Pregnant women’s experiences and perceptions of participating in the EVERREST prospective study; a qualitative study
Abstract Background The EVERREST Prospective Study is a multicentre observational cohort study of pregnancies affected by severe early-onset fetal growth restriction. The study recruits women with singleton pregnancies where the estimated fetal weight is less than the 3rd centile and below 600 g, be...
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| Format: | Article |
| Language: | English |
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BMC
2019-04-01
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| Series: | BMC Pregnancy and Childbirth |
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| Online Access: | http://link.springer.com/article/10.1186/s12884-019-2277-8 |
| _version_ | 1819266250085236736 |
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| author | Merryl E. Harvey Anna L. David Jade Dyer Rebecca Spencer |
| author_facet | Merryl E. Harvey Anna L. David Jade Dyer Rebecca Spencer |
| author_sort | Merryl E. Harvey |
| collection | DOAJ |
| description | Abstract Background The EVERREST Prospective Study is a multicentre observational cohort study of pregnancies affected by severe early-onset fetal growth restriction. The study recruits women with singleton pregnancies where the estimated fetal weight is less than the 3rd centile and below 600 g, between 20 + 0 and 26 + 6 weeks of pregnancy, in the absence of a known chromosomal, structural or infective cause. Method The reported study was retrospective descriptive qualitative interview study of women who had participated in the EVERREST Prospective Study. The aim of this study was to explore the experiences and perceptions of pregnant women taking part in research during a pregnancy affected by severe early-onset fetal growth restriction. Audio-recorded semi-structured telephone interviews were conducted with a purposive sample of 12 women, at least 1 year after delivery of their baby. Two of these pregnancies had ended in stillbirth and one in neonatal death, reflecting the outcomes seen in the EVERREST Prospective Study. Participants gave informed consent, were 16 years or older and were interviewed in English. A topic guide was used to ensure a consistent approach. Questions focused on pregnancy experiences, involvement with the EVERREST study and potential involvement in future research. Recordings were transcribed verbatim for thematic analysis using NVivo10. Results Four broad themes were identified; ‘before joining the EVERREST Prospective Study’, ‘participating in research’, ‘information and support’ and ‘looking back and looking forwards’. Each broad theme incorporated several subthemes. All participants recalled their reaction to being told their baby was smaller than expected. The way this news was given had a lasting impact. A range of benefits of participation in the EVERREST Prospective Study were described and the participants were positive about the way it was conducted. As a consequence, they were receptive to participating in future research. However, the findings suggest that research teams should be sensitive when approaching families at a difficult time or when they are already participating in other research. Conclusions This study highlights the willingness of pregnant women to participate in research and identifies strategies for researchers to engage participants. |
| first_indexed | 2024-12-23T20:58:17Z |
| format | Article |
| id | doaj.art-ddae8649177948afb46d57701bdc8ba8 |
| institution | Directory Open Access Journal |
| issn | 1471-2393 |
| language | English |
| last_indexed | 2024-12-23T20:58:17Z |
| publishDate | 2019-04-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Pregnancy and Childbirth |
| spelling | doaj.art-ddae8649177948afb46d57701bdc8ba82022-12-21T17:31:28ZengBMCBMC Pregnancy and Childbirth1471-23932019-04-0119111310.1186/s12884-019-2277-8Pregnant women’s experiences and perceptions of participating in the EVERREST prospective study; a qualitative studyMerryl E. Harvey0Anna L. David1Jade Dyer2Rebecca Spencer3Faculty of Health, Education and Life Sciences, Birmingham City UniversityEGA Institute for Women’s Health, University College London, NIHR University College London Hospitals Biomedical Research CentreComprehensive Clinical Trials Unit, Institute of Clinical Trials & Methodology, University College LondonEGA Institute for Women’s Health, University College LondonAbstract Background The EVERREST Prospective Study is a multicentre observational cohort study of pregnancies affected by severe early-onset fetal growth restriction. The study recruits women with singleton pregnancies where the estimated fetal weight is less than the 3rd centile and below 600 g, between 20 + 0 and 26 + 6 weeks of pregnancy, in the absence of a known chromosomal, structural or infective cause. Method The reported study was retrospective descriptive qualitative interview study of women who had participated in the EVERREST Prospective Study. The aim of this study was to explore the experiences and perceptions of pregnant women taking part in research during a pregnancy affected by severe early-onset fetal growth restriction. Audio-recorded semi-structured telephone interviews were conducted with a purposive sample of 12 women, at least 1 year after delivery of their baby. Two of these pregnancies had ended in stillbirth and one in neonatal death, reflecting the outcomes seen in the EVERREST Prospective Study. Participants gave informed consent, were 16 years or older and were interviewed in English. A topic guide was used to ensure a consistent approach. Questions focused on pregnancy experiences, involvement with the EVERREST study and potential involvement in future research. Recordings were transcribed verbatim for thematic analysis using NVivo10. Results Four broad themes were identified; ‘before joining the EVERREST Prospective Study’, ‘participating in research’, ‘information and support’ and ‘looking back and looking forwards’. Each broad theme incorporated several subthemes. All participants recalled their reaction to being told their baby was smaller than expected. The way this news was given had a lasting impact. A range of benefits of participation in the EVERREST Prospective Study were described and the participants were positive about the way it was conducted. As a consequence, they were receptive to participating in future research. However, the findings suggest that research teams should be sensitive when approaching families at a difficult time or when they are already participating in other research. Conclusions This study highlights the willingness of pregnant women to participate in research and identifies strategies for researchers to engage participants.http://link.springer.com/article/10.1186/s12884-019-2277-8PregnancyFetal growth restrictionPlacental insufficiencyWomenInterviewQualitative |
| spellingShingle | Merryl E. Harvey Anna L. David Jade Dyer Rebecca Spencer Pregnant women’s experiences and perceptions of participating in the EVERREST prospective study; a qualitative study BMC Pregnancy and Childbirth Pregnancy Fetal growth restriction Placental insufficiency Women Interview Qualitative |
| title | Pregnant women’s experiences and perceptions of participating in the EVERREST prospective study; a qualitative study |
| title_full | Pregnant women’s experiences and perceptions of participating in the EVERREST prospective study; a qualitative study |
| title_fullStr | Pregnant women’s experiences and perceptions of participating in the EVERREST prospective study; a qualitative study |
| title_full_unstemmed | Pregnant women’s experiences and perceptions of participating in the EVERREST prospective study; a qualitative study |
| title_short | Pregnant women’s experiences and perceptions of participating in the EVERREST prospective study; a qualitative study |
| title_sort | pregnant women s experiences and perceptions of participating in the everrest prospective study a qualitative study |
| topic | Pregnancy Fetal growth restriction Placental insufficiency Women Interview Qualitative |
| url | http://link.springer.com/article/10.1186/s12884-019-2277-8 |
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