Ethical and legal aspects of editing a patient’s genome for non-medical purposes

The need for knowledge of one’s own biological nature was a crucial impetus for scientific-technological progress in the fields of molecular biology, chemistry, and genetic engineering, which soon turned into a way to control human genetic material and its evolution. Although the procedure for recon...

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Main Authors: O. Piddubnyi, D. Marits, V. Yehorova, T. Chepulchenko, O. Vladykin
Format: Article
Language:English
Published: Lviv State University of Internal Affairs 2023-12-01
Series:Соціально-правові студії
Subjects:
Online Access:https://sls-journal.com.ua/journals/tom-6-4-2023/yetichni-ta-pravovi-aspekti-redaguvannya-genoma-patsiyenta-v-nemedichnikh-tsilyakh
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author O. Piddubnyi
D. Marits
V. Yehorova
T. Chepulchenko
O. Vladykin
author_facet O. Piddubnyi
D. Marits
V. Yehorova
T. Chepulchenko
O. Vladykin
author_sort O. Piddubnyi
collection DOAJ
description The need for knowledge of one’s own biological nature was a crucial impetus for scientific-technological progress in the fields of molecular biology, chemistry, and genetic engineering, which soon turned into a way to control human genetic material and its evolution. Although the procedure for reconstructing the personality genome is designed to protect humanity from hereditary or oncological diseases, there is still a huge risk of using this technology to modify intellectual abilities or physical characteristics. The purpose of this study is to describe and characterize the moral, ethical, and legal factors that arise in using technology to correct a person’s genetic code for non-medical reasons. Through systematic analysis and dialectical method, the current state of the legislative framework in the field of editing the biological material of the individual was investigated, while the generalisation method allowed identifying the main bioethical dilemmas associated with a certain problem. Exploring the possibility of changing the human genome through the prism of its interdependence with globalising metamorphoses in society, the key threats of the use of technology, its impact on the formation of the latest ethical standards, and compliance with the fundamental rights and freedoms of the patient were identified. Therewith, focusing on identifying gaps in the regulatory regulation of the human genome correction procedure, recommendations were made to improve the international legal foundation in this area of legal relations. In general, the chosen subject contains a considerable number of still unexplored aspects, so this study is designed to draw the scientific community’s attention to the problem of editing a person’s biological identity for non-medical purposes
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spelling doaj.art-de251e1c43ed42cb89654d7a8068932a2024-03-26T07:30:51ZengLviv State University of Internal AffairsСоціально-правові студії2617-41622617-41702023-12-0164174182https://doi.org/10.32518/sals4.2023.174409Ethical and legal aspects of editing a patient’s genome for non-medical purposesO. PiddubnyiD. MaritsV. YehorovaT. ChepulchenkoO. VladykinThe need for knowledge of one’s own biological nature was a crucial impetus for scientific-technological progress in the fields of molecular biology, chemistry, and genetic engineering, which soon turned into a way to control human genetic material and its evolution. Although the procedure for reconstructing the personality genome is designed to protect humanity from hereditary or oncological diseases, there is still a huge risk of using this technology to modify intellectual abilities or physical characteristics. The purpose of this study is to describe and characterize the moral, ethical, and legal factors that arise in using technology to correct a person’s genetic code for non-medical reasons. Through systematic analysis and dialectical method, the current state of the legislative framework in the field of editing the biological material of the individual was investigated, while the generalisation method allowed identifying the main bioethical dilemmas associated with a certain problem. Exploring the possibility of changing the human genome through the prism of its interdependence with globalising metamorphoses in society, the key threats of the use of technology, its impact on the formation of the latest ethical standards, and compliance with the fundamental rights and freedoms of the patient were identified. Therewith, focusing on identifying gaps in the regulatory regulation of the human genome correction procedure, recommendations were made to improve the international legal foundation in this area of legal relations. In general, the chosen subject contains a considerable number of still unexplored aspects, so this study is designed to draw the scientific community’s attention to the problem of editing a person’s biological identity for non-medical purposeshttps://sls-journal.com.ua/journals/tom-6-4-2023/yetichni-ta-pravovi-aspekti-redaguvannya-genoma-patsiyenta-v-nemedichnikh-tsilyakhthe fourth generation of human rightsnature of the individualcivil rights of the patientinnovative technologiesthe right to privacy
spellingShingle O. Piddubnyi
D. Marits
V. Yehorova
T. Chepulchenko
O. Vladykin
Ethical and legal aspects of editing a patient’s genome for non-medical purposes
Соціально-правові студії
the fourth generation of human rights
nature of the individual
civil rights of the patient
innovative technologies
the right to privacy
title Ethical and legal aspects of editing a patient’s genome for non-medical purposes
title_full Ethical and legal aspects of editing a patient’s genome for non-medical purposes
title_fullStr Ethical and legal aspects of editing a patient’s genome for non-medical purposes
title_full_unstemmed Ethical and legal aspects of editing a patient’s genome for non-medical purposes
title_short Ethical and legal aspects of editing a patient’s genome for non-medical purposes
title_sort ethical and legal aspects of editing a patient s genome for non medical purposes
topic the fourth generation of human rights
nature of the individual
civil rights of the patient
innovative technologies
the right to privacy
url https://sls-journal.com.ua/journals/tom-6-4-2023/yetichni-ta-pravovi-aspekti-redaguvannya-genoma-patsiyenta-v-nemedichnikh-tsilyakh
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AT vyehorova ethicalandlegalaspectsofeditingapatientsgenomefornonmedicalpurposes
AT tchepulchenko ethicalandlegalaspectsofeditingapatientsgenomefornonmedicalpurposes
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