‘Am I fixed, am I better now?’: undergoing MR-guided focused ultrasound for essential tremor: an interpretative phenomenological analysis
IntroductionEssential tremor (ET) is characterised by postural and intentional tremor typically affecting the upper limbs, which can negatively impact functionality and quality of life. Magnetic Resonance-guided Focused Ultrasound (MRgFUS) is a novel and promising non-invasive treatment for ET which...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2024-02-01
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| Series: | Frontiers in Neurology |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/fneur.2024.1352581/full |
| _version_ | 1797320589116964864 |
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| author | Tsvetina Stoycheva Tsvetina Stoycheva Ayesha Jameel Ayesha Jameel Peter Bain Peter Bain Dipankar Nandi Dipankar Nandi Brynmor Jones Lesley Honeyfield Wladyslaw Gedroyc Wladyslaw Gedroyc Jaqualyn Moore |
| author_facet | Tsvetina Stoycheva Tsvetina Stoycheva Ayesha Jameel Ayesha Jameel Peter Bain Peter Bain Dipankar Nandi Dipankar Nandi Brynmor Jones Lesley Honeyfield Wladyslaw Gedroyc Wladyslaw Gedroyc Jaqualyn Moore |
| author_sort | Tsvetina Stoycheva |
| collection | DOAJ |
| description | IntroductionEssential tremor (ET) is characterised by postural and intentional tremor typically affecting the upper limbs, which can negatively impact functionality and quality of life. Magnetic Resonance-guided Focused Ultrasound (MRgFUS) is a novel and promising non-invasive treatment for ET which offers instantaneous results.MethodsUsing interpretative phenomenological analysis we explored the experience of undergoing MRgFUS in six ET patients as well as their experiences pre- and post-procedure.ResultsOne-time, retrospective semi-structured interviews were conducted and six themes emerged: Life pre-treatment: “It’s everyday tasks that get you down” and “Most people who understand, they are okay. Some people aren’t”; MRgFUS: Treatment day: “Going into the unknown” and “There’s no way I was going to press that button”; and Life post-treatment: “One is good. Two is better” and “Am I fixed, am I better now?.”DiscussionThe findings point to a significant period of adjustment associated with living with ET and the effects of undergoing ET MRgFUS treatment. As ET progressed, participants struggled to cope with increasing symptoms and had to develop coping strategies to manage life with ET. The procedure itself was perceived as strange and extraordinary and despite some immediate adverse effects participants were determined to go through with it. Post procedure, all participants reported tremor suppression which was life changing. While some participants still felt burdened by ET, others expressed it took them a while to psychologically adjust to what essentially was their new body. This study has highlighted the need for patients to be supported at all stages of their ET journey. |
| first_indexed | 2024-03-08T04:45:12Z |
| format | Article |
| id | doaj.art-dc4ae8a98a534bcd902d999150305d42 |
| institution | Directory Open Access Journal |
| issn | 1664-2295 |
| language | English |
| last_indexed | 2024-03-08T04:45:12Z |
| publishDate | 2024-02-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Neurology |
| spelling | doaj.art-dc4ae8a98a534bcd902d999150305d422024-02-08T11:41:06ZengFrontiers Media S.A.Frontiers in Neurology1664-22952024-02-011510.3389/fneur.2024.13525811352581‘Am I fixed, am I better now?’: undergoing MR-guided focused ultrasound for essential tremor: an interpretative phenomenological analysisTsvetina Stoycheva0Tsvetina Stoycheva1Ayesha Jameel2Ayesha Jameel3Peter Bain4Peter Bain5Dipankar Nandi6Dipankar Nandi7Brynmor Jones8Lesley Honeyfield9Wladyslaw Gedroyc10Wladyslaw Gedroyc11Jaqualyn Moore12Imperial College Healthcare NHS Trust, London, United KingdomKing’s College London, London, England, United KingdomImperial College Healthcare NHS Trust, London, United KingdomImperial College London, London, England, United KingdomImperial College Healthcare NHS Trust, London, United KingdomImperial College London, London, England, United KingdomImperial College Healthcare NHS Trust, London, United KingdomImperial College London, London, England, United KingdomImperial College Healthcare NHS Trust, London, United KingdomImperial College Healthcare NHS Trust, London, United KingdomImperial College Healthcare NHS Trust, London, United KingdomImperial College London, London, England, United KingdomKing’s College London, London, England, United KingdomIntroductionEssential tremor (ET) is characterised by postural and intentional tremor typically affecting the upper limbs, which can negatively impact functionality and quality of life. Magnetic Resonance-guided Focused Ultrasound (MRgFUS) is a novel and promising non-invasive treatment for ET which offers instantaneous results.MethodsUsing interpretative phenomenological analysis we explored the experience of undergoing MRgFUS in six ET patients as well as their experiences pre- and post-procedure.ResultsOne-time, retrospective semi-structured interviews were conducted and six themes emerged: Life pre-treatment: “It’s everyday tasks that get you down” and “Most people who understand, they are okay. Some people aren’t”; MRgFUS: Treatment day: “Going into the unknown” and “There’s no way I was going to press that button”; and Life post-treatment: “One is good. Two is better” and “Am I fixed, am I better now?.”DiscussionThe findings point to a significant period of adjustment associated with living with ET and the effects of undergoing ET MRgFUS treatment. As ET progressed, participants struggled to cope with increasing symptoms and had to develop coping strategies to manage life with ET. The procedure itself was perceived as strange and extraordinary and despite some immediate adverse effects participants were determined to go through with it. Post procedure, all participants reported tremor suppression which was life changing. While some participants still felt burdened by ET, others expressed it took them a while to psychologically adjust to what essentially was their new body. This study has highlighted the need for patients to be supported at all stages of their ET journey.https://www.frontiersin.org/articles/10.3389/fneur.2024.1352581/fullessential tremorinterpretative phenomenological analysisMR-guided focused ultrasoundpatient experiencepatient perspective |
| spellingShingle | Tsvetina Stoycheva Tsvetina Stoycheva Ayesha Jameel Ayesha Jameel Peter Bain Peter Bain Dipankar Nandi Dipankar Nandi Brynmor Jones Lesley Honeyfield Wladyslaw Gedroyc Wladyslaw Gedroyc Jaqualyn Moore ‘Am I fixed, am I better now?’: undergoing MR-guided focused ultrasound for essential tremor: an interpretative phenomenological analysis Frontiers in Neurology essential tremor interpretative phenomenological analysis MR-guided focused ultrasound patient experience patient perspective |
| title | ‘Am I fixed, am I better now?’: undergoing MR-guided focused ultrasound for essential tremor: an interpretative phenomenological analysis |
| title_full | ‘Am I fixed, am I better now?’: undergoing MR-guided focused ultrasound for essential tremor: an interpretative phenomenological analysis |
| title_fullStr | ‘Am I fixed, am I better now?’: undergoing MR-guided focused ultrasound for essential tremor: an interpretative phenomenological analysis |
| title_full_unstemmed | ‘Am I fixed, am I better now?’: undergoing MR-guided focused ultrasound for essential tremor: an interpretative phenomenological analysis |
| title_short | ‘Am I fixed, am I better now?’: undergoing MR-guided focused ultrasound for essential tremor: an interpretative phenomenological analysis |
| title_sort | am i fixed am i better now undergoing mr guided focused ultrasound for essential tremor an interpretative phenomenological analysis |
| topic | essential tremor interpretative phenomenological analysis MR-guided focused ultrasound patient experience patient perspective |
| url | https://www.frontiersin.org/articles/10.3389/fneur.2024.1352581/full |
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