A feasibility randomised controlled trial of the DECIDE intervention: Dementia carers making informed decisions

Family carers report high levels of decisional conflict when deciding whether their relative with dementia can continue to be cared for in their own home. We tested, in a feasibility randomised controlled trial, the first decision aid (the DECIDE manual) aiming to reduce such conflict. Twenty family...

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Main Authors: Kathryn Lord, Gill Livingston, Claudia Cooper
Format: Article
Language:English
Published: Cambridge University Press 2017-01-01
Series:BJPsych Open
Online Access:https://www.cambridge.org/core/product/identifier/S2056472400001964/type/journal_article
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author Kathryn Lord
Gill Livingston
Claudia Cooper
author_facet Kathryn Lord
Gill Livingston
Claudia Cooper
author_sort Kathryn Lord
collection DOAJ
description Family carers report high levels of decisional conflict when deciding whether their relative with dementia can continue to be cared for in their own home. We tested, in a feasibility randomised controlled trial, the first decision aid (the DECIDE manual) aiming to reduce such conflict. Twenty family carers received the DECIDE intervention, and 21 received usual treatment. The intervention group had reduced decisional conflict compared with controls (mean difference −11.96, 95% confidence interval −20.10 to −3.83, P=0.005). All carers receiving the intervention completed and valued it, despite some still reporting difficulties with family conflict and problems negotiating services.
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spelling doaj.art-df45cbb35b874c48994d8800ef9cb77a2023-03-09T12:28:41ZengCambridge University PressBJPsych Open2056-47242017-01-013121410.1192/bjpo.bp.116.003509A feasibility randomised controlled trial of the DECIDE intervention: Dementia carers making informed decisionsKathryn Lord0Gill Livingston1Claudia Cooper2Division of Psychiatry, University College London, London, UKDivision of Psychiatry, University College London, London, UKDivision of Psychiatry, University College London, London, UKFamily carers report high levels of decisional conflict when deciding whether their relative with dementia can continue to be cared for in their own home. We tested, in a feasibility randomised controlled trial, the first decision aid (the DECIDE manual) aiming to reduce such conflict. Twenty family carers received the DECIDE intervention, and 21 received usual treatment. The intervention group had reduced decisional conflict compared with controls (mean difference −11.96, 95% confidence interval −20.10 to −3.83, P=0.005). All carers receiving the intervention completed and valued it, despite some still reporting difficulties with family conflict and problems negotiating services.https://www.cambridge.org/core/product/identifier/S2056472400001964/type/journal_article
spellingShingle Kathryn Lord
Gill Livingston
Claudia Cooper
A feasibility randomised controlled trial of the DECIDE intervention: Dementia carers making informed decisions
BJPsych Open
title A feasibility randomised controlled trial of the DECIDE intervention: Dementia carers making informed decisions
title_full A feasibility randomised controlled trial of the DECIDE intervention: Dementia carers making informed decisions
title_fullStr A feasibility randomised controlled trial of the DECIDE intervention: Dementia carers making informed decisions
title_full_unstemmed A feasibility randomised controlled trial of the DECIDE intervention: Dementia carers making informed decisions
title_short A feasibility randomised controlled trial of the DECIDE intervention: Dementia carers making informed decisions
title_sort feasibility randomised controlled trial of the decide intervention dementia carers making informed decisions
url https://www.cambridge.org/core/product/identifier/S2056472400001964/type/journal_article
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