Making stillbirths count, making numbers talk - Issues in data collection for stillbirths
<p>Abstract</p> <p>Background</p> <p>Stillbirths need to count. They constitute the majority of the world's perinatal deaths and yet, they are largely invisible. Simply counting stillbirths is only the first step in analysis and prevention. From a public health per...
| Main Authors: | , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
BMC
2009-12-01
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| Series: | BMC Pregnancy and Childbirth |
| Online Access: | http://www.biomedcentral.com/1471-2393/9/58 |
| _version_ | 1811297401232687104 |
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| author | Jokhio Abdul Hofmeyr G Justus Hinderaker Sven Flenady Vicki Fauveau Vincent Duke Charles W Betran Ana Bergsjø Per Abdel-Aleem Hany Gordijn Sanne J Frøen J Frederik Lawn Joy Lumbiganon Pisake Merialdi Mario Pattinson Robert Shankar Anuraj |
| author_facet | Jokhio Abdul Hofmeyr G Justus Hinderaker Sven Flenady Vicki Fauveau Vincent Duke Charles W Betran Ana Bergsjø Per Abdel-Aleem Hany Gordijn Sanne J Frøen J Frederik Lawn Joy Lumbiganon Pisake Merialdi Mario Pattinson Robert Shankar Anuraj |
| author_sort | Jokhio Abdul |
| collection | DOAJ |
| description | <p>Abstract</p> <p>Background</p> <p>Stillbirths need to count. They constitute the majority of the world's perinatal deaths and yet, they are largely invisible. Simply counting stillbirths is only the first step in analysis and prevention. From a public health perspective, there is a need for information on timing and circumstances of death, associated conditions and underlying causes, and availability and quality of care. This information will guide efforts to prevent stillbirths and improve quality of care.</p> <p>Discussion</p> <p>In this report, we assess how different definitions and limits in registration affect data capture, and we discuss the specific challenges of stillbirth registration, with emphasis on implementation. We identify what data need to be captured, we suggest a dataset to cover core needs in registration and analysis of the different categories of stillbirths with causes and quality indicators, and we illustrate the experience in stillbirth registration from different cultural settings. Finally, we point out gaps that need attention in the International Classification of Diseases and review the qualities of alternative systems that have been tested in low- and middle-income settings.</p> <p>Summary</p> <p>Obtaining high-quality data will require consistent definitions for stillbirths, systematic population-based registration, better tools for surveys and verbal autopsies, capacity building and training in procedures to identify causes of death, locally adapted quality indicators, improved classification systems, and effective registration and reporting systems.</p> |
| first_indexed | 2024-04-13T06:03:42Z |
| format | Article |
| id | doaj.art-dcb4527985344cf7b7e8abe9bae62360 |
| institution | Directory Open Access Journal |
| issn | 1471-2393 |
| language | English |
| last_indexed | 2024-04-13T06:03:42Z |
| publishDate | 2009-12-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Pregnancy and Childbirth |
| spelling | doaj.art-dcb4527985344cf7b7e8abe9bae623602022-12-22T02:59:21ZengBMCBMC Pregnancy and Childbirth1471-23932009-12-01915810.1186/1471-2393-9-58Making stillbirths count, making numbers talk - Issues in data collection for stillbirthsJokhio AbdulHofmeyr G JustusHinderaker SvenFlenady VickiFauveau VincentDuke Charles WBetran AnaBergsjø PerAbdel-Aleem HanyGordijn Sanne JFrøen J FrederikLawn JoyLumbiganon PisakeMerialdi MarioPattinson RobertShankar Anuraj<p>Abstract</p> <p>Background</p> <p>Stillbirths need to count. They constitute the majority of the world's perinatal deaths and yet, they are largely invisible. Simply counting stillbirths is only the first step in analysis and prevention. From a public health perspective, there is a need for information on timing and circumstances of death, associated conditions and underlying causes, and availability and quality of care. This information will guide efforts to prevent stillbirths and improve quality of care.</p> <p>Discussion</p> <p>In this report, we assess how different definitions and limits in registration affect data capture, and we discuss the specific challenges of stillbirth registration, with emphasis on implementation. We identify what data need to be captured, we suggest a dataset to cover core needs in registration and analysis of the different categories of stillbirths with causes and quality indicators, and we illustrate the experience in stillbirth registration from different cultural settings. Finally, we point out gaps that need attention in the International Classification of Diseases and review the qualities of alternative systems that have been tested in low- and middle-income settings.</p> <p>Summary</p> <p>Obtaining high-quality data will require consistent definitions for stillbirths, systematic population-based registration, better tools for surveys and verbal autopsies, capacity building and training in procedures to identify causes of death, locally adapted quality indicators, improved classification systems, and effective registration and reporting systems.</p>http://www.biomedcentral.com/1471-2393/9/58 |
| spellingShingle | Jokhio Abdul Hofmeyr G Justus Hinderaker Sven Flenady Vicki Fauveau Vincent Duke Charles W Betran Ana Bergsjø Per Abdel-Aleem Hany Gordijn Sanne J Frøen J Frederik Lawn Joy Lumbiganon Pisake Merialdi Mario Pattinson Robert Shankar Anuraj Making stillbirths count, making numbers talk - Issues in data collection for stillbirths BMC Pregnancy and Childbirth |
| title | Making stillbirths count, making numbers talk - Issues in data collection for stillbirths |
| title_full | Making stillbirths count, making numbers talk - Issues in data collection for stillbirths |
| title_fullStr | Making stillbirths count, making numbers talk - Issues in data collection for stillbirths |
| title_full_unstemmed | Making stillbirths count, making numbers talk - Issues in data collection for stillbirths |
| title_short | Making stillbirths count, making numbers talk - Issues in data collection for stillbirths |
| title_sort | making stillbirths count making numbers talk issues in data collection for stillbirths |
| url | http://www.biomedcentral.com/1471-2393/9/58 |
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