Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways
A care pathway is defined as “a complex intervention for the mutual decision-making and organisation of care processes for a well-defined group of patients during a well-defined period.” The European Haemophilia Consortium (EHC) established a Think Tank Workstream on Future Care Pathways to identify...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
Sciendo
2023-08-01
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| Series: | The Journal of Haemophilia Practice |
| Subjects: | |
| Online Access: | https://doi.org/10.2478/jhp-2023-0013 |
| _version_ | 1797354387249561600 |
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| author | Skouw-Rasmussen Naja Savini Laura |
| author_facet | Skouw-Rasmussen Naja Savini Laura |
| author_sort | Skouw-Rasmussen Naja |
| collection | DOAJ |
| description | A care pathway is defined as “a complex intervention for the mutual decision-making and organisation of care processes for a well-defined group of patients during a well-defined period.” The European Haemophilia Consortium (EHC) established a Think Tank Workstream on Future Care Pathways to identify and address key challenges in shaping future pathways that meet the needs of people with rare diseases while remaining practicable and affordable to healthcare providers in countries with different budgets and resources. This workstream is particularly timely as the introduction of innovative therapies is adding to the complexity of care pathways in some rare conditions. |
| first_indexed | 2024-03-08T13:48:46Z |
| format | Article |
| id | doaj.art-e09d7af55e7d4b748f53747b6115e9e7 |
| institution | Directory Open Access Journal |
| issn | 2055-3390 |
| language | English |
| last_indexed | 2024-03-08T13:48:46Z |
| publishDate | 2023-08-01 |
| publisher | Sciendo |
| record_format | Article |
| series | The Journal of Haemophilia Practice |
| spelling | doaj.art-e09d7af55e7d4b748f53747b6115e9e72024-01-16T07:20:03ZengSciendoThe Journal of Haemophilia Practice2055-33902023-08-01101748110.2478/jhp-2023-0013Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care PathwaysSkouw-Rasmussen Naja0Savini Laura1European Haemophilia Consortium, Brussels, BelgiumEuropean Haemophilia Consortium, Brussels, BelgiumA care pathway is defined as “a complex intervention for the mutual decision-making and organisation of care processes for a well-defined group of patients during a well-defined period.” The European Haemophilia Consortium (EHC) established a Think Tank Workstream on Future Care Pathways to identify and address key challenges in shaping future pathways that meet the needs of people with rare diseases while remaining practicable and affordable to healthcare providers in countries with different budgets and resources. This workstream is particularly timely as the introduction of innovative therapies is adding to the complexity of care pathways in some rare conditions.https://doi.org/10.2478/jhp-2023-0013care pathwaypatient journeyprioritisationbaselinedigital healthfragmentation |
| spellingShingle | Skouw-Rasmussen Naja Savini Laura Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways The Journal of Haemophilia Practice care pathway patient journey prioritisation baseline digital health fragmentation |
| title | Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways |
| title_full | Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways |
| title_fullStr | Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways |
| title_full_unstemmed | Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways |
| title_short | Future Care Pathways – A report from the 1st workshop of the EHC Think Tank Workstream on Future Care Pathways |
| title_sort | future care pathways a report from the 1st workshop of the ehc think tank workstream on future care pathways |
| topic | care pathway patient journey prioritisation baseline digital health fragmentation |
| url | https://doi.org/10.2478/jhp-2023-0013 |
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