Patient, Public, Consumer, and Community Engagement: From Consucrat to Representative; Comment on “The Rise of the Consucrat”
Patient, public, consumer, and community (P2C2) engagement in healthcare delivery, research, and policy-making has been long considered an ethical obligation and is increasingly a regulatory requirement globally. The requirement to include a P2C2 member on various governing bodies may have inadverte...
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| Format: | Article |
| Language: | English |
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Kerman University of Medical Sciences
2021-08-01
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| Series: | International Journal of Health Policy and Management |
| Subjects: | |
| Online Access: | https://www.ijhpm.com/article_3890_d4c4e273ea5bed6df901a721dba6db75.pdf |
| _version_ | 1811158815608930304 |
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| author | Matthew DeCamp Sarah E. Brewer Vadim Dukhanin |
| author_facet | Matthew DeCamp Sarah E. Brewer Vadim Dukhanin |
| author_sort | Matthew DeCamp |
| collection | DOAJ |
| description | Patient, public, consumer, and community (P2C2) engagement in healthcare delivery, research, and policy-making has been long considered an ethical obligation and is increasingly a regulatory requirement globally. The requirement to include a P2C2 member on various governing bodies may have inadvertently created what Evelyne de Leeuw calls the “consucrat” – a career consumer who has been designated and professionalized to function on behalf of a particular group or community. The concept of a consucrat can be problematic when a P2C2 member is co-opted by an institution governing body or in situations where institutions only seek and listen to the same voice over time. In this commentary, we suggest that one way to avoid these problems is to take seriously the concept and process of representation. Representation is only meaningful when P2C2 members are actively connected with those whom they represent. Doing so helps ensure P2C2 members remain grounded in the real-world concerns of their constituency and that representatives, backed by the voices of others, will be more powerful in effecting change. |
| first_indexed | 2024-04-10T05:30:42Z |
| format | Article |
| id | doaj.art-dfc92fe634ad4ff89c2e23b5f79ca11f |
| institution | Directory Open Access Journal |
| issn | 2322-5939 |
| language | English |
| last_indexed | 2024-04-10T05:30:42Z |
| publishDate | 2021-08-01 |
| publisher | Kerman University of Medical Sciences |
| record_format | Article |
| series | International Journal of Health Policy and Management |
| spelling | doaj.art-dfc92fe634ad4ff89c2e23b5f79ca11f2023-03-07T09:07:43ZengKerman University of Medical SciencesInternational Journal of Health Policy and Management2322-59392021-08-0110850350610.34172/ijhpm.2020.1483890Patient, Public, Consumer, and Community Engagement: From Consucrat to Representative; Comment on “The Rise of the Consucrat”Matthew DeCamp0Sarah E. Brewer1Vadim Dukhanin2Division of General Internal Medicine, University of Colorado, Aurora, CO, USADepartment of Family Medicine, University of Colorado, Aurora, CO, USADepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD, USAPatient, public, consumer, and community (P2C2) engagement in healthcare delivery, research, and policy-making has been long considered an ethical obligation and is increasingly a regulatory requirement globally. The requirement to include a P2C2 member on various governing bodies may have inadvertently created what Evelyne de Leeuw calls the “consucrat” – a career consumer who has been designated and professionalized to function on behalf of a particular group or community. The concept of a consucrat can be problematic when a P2C2 member is co-opted by an institution governing body or in situations where institutions only seek and listen to the same voice over time. In this commentary, we suggest that one way to avoid these problems is to take seriously the concept and process of representation. Representation is only meaningful when P2C2 members are actively connected with those whom they represent. Doing so helps ensure P2C2 members remain grounded in the real-world concerns of their constituency and that representatives, backed by the voices of others, will be more powerful in effecting change.https://www.ijhpm.com/article_3890_d4c4e273ea5bed6df901a721dba6db75.pdfpatient engagementpatient participationrepresentationhealthcare governanceconsumer |
| spellingShingle | Matthew DeCamp Sarah E. Brewer Vadim Dukhanin Patient, Public, Consumer, and Community Engagement: From Consucrat to Representative; Comment on “The Rise of the Consucrat” International Journal of Health Policy and Management patient engagement patient participation representation healthcare governance consumer |
| title | Patient, Public, Consumer, and Community Engagement: From Consucrat to Representative; Comment on “The Rise of the Consucrat” |
| title_full | Patient, Public, Consumer, and Community Engagement: From Consucrat to Representative; Comment on “The Rise of the Consucrat” |
| title_fullStr | Patient, Public, Consumer, and Community Engagement: From Consucrat to Representative; Comment on “The Rise of the Consucrat” |
| title_full_unstemmed | Patient, Public, Consumer, and Community Engagement: From Consucrat to Representative; Comment on “The Rise of the Consucrat” |
| title_short | Patient, Public, Consumer, and Community Engagement: From Consucrat to Representative; Comment on “The Rise of the Consucrat” |
| title_sort | patient public consumer and community engagement from consucrat to representative comment on the rise of the consucrat |
| topic | patient engagement patient participation representation healthcare governance consumer |
| url | https://www.ijhpm.com/article_3890_d4c4e273ea5bed6df901a721dba6db75.pdf |
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