Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices
Abstract Introduction Sickle cell disease is a genetic disorder with its highest prevalence in Nigeria. The condition causes red blood cells to turn rigid, and consequently, results to several complications including organ damage. This study aimed at assessing views of health practitioners in Nigeri...
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| Format: | Article |
| Language: | English |
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Wiley
2023-05-01
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| Series: | Molecular Genetics & Genomic Medicine |
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| Online Access: | https://doi.org/10.1002/mgg3.2142 |
| _version_ | 1797828628542652416 |
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| author | Obi Peter Adigwe |
| author_facet | Obi Peter Adigwe |
| author_sort | Obi Peter Adigwe |
| collection | DOAJ |
| description | Abstract Introduction Sickle cell disease is a genetic disorder with its highest prevalence in Nigeria. The condition causes red blood cells to turn rigid, and consequently, results to several complications including organ damage. This study aimed at assessing views of health practitioners in Nigeria on policies and practices in the area of access to healthcare services for sickle cell disease. Methods A cross‐sectional study was undertaken amongst healthcare professionals in Nigeria. Data were collected using a self‐administered questionnaire, and analyses were undertaken using Statistical Package for Social Sciences software. Results A significant proportion of the participants (42.8%) disagreed that relevant legislative framework exists to facilitate optimal access to high‐quality healthcare services for persons with sickle cell disorder in Nigeria. Two‐thirds of the study cohort were of the opinion that public health surveillance towards sickle cell disease was suboptimal (61.2%). Also, more than three‐quarters of the respondents (78.7%) indicated that the cost of managing sickle cell disease was not affordable to majority of affected Nigerians. Conclusion This study provides critical insights into access to healthcare services for sickle cell disease. As such, challenges preventing access to healthcare services for sickle cell patients which have been identified in this study can underpin the development of contextual policies to address them. |
| first_indexed | 2024-04-09T13:07:23Z |
| format | Article |
| id | doaj.art-db85ce3c457646afa6a08f87fc1a6f59 |
| institution | Directory Open Access Journal |
| issn | 2324-9269 |
| language | English |
| last_indexed | 2024-04-09T13:07:23Z |
| publishDate | 2023-05-01 |
| publisher | Wiley |
| record_format | Article |
| series | Molecular Genetics & Genomic Medicine |
| spelling | doaj.art-db85ce3c457646afa6a08f87fc1a6f592023-05-12T14:52:44ZengWileyMolecular Genetics & Genomic Medicine2324-92692023-05-01115n/an/a10.1002/mgg3.2142Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practicesObi Peter Adigwe0National Institute for Pharmaceutical Research and Development Abuja NigeriaAbstract Introduction Sickle cell disease is a genetic disorder with its highest prevalence in Nigeria. The condition causes red blood cells to turn rigid, and consequently, results to several complications including organ damage. This study aimed at assessing views of health practitioners in Nigeria on policies and practices in the area of access to healthcare services for sickle cell disease. Methods A cross‐sectional study was undertaken amongst healthcare professionals in Nigeria. Data were collected using a self‐administered questionnaire, and analyses were undertaken using Statistical Package for Social Sciences software. Results A significant proportion of the participants (42.8%) disagreed that relevant legislative framework exists to facilitate optimal access to high‐quality healthcare services for persons with sickle cell disorder in Nigeria. Two‐thirds of the study cohort were of the opinion that public health surveillance towards sickle cell disease was suboptimal (61.2%). Also, more than three‐quarters of the respondents (78.7%) indicated that the cost of managing sickle cell disease was not affordable to majority of affected Nigerians. Conclusion This study provides critical insights into access to healthcare services for sickle cell disease. As such, challenges preventing access to healthcare services for sickle cell patients which have been identified in this study can underpin the development of contextual policies to address them.https://doi.org/10.1002/mgg3.2142genotypehealthcareNigeriapoliciessickle cell |
| spellingShingle | Obi Peter Adigwe Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices Molecular Genetics & Genomic Medicine genotype healthcare Nigeria policies sickle cell |
| title | Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices |
| title_full | Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices |
| title_fullStr | Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices |
| title_full_unstemmed | Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices |
| title_short | Access to healthcare for people with sickle cell disease: Views of healthcare professionals on policies and practices |
| title_sort | access to healthcare for people with sickle cell disease views of healthcare professionals on policies and practices |
| topic | genotype healthcare Nigeria policies sickle cell |
| url | https://doi.org/10.1002/mgg3.2142 |
| work_keys_str_mv | AT obipeteradigwe accesstohealthcareforpeoplewithsicklecelldiseaseviewsofhealthcareprofessionalsonpoliciesandpractices |