed Community advisory boards: Experiences and common practices of clinical and translational science award programs
title_short Community advisory boards: Experiences and common practices of clinical and translational science award programs
title_sort community advisory boards experiences and common practices of clinical and translational science award programs
topic Community advisory board
community engagement
community partnerships
best practices
implementation
survey
url https://www.cambridge.org/core/product/identifier/S2059866119003893/type/journal_article
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