The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation
BackgroundPeople living with rarer dementias face considerable difficulty accessing tailored information, advice, and peer and professional support. Web-based meeting platforms offer a critical opportunity to connect with others through shared lived experiences, even if they...
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| Format: | Article |
| Language: | English |
| Published: |
JMIR Publications
2022-07-01
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| Series: | JMIR Research Protocols |
| Online Access: | https://www.researchprotocols.org/2022/7/e35376 |
| _version_ | 1827858172653600768 |
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| author | Claire Waddington Emma Harding Emilie V Brotherhood Ian Davies Abbott Suzanne Barker Paul M Camic Victory Ezeofor Hannah Gardner Adetola Grillo Chris Hardy Zoe Hoare Roberta McKee-Jackson Kirsten Moore Trish O’Hara Jennifer Roberts Samuel Rossi-Harries Aida Suarez-Gonzalez Mary Pat Sullivan Rhiannon Tudor Edwards Millie Van Der Byl Williams Jill Walton Alicia Willoughby Gill Windle Eira Winrow Olivia Wood Nikki Zimmermann Sebastian J Crutch Joshua Stott |
| author_facet | Claire Waddington Emma Harding Emilie V Brotherhood Ian Davies Abbott Suzanne Barker Paul M Camic Victory Ezeofor Hannah Gardner Adetola Grillo Chris Hardy Zoe Hoare Roberta McKee-Jackson Kirsten Moore Trish O’Hara Jennifer Roberts Samuel Rossi-Harries Aida Suarez-Gonzalez Mary Pat Sullivan Rhiannon Tudor Edwards Millie Van Der Byl Williams Jill Walton Alicia Willoughby Gill Windle Eira Winrow Olivia Wood Nikki Zimmermann Sebastian J Crutch Joshua Stott |
| author_sort | Claire Waddington |
| collection | DOAJ |
| description |
BackgroundPeople living with rarer dementias face considerable difficulty accessing tailored information, advice, and peer and professional support. Web-based meeting platforms offer a critical opportunity to connect with others through shared lived experiences, even if they are geographically dispersed, particularly during the COVID-19 pandemic.
ObjectiveWe aim to develop facilitated videoconferencing support groups (VSGs) tailored to people living with or caring for someone with familial or sporadic frontotemporal dementia or young-onset Alzheimer disease, primary progressive aphasia, posterior cortical atrophy, or Lewy body dementia. This paper describes the development, coproduction, field testing, and evaluation plan for these groups.
MethodsWe describe a 3-phase approach to development. First, information and knowledge were gathered as part of a coproduction process with members of the Rare Dementia Support service. This information, together with literature searches and consultation with experts by experience, clinicians, and academics, shaped the design of the VSGs and session themes. Second, field testing involved 154 Rare Dementia Support members (people living with dementia and carers) participating in 2 rounds of facilitated sessions across 7 themes (health and social care professionals, advance care planning, independence and identity, grief and loss, empowering your identity, couples, and hope and dementia). Third, a detailed evaluation plan for future rounds of VSGs was developed.
ResultsThe development of the small groups program yielded content and structure for 9 themed VSGs (the 7 piloted themes plus a later stages program and creativity club for implementation in rounds 3 and beyond) to be delivered over 4 to 8 sessions. The evaluation plan incorporated a range of quantitative (attendance, demographics, and geography; pre-post well-being ratings and surveys; psycholinguistic analysis of conversation; facial emotion recognition; facilitator ratings; and economic analysis of program delivery) and qualitative (content and thematic analysis) approaches. Pilot data from round 2 groups on the pre-post 3-word surveys indicated an increase in the emotional valence of words selected after the sessions.
ConclusionsThe involvement of people with lived experience of a rare dementia was critical to the design, development, and delivery of the small virtual support group program, and evaluation of this program will yield convergent data about the impact of tailored support delivered to geographically dispersed communities. This is the first study to design and plan an evaluation of VSGs specifically for people affected by rare dementias, including both people living with a rare dementia and their carers, and the outcome of the evaluation will be hugely beneficial in shaping specific and targeted support, which is often lacking in this population.
International Registered Report Identifier (IRRID)DERR1-10.2196/35376 |
| first_indexed | 2024-03-12T12:51:01Z |
| format | Article |
| id | doaj.art-e0cde5be0a3c417a925c4b739ebd367a |
| institution | Directory Open Access Journal |
| issn | 1929-0748 |
| language | English |
| last_indexed | 2024-03-12T12:51:01Z |
| publishDate | 2022-07-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | JMIR Research Protocols |
| spelling | doaj.art-e0cde5be0a3c417a925c4b739ebd367a2023-08-28T22:44:09ZengJMIR PublicationsJMIR Research Protocols1929-07482022-07-01117e3537610.2196/35376The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group EvaluationClaire Waddingtonhttps://orcid.org/0000-0001-7483-767XEmma Hardinghttps://orcid.org/0000-0001-9675-2335Emilie V Brotherhoodhttps://orcid.org/0000-0002-6244-7735Ian Davies Abbotthttps://orcid.org/0000-0003-4639-5338Suzanne Barkerhttps://orcid.org/0000-0003-0497-2854Paul M Camichttps://orcid.org/0000-0002-4444-6544Victory Ezeoforhttps://orcid.org/0000-0002-4211-8942Hannah Gardnerhttps://orcid.org/0000-0003-2080-5423Adetola Grillohttps://orcid.org/0000-0003-1045-0606Chris Hardyhttps://orcid.org/0000-0002-4900-6492Zoe Hoarehttps://orcid.org/0000-0003-1803-5482Roberta McKee-Jacksonhttps://orcid.org/0000-0003-3740-3113Kirsten Moorehttps://orcid.org/0000-0002-8631-3213Trish O’Harahttps://orcid.org/0000-0002-2560-0913Jennifer Robertshttps://orcid.org/0000-0002-8538-997XSamuel Rossi-Harrieshttps://orcid.org/0000-0003-3384-865XAida Suarez-Gonzalezhttps://orcid.org/0000-0002-0904-1031Mary Pat Sullivanhttps://orcid.org/0000-0001-9514-0783Rhiannon Tudor Edwardshttps://orcid.org/0000-0003-4748-5730Millie Van Der Byl Williamshttps://orcid.org/0000-0003-0484-5230Jill Waltonhttps://orcid.org/0000-0002-2282-2019Alicia Willoughbyhttps://orcid.org/0000-0001-8593-0861Gill Windlehttps://orcid.org/0000-0003-0479-1172Eira Winrowhttps://orcid.org/0000-0002-1399-0651Olivia Woodhttps://orcid.org/0000-0003-1626-4118Nikki Zimmermannhttps://orcid.org/0000-0002-4710-5470Sebastian J Crutchhttps://orcid.org/0000-0002-4160-0139Joshua Stotthttps://orcid.org/0000-0003-1361-053X BackgroundPeople living with rarer dementias face considerable difficulty accessing tailored information, advice, and peer and professional support. Web-based meeting platforms offer a critical opportunity to connect with others through shared lived experiences, even if they are geographically dispersed, particularly during the COVID-19 pandemic. ObjectiveWe aim to develop facilitated videoconferencing support groups (VSGs) tailored to people living with or caring for someone with familial or sporadic frontotemporal dementia or young-onset Alzheimer disease, primary progressive aphasia, posterior cortical atrophy, or Lewy body dementia. This paper describes the development, coproduction, field testing, and evaluation plan for these groups. MethodsWe describe a 3-phase approach to development. First, information and knowledge were gathered as part of a coproduction process with members of the Rare Dementia Support service. This information, together with literature searches and consultation with experts by experience, clinicians, and academics, shaped the design of the VSGs and session themes. Second, field testing involved 154 Rare Dementia Support members (people living with dementia and carers) participating in 2 rounds of facilitated sessions across 7 themes (health and social care professionals, advance care planning, independence and identity, grief and loss, empowering your identity, couples, and hope and dementia). Third, a detailed evaluation plan for future rounds of VSGs was developed. ResultsThe development of the small groups program yielded content and structure for 9 themed VSGs (the 7 piloted themes plus a later stages program and creativity club for implementation in rounds 3 and beyond) to be delivered over 4 to 8 sessions. The evaluation plan incorporated a range of quantitative (attendance, demographics, and geography; pre-post well-being ratings and surveys; psycholinguistic analysis of conversation; facial emotion recognition; facilitator ratings; and economic analysis of program delivery) and qualitative (content and thematic analysis) approaches. Pilot data from round 2 groups on the pre-post 3-word surveys indicated an increase in the emotional valence of words selected after the sessions. ConclusionsThe involvement of people with lived experience of a rare dementia was critical to the design, development, and delivery of the small virtual support group program, and evaluation of this program will yield convergent data about the impact of tailored support delivered to geographically dispersed communities. This is the first study to design and plan an evaluation of VSGs specifically for people affected by rare dementias, including both people living with a rare dementia and their carers, and the outcome of the evaluation will be hugely beneficial in shaping specific and targeted support, which is often lacking in this population. International Registered Report Identifier (IRRID)DERR1-10.2196/35376https://www.researchprotocols.org/2022/7/e35376 |
| spellingShingle | Claire Waddington Emma Harding Emilie V Brotherhood Ian Davies Abbott Suzanne Barker Paul M Camic Victory Ezeofor Hannah Gardner Adetola Grillo Chris Hardy Zoe Hoare Roberta McKee-Jackson Kirsten Moore Trish O’Hara Jennifer Roberts Samuel Rossi-Harries Aida Suarez-Gonzalez Mary Pat Sullivan Rhiannon Tudor Edwards Millie Van Der Byl Williams Jill Walton Alicia Willoughby Gill Windle Eira Winrow Olivia Wood Nikki Zimmermann Sebastian J Crutch Joshua Stott The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation JMIR Research Protocols |
| title | The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation |
| title_full | The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation |
| title_fullStr | The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation |
| title_full_unstemmed | The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation |
| title_short | The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation |
| title_sort | development of videoconference based support for people living with rare dementias and their carers protocol for a 3 phase support group evaluation |
| url | https://www.researchprotocols.org/2022/7/e35376 |
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