Using the internet to exchange information and experience on cystic fibrosis
Objective. Describing the experience of patients with cystic fibrosis (CF) and their families using the internet as a means for information, interaction and exchange of experiences with this disease. Methodology. A descriptive qualitative exploratory study was carried out in 2011. The subjects of th...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Universidad de Antioquia
2013-12-01
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| Series: | Investigación y Educación en Enfermería |
| Subjects: | |
| Online Access: | http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0120-53072013000300014&lng=en&tlng=en |
| _version_ | 1797424076747177984 |
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| author | Ellen Dayane Cargnin Pimentel Geisa dos Santos Luz Sandra Marisa Pelloso Maria Dalva Barros Carvalho |
| author_facet | Ellen Dayane Cargnin Pimentel Geisa dos Santos Luz Sandra Marisa Pelloso Maria Dalva Barros Carvalho |
| author_sort | Ellen Dayane Cargnin Pimentel |
| collection | DOAJ |
| description | Objective. Describing the experience of patients with cystic fibrosis (CF) and their families using the internet as a means for information, interaction and exchange of experiences with this disease. Methodology. A descriptive qualitative exploratory study was carried out in 2011. The subjects of the study were patients with CF and their parents or other family members contacted via e-mail on social networking websites. The requested information included the guiding question: ''Tell me about your experience on the internet as a means of information and exchange of experiences involving CF'', as well as demographic information and whether the respondent was the patient or a family member. Results. A total of 40 invitations were sent by email asking for information and 22 were accepted (55%). According to participants (15 patients and seven family members), the most widely used internet media were websites related to seeking information about CF. The use of internet was divided in three categories: 1) scientific and technical aspects, 2) emotional aspects, and c) modes of disseminating information. Conclusion. The internet proved to be a medium of opinion formation which could eventually replace medical advice. It is necessary to establish criteria for constructing and monitoring information related to CF published on internet websites. |
| first_indexed | 2024-03-09T07:57:02Z |
| format | Article |
| id | doaj.art-dcadcbf8c30f4274aed07d65e0296760 |
| institution | Directory Open Access Journal |
| issn | 0120-5307 |
| language | English |
| last_indexed | 2024-03-09T07:57:02Z |
| publishDate | 2013-12-01 |
| publisher | Universidad de Antioquia |
| record_format | Article |
| series | Investigación y Educación en Enfermería |
| spelling | doaj.art-dcadcbf8c30f4274aed07d65e02967602023-12-03T00:57:29ZengUniversidad de AntioquiaInvestigación y Educación en Enfermería0120-53072013-12-01313457463S0120-53072013000300014Using the internet to exchange information and experience on cystic fibrosisEllen Dayane Cargnin Pimentel0Geisa dos Santos Luz1Sandra Marisa Pelloso2Maria Dalva Barros Carvalho3Universidade Estadual de Maringá UEMUniversidade Federal do Rio Grande FURGUniversidade Estadual de Maringá UEMUniversidade Estadual de Maringá UEMObjective. Describing the experience of patients with cystic fibrosis (CF) and their families using the internet as a means for information, interaction and exchange of experiences with this disease. Methodology. A descriptive qualitative exploratory study was carried out in 2011. The subjects of the study were patients with CF and their parents or other family members contacted via e-mail on social networking websites. The requested information included the guiding question: ''Tell me about your experience on the internet as a means of information and exchange of experiences involving CF'', as well as demographic information and whether the respondent was the patient or a family member. Results. A total of 40 invitations were sent by email asking for information and 22 were accepted (55%). According to participants (15 patients and seven family members), the most widely used internet media were websites related to seeking information about CF. The use of internet was divided in three categories: 1) scientific and technical aspects, 2) emotional aspects, and c) modes of disseminating information. Conclusion. The internet proved to be a medium of opinion formation which could eventually replace medical advice. It is necessary to establish criteria for constructing and monitoring information related to CF published on internet websites.http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0120-53072013000300014&lng=en&tlng=enInternetfibrosis quísticaenfermería |
| spellingShingle | Ellen Dayane Cargnin Pimentel Geisa dos Santos Luz Sandra Marisa Pelloso Maria Dalva Barros Carvalho Using the internet to exchange information and experience on cystic fibrosis Investigación y Educación en Enfermería Internet fibrosis quística enfermería |
| title | Using the internet to exchange information and experience on cystic fibrosis |
| title_full | Using the internet to exchange information and experience on cystic fibrosis |
| title_fullStr | Using the internet to exchange information and experience on cystic fibrosis |
| title_full_unstemmed | Using the internet to exchange information and experience on cystic fibrosis |
| title_short | Using the internet to exchange information and experience on cystic fibrosis |
| title_sort | using the internet to exchange information and experience on cystic fibrosis |
| topic | Internet fibrosis quística enfermería |
| url | http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0120-53072013000300014&lng=en&tlng=en |
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