Patient Portals to Support Palliative and End-of-Life Care: Scoping Review
BackgroundAlthough patient portals are widely used for health promotion, little is known about the use of palliative care and end-of-life (PCEOL) portal tools available for patients and caregivers. ObjectiveThis study aims to identify and assess the user perspecti...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
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JMIR Publications
2021-09-01
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| Series: | Journal of Medical Internet Research |
| Online Access: | https://www.jmir.org/2021/9/e28797 |
| _version_ | 1797735767976443904 |
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| author | M Pilar Ingle Cristina Valdovinos Kelsey L Ford Shou Zhou Sheana Bull Starlynne Gornail Xuhong Zhang Susan Moore Jennifer Portz |
| author_facet | M Pilar Ingle Cristina Valdovinos Kelsey L Ford Shou Zhou Sheana Bull Starlynne Gornail Xuhong Zhang Susan Moore Jennifer Portz |
| author_sort | M Pilar Ingle |
| collection | DOAJ |
| description |
BackgroundAlthough patient portals are widely used for health promotion, little is known about the use of palliative care and end-of-life (PCEOL) portal tools available for patients and caregivers.
ObjectiveThis study aims to identify and assess the user perspectives of PCEOL portal tools available to patients and caregivers described and evaluated in the literature.
MethodsWe performed a scoping review of the academic literature directed by the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-analyses) extension for Scoping Review and searched three databases. Sources were included if they reported the development or testing of a feature, resource, tool, or intervention; focused on at least one PCEOL domain defined by the National Coalition for Hospice and Palliative Care; targeted adults with serious illness or caregivers; and were offered via a patient portal tethered to an electronic medical record. We independently screened the titles and abstracts (n=796) for eligibility. Full-text (84/796, 10.6%) sources were reviewed. We abstracted descriptions of the portal tool name, content, targeted population, and reported user acceptability for each tool from included sources (n=19).
ResultsIn total, 19 articles describing 12 tools were included, addressing the following PCEOL domains: ethical or legal (n=5), physical (n=5), and psychological or psychiatric (n=2). No tools for bereavement or hospice care were identified. Studies have reported high acceptability of tools among users; however, few sources commented on usability among older adults.
ConclusionsPCEOL patient portal tools are understudied. As medical care increasingly moves toward virtual platforms, future research should investigate the usability and acceptability of PCEOL patient portal resources and evaluate their impact on health outcomes. |
| first_indexed | 2024-03-12T13:02:58Z |
| format | Article |
| id | doaj.art-dae500a9e666451bb45e12b9cf1405e2 |
| institution | Directory Open Access Journal |
| issn | 1438-8871 |
| language | English |
| last_indexed | 2024-03-12T13:02:58Z |
| publishDate | 2021-09-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | Journal of Medical Internet Research |
| spelling | doaj.art-dae500a9e666451bb45e12b9cf1405e22023-08-28T19:05:17ZengJMIR PublicationsJournal of Medical Internet Research1438-88712021-09-01239e2879710.2196/28797Patient Portals to Support Palliative and End-of-Life Care: Scoping ReviewM Pilar Inglehttps://orcid.org/0000-0001-9490-2838Cristina Valdovinoshttps://orcid.org/0000-0003-4591-1599Kelsey L Fordhttps://orcid.org/0000-0001-9069-0479Shou Zhouhttps://orcid.org/0000-0001-7514-3522Sheana Bullhttps://orcid.org/0000-0001-8688-326XStarlynne Gornailhttps://orcid.org/0000-0001-6635-2621Xuhong Zhanghttps://orcid.org/0000-0001-7563-9915Susan Moorehttps://orcid.org/0000-0001-8671-6066Jennifer Portzhttps://orcid.org/0000-0003-3107-3598 BackgroundAlthough patient portals are widely used for health promotion, little is known about the use of palliative care and end-of-life (PCEOL) portal tools available for patients and caregivers. ObjectiveThis study aims to identify and assess the user perspectives of PCEOL portal tools available to patients and caregivers described and evaluated in the literature. MethodsWe performed a scoping review of the academic literature directed by the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-analyses) extension for Scoping Review and searched three databases. Sources were included if they reported the development or testing of a feature, resource, tool, or intervention; focused on at least one PCEOL domain defined by the National Coalition for Hospice and Palliative Care; targeted adults with serious illness or caregivers; and were offered via a patient portal tethered to an electronic medical record. We independently screened the titles and abstracts (n=796) for eligibility. Full-text (84/796, 10.6%) sources were reviewed. We abstracted descriptions of the portal tool name, content, targeted population, and reported user acceptability for each tool from included sources (n=19). ResultsIn total, 19 articles describing 12 tools were included, addressing the following PCEOL domains: ethical or legal (n=5), physical (n=5), and psychological or psychiatric (n=2). No tools for bereavement or hospice care were identified. Studies have reported high acceptability of tools among users; however, few sources commented on usability among older adults. ConclusionsPCEOL patient portal tools are understudied. As medical care increasingly moves toward virtual platforms, future research should investigate the usability and acceptability of PCEOL patient portal resources and evaluate their impact on health outcomes.https://www.jmir.org/2021/9/e28797 |
| spellingShingle | M Pilar Ingle Cristina Valdovinos Kelsey L Ford Shou Zhou Sheana Bull Starlynne Gornail Xuhong Zhang Susan Moore Jennifer Portz Patient Portals to Support Palliative and End-of-Life Care: Scoping Review Journal of Medical Internet Research |
| title | Patient Portals to Support Palliative and End-of-Life Care: Scoping Review |
| title_full | Patient Portals to Support Palliative and End-of-Life Care: Scoping Review |
| title_fullStr | Patient Portals to Support Palliative and End-of-Life Care: Scoping Review |
| title_full_unstemmed | Patient Portals to Support Palliative and End-of-Life Care: Scoping Review |
| title_short | Patient Portals to Support Palliative and End-of-Life Care: Scoping Review |
| title_sort | patient portals to support palliative and end of life care scoping review |
| url | https://www.jmir.org/2021/9/e28797 |
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