The feasibility of a Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study
Abstract Background A dementia diagnosis can prevent people from participating in society, leading to a further decline in cognitive, social and physical health. However, it may be possible for people with dementia to continue to live meaningful lives and continue to participate actively in society...
| Main Authors: | , , , , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2020-11-01
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| Series: | Pilot and Feasibility Studies |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s40814-020-00701-2 |
| _version_ | 1819160272487579648 |
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| author | Dympna Casey Niamh Gallagher Declan Devane Bob Woods Kathy Murphy Siobhán Smyth John Newell Andrew W. Murphy Charlotte Clarke Tony Foley Fergus Timmons Rose-Marie Dröes Martin O’Halloran Gill Windle Kate Irving Lupton Christine Domegan Eamon O’Shea Pat Dolan Priscilla Doyle |
| author_facet | Dympna Casey Niamh Gallagher Declan Devane Bob Woods Kathy Murphy Siobhán Smyth John Newell Andrew W. Murphy Charlotte Clarke Tony Foley Fergus Timmons Rose-Marie Dröes Martin O’Halloran Gill Windle Kate Irving Lupton Christine Domegan Eamon O’Shea Pat Dolan Priscilla Doyle |
| author_sort | Dympna Casey |
| collection | DOAJ |
| description | Abstract Background A dementia diagnosis can prevent people from participating in society, leading to a further decline in cognitive, social and physical health. However, it may be possible for people with dementia to continue to live meaningful lives and continue to participate actively in society if a supportive psychosocial environment exists. Resilience theory, which focuses on strengthening personal attributes and external assets in the face of serious challenges, may provide a scaffold on which an inclusive multifaceted psychosocial supportive environment can be built. This protocol paper describes a study to determine the feasibility of conducting a multifaceted complex resilience building psychosocial intervention for people with dementia and their caregivers living in the community. Methods This is a non-randomised feasibility study. Ten participants with dementia and their primary caregivers living in the community will be recruited and receive the CREST intervention. The intervention provides (a) a 7-week cognitive stimulation programme followed by an 8-week physical exercise programme for people with dementia and (b) a 6-week educational programme for caregivers. Members of the wider community will be invited to a dementia awareness programme and GP practices to a dementia training workshop. Trained professionals will deliver all intervention components. Outcomes will assess the feasibility and acceptability of all study processes. The feasibility and acceptability of a range of outcomes to be collected in a future definitive trial, including economic measurements, will also be explored. Finally, social marketing will be used to map a route toward stigma change in dementia for use in a subsequent trial. Quantitative feasibility outcome assessments will be completed at baseline and after completion of the 15-week intervention while qualitative data will be collected at recruitment, baseline, during and post-intervention delivery. Conclusion This feasibility study will provide evidence regarding the feasibility and acceptability of a comprehensive multifaceted psychosocial intervention programme for people with dementia and their caregivers (CREST). The results will be used to inform the development and implementation of a subsequent RCT, should the findings support feasibility. Trial registration ISRCTN25294519 Retrospectively registered 07.10.2019 |
| first_indexed | 2024-12-22T16:53:49Z |
| format | Article |
| id | doaj.art-dd78643a3ec84dcbbba23c119bf003e6 |
| institution | Directory Open Access Journal |
| issn | 2055-5784 |
| language | English |
| last_indexed | 2024-12-22T16:53:49Z |
| publishDate | 2020-11-01 |
| publisher | BMC |
| record_format | Article |
| series | Pilot and Feasibility Studies |
| spelling | doaj.art-dd78643a3ec84dcbbba23c119bf003e62022-12-21T18:19:32ZengBMCPilot and Feasibility Studies2055-57842020-11-016111610.1186/s40814-020-00701-2The feasibility of a Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility studyDympna Casey0Niamh Gallagher1Declan Devane2Bob Woods3Kathy Murphy4Siobhán Smyth5John Newell6Andrew W. Murphy7Charlotte Clarke8Tony Foley9Fergus Timmons10Rose-Marie Dröes11Martin O’Halloran12Gill Windle13Kate Irving Lupton14Christine Domegan15Eamon O’Shea16Pat Dolan17Priscilla Doyle18School of Nursing & Midwifery, National University of Ireland GalwaySchool of Nursing & Midwifery, National University of Ireland GalwaySchool of Nursing & Midwifery, National University of Ireland GalwayDementia Services Development Centre, Bangor UniversitySchool of Nursing & Midwifery, National University of Ireland GalwaySchool of Nursing & Midwifery, National University of Ireland GalwaySchool of Mathematics, Statistics & Applied Mathematics, National University of Ireland GalwayDepartment of General Practice, School of Medicine, National University of Ireland GalwaySocial Sciences and Health, Durham UniversityDepartment of General Practice, University College CorkThe Alzheimer Society of IrelandDepartment of Psychiatry, VU University Medical CenterCollege of Engineering & Informatics, National University of Ireland GalwaySchool of Health Sciences, Bangor UniversitySchool of Nursing, Psychotherapy and Community Health, Dublin City UniversityJ.E. Cairnes School of Business & Economics, National University of Ireland GalwayCentre for Economic & Social Research on Dementia, ILAS Building, National University of IrelandUNESCO Child and Family Research Centre, School of Political Science and Sociology, National University of IrelandSchool of Nursing & Midwifery, National University of Ireland GalwayAbstract Background A dementia diagnosis can prevent people from participating in society, leading to a further decline in cognitive, social and physical health. However, it may be possible for people with dementia to continue to live meaningful lives and continue to participate actively in society if a supportive psychosocial environment exists. Resilience theory, which focuses on strengthening personal attributes and external assets in the face of serious challenges, may provide a scaffold on which an inclusive multifaceted psychosocial supportive environment can be built. This protocol paper describes a study to determine the feasibility of conducting a multifaceted complex resilience building psychosocial intervention for people with dementia and their caregivers living in the community. Methods This is a non-randomised feasibility study. Ten participants with dementia and their primary caregivers living in the community will be recruited and receive the CREST intervention. The intervention provides (a) a 7-week cognitive stimulation programme followed by an 8-week physical exercise programme for people with dementia and (b) a 6-week educational programme for caregivers. Members of the wider community will be invited to a dementia awareness programme and GP practices to a dementia training workshop. Trained professionals will deliver all intervention components. Outcomes will assess the feasibility and acceptability of all study processes. The feasibility and acceptability of a range of outcomes to be collected in a future definitive trial, including economic measurements, will also be explored. Finally, social marketing will be used to map a route toward stigma change in dementia for use in a subsequent trial. Quantitative feasibility outcome assessments will be completed at baseline and after completion of the 15-week intervention while qualitative data will be collected at recruitment, baseline, during and post-intervention delivery. Conclusion This feasibility study will provide evidence regarding the feasibility and acceptability of a comprehensive multifaceted psychosocial intervention programme for people with dementia and their caregivers (CREST). The results will be used to inform the development and implementation of a subsequent RCT, should the findings support feasibility. Trial registration ISRCTN25294519 Retrospectively registered 07.10.2019http://link.springer.com/article/10.1186/s40814-020-00701-2People with dementiaCaregiversResiliencePsychosocial interventionsNon-randomised feasibility study |
| spellingShingle | Dympna Casey Niamh Gallagher Declan Devane Bob Woods Kathy Murphy Siobhán Smyth John Newell Andrew W. Murphy Charlotte Clarke Tony Foley Fergus Timmons Rose-Marie Dröes Martin O’Halloran Gill Windle Kate Irving Lupton Christine Domegan Eamon O’Shea Pat Dolan Priscilla Doyle The feasibility of a Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study Pilot and Feasibility Studies People with dementia Caregivers Resilience Psychosocial interventions Non-randomised feasibility study |
| title | The feasibility of a Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study |
| title_full | The feasibility of a Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study |
| title_fullStr | The feasibility of a Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study |
| title_full_unstemmed | The feasibility of a Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study |
| title_short | The feasibility of a Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study |
| title_sort | feasibility of a comprehensive resilience building psychosocial intervention crest for people with dementia in the community protocol for a non randomised feasibility study |
| topic | People with dementia Caregivers Resilience Psychosocial interventions Non-randomised feasibility study |
| url | http://link.springer.com/article/10.1186/s40814-020-00701-2 |
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