Public health research using cell phone derived mobility data in sub-Saharan Africa: Ethical issues
The movements of humans have a significant impact on population health. While studies of such movements are as old as public health itself, the COVID-19 pandemic has raised the profile of mobility research using digital technologies to track transmission routes and calculate the effects of health p...
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| Format: | Article |
| Language: | English |
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Academy of Science of South Africa
2023-05-01
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| Series: | South African Journal of Science |
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| Online Access: | https://sajs.co.za/article/view/14777 |
| _version_ | 1827937275514716160 |
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| author | Stuart Rennie Caesar Atuire Tiwonge Mtande Walter Jaoko Sergio Litekwa Eric Juengst Keymanthri Moodley |
| author_facet | Stuart Rennie Caesar Atuire Tiwonge Mtande Walter Jaoko Sergio Litekwa Eric Juengst Keymanthri Moodley |
| author_sort | Stuart Rennie |
| collection | DOAJ |
| description |
The movements of humans have a significant impact on population health. While studies of such movements are as old as public health itself, the COVID-19 pandemic has raised the profile of mobility research using digital technologies to track transmission routes and calculate the effects of health policies, such as lockdowns. In sub-Saharan Africa, the high prevalence of cell phone and smartphone use is a source of potentially valuable mobility data for public health purposes. Researchers can access call data records, passively collected in real time from millions of clients by cell phone companies, and associate these records with other data sets to generate insights, make predictions or draw possible policy implications. The use of mobility data from this source could have a range of significant benefits for society, from better control of infectious diseases, improved city planning, more efficient transportation systems and the optimisation of health resources. We discuss key ethical issues raised by public health studies using mobility data from cell phones in sub-Saharan Africa and identify six key ethical challenge areas: autonomy, including consent and individual or group privacy; bias and representativeness; community awareness, engagement and trust; function creep and accountability; stakeholder relationships and power dynamics; and the translation of mobility analyses into health policy. We emphasise the ethical importance of narrowing knowledge gaps between researchers, policymakers and the general public. Given that individuals do not really provide valid consent for the research use of phone data tracking their movements, community understanding and input will be crucial to the maintenance of public trust.
Significance:
• Mobility data derived from cell phones are being increasingly used for health research and public health purposes in sub-Saharan Africa, with minimal individual consent and largely without public awareness.
• While such data can have significant potential public health benefits, risks and concerns related to their collection and use in sub-Saharan African contexts have not been widely discussed.
• Innovative community engagement initiatives, which are appropriate and responsive to sub-Saharan African contexts, need to be developed to address ethical challenge areas and help warrant public trust in mobility research.
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| first_indexed | 2024-03-13T08:23:11Z |
| format | Article |
| id | doaj.art-dd2c4137bff74e59af91727a0ac9002c |
| institution | Directory Open Access Journal |
| issn | 1996-7489 |
| language | English |
| last_indexed | 2024-03-13T08:23:11Z |
| publishDate | 2023-05-01 |
| publisher | Academy of Science of South Africa |
| record_format | Article |
| series | South African Journal of Science |
| spelling | doaj.art-dd2c4137bff74e59af91727a0ac9002c2023-05-31T06:33:56ZengAcademy of Science of South AfricaSouth African Journal of Science1996-74892023-05-011195/610.17159/sajs.2023/14777Public health research using cell phone derived mobility data in sub-Saharan Africa: Ethical issuesStuart Rennie0Caesar Atuire1Tiwonge Mtande2Walter Jaoko3Sergio Litekwa4Eric Juengst5Keymanthri Moodley 61.Department of Social Medicine, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA; 2.UNC Center for Bioethics, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USADepartment of Philosophy and Classics, University of Ghana, Accra, GhanaCentre for Medical Ethics and Law, Department of Medicine, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South AfricaKAVI-Institute of Clinical Research, University of Nairobi, Nairobi, KenyaInstitute for Bioethics and Health Policy, Miller School of Medicine, University of Miami, Miami, Florida, USAUNC Center for Bioethics, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USACentre for Medical Ethics and Law, Department of Medicine, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South Africa The movements of humans have a significant impact on population health. While studies of such movements are as old as public health itself, the COVID-19 pandemic has raised the profile of mobility research using digital technologies to track transmission routes and calculate the effects of health policies, such as lockdowns. In sub-Saharan Africa, the high prevalence of cell phone and smartphone use is a source of potentially valuable mobility data for public health purposes. Researchers can access call data records, passively collected in real time from millions of clients by cell phone companies, and associate these records with other data sets to generate insights, make predictions or draw possible policy implications. The use of mobility data from this source could have a range of significant benefits for society, from better control of infectious diseases, improved city planning, more efficient transportation systems and the optimisation of health resources. We discuss key ethical issues raised by public health studies using mobility data from cell phones in sub-Saharan Africa and identify six key ethical challenge areas: autonomy, including consent and individual or group privacy; bias and representativeness; community awareness, engagement and trust; function creep and accountability; stakeholder relationships and power dynamics; and the translation of mobility analyses into health policy. We emphasise the ethical importance of narrowing knowledge gaps between researchers, policymakers and the general public. Given that individuals do not really provide valid consent for the research use of phone data tracking their movements, community understanding and input will be crucial to the maintenance of public trust. Significance: • Mobility data derived from cell phones are being increasingly used for health research and public health purposes in sub-Saharan Africa, with minimal individual consent and largely without public awareness. • While such data can have significant potential public health benefits, risks and concerns related to their collection and use in sub-Saharan African contexts have not been widely discussed. • Innovative community engagement initiatives, which are appropriate and responsive to sub-Saharan African contexts, need to be developed to address ethical challenge areas and help warrant public trust in mobility research. https://sajs.co.za/article/view/14777ethicsmobility datapublic healthcommunity engagementsurveillance |
| spellingShingle | Stuart Rennie Caesar Atuire Tiwonge Mtande Walter Jaoko Sergio Litekwa Eric Juengst Keymanthri Moodley Public health research using cell phone derived mobility data in sub-Saharan Africa: Ethical issues South African Journal of Science ethics mobility data public health community engagement surveillance |
| title | Public health research using cell phone derived mobility data in sub-Saharan Africa: Ethical issues |
| title_full | Public health research using cell phone derived mobility data in sub-Saharan Africa: Ethical issues |
| title_fullStr | Public health research using cell phone derived mobility data in sub-Saharan Africa: Ethical issues |
| title_full_unstemmed | Public health research using cell phone derived mobility data in sub-Saharan Africa: Ethical issues |
| title_short | Public health research using cell phone derived mobility data in sub-Saharan Africa: Ethical issues |
| title_sort | public health research using cell phone derived mobility data in sub saharan africa ethical issues |
| topic | ethics mobility data public health community engagement surveillance |
| url | https://sajs.co.za/article/view/14777 |
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