Listening to the Margins: Reflecting on Lessons Learned From a National Conference Focused on Establishing a Qualitative Research Platform for Childhood Disability and Race
The late Black feminist scholar, bell hooks, suggested that the margin can be a place of radical possibility, where marginalized people nourish their capacity for collective resistance. On the margin, it is possible to generate a counter-language. In this paper, we chronicle, describe and reflect up...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2023-01-01
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| Series: | International Journal of Qualitative Methods |
| Online Access: | https://doi.org/10.1177/16094069231151306 |
| _version_ | 1797950908138520576 |
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| author | Fiona J. Moola Tim Ross Aliya Amarshi Aman Sium Alyssa R. Neville Nivatha Moothathamby Beth Dangerfield Tamara Tynes-Powell Tharanni Pathmalingam |
| author_facet | Fiona J. Moola Tim Ross Aliya Amarshi Aman Sium Alyssa R. Neville Nivatha Moothathamby Beth Dangerfield Tamara Tynes-Powell Tharanni Pathmalingam |
| author_sort | Fiona J. Moola |
| collection | DOAJ |
| description | The late Black feminist scholar, bell hooks, suggested that the margin can be a place of radical possibility, where marginalized people nourish their capacity for collective resistance. On the margin, it is possible to generate a counter-language. In this paper, we chronicle, describe and reflect upon how bell hooks' ideas inspired the creation of a national 2-day conference titled, ‘Listening to the Margins’. This conference was focused on understanding the intersectional experiences of childhood disability and race with a view to better supporting racialized disabled children, youth, and their families. This conference was needed because intersectional experiences of childhood disability and race have been silenced in childhood disability studies, critical race studies, and various other resistance-oriented systems of thought. Racialized children with disabilities and their families are often unsupported as they navigate Euro-centric healthcare systems. Reflecting on lessons learned from our conference, we suggest several strategies for advancing meaningful research programs with racialized disabled children. Strategies include centering the art of listening, amplifying the margin, engaging the arts to promote empathy, embracing psychosocial support in work on ableism and racism, developing clinical tools and practices that are grounded in lived patient experiences, and advancing decolonizing research that recognizes the role research has historically played in perpetuating colonial violence. In totality, this article unpacks how sitting on the margins, as bell hooks suggested, has allowed us to occupy a place of discomfort and creativity necessary to disrupt dominant discourses. In so doing, we have made space for the hidden narratives of racialized disabled children and their families. |
| first_indexed | 2024-04-10T22:23:35Z |
| format | Article |
| id | doaj.art-e1491eb20f0a4508977b42b802b122dd |
| institution | Directory Open Access Journal |
| issn | 1609-4069 |
| language | English |
| last_indexed | 2024-04-10T22:23:35Z |
| publishDate | 2023-01-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | International Journal of Qualitative Methods |
| spelling | doaj.art-e1491eb20f0a4508977b42b802b122dd2023-01-17T14:33:40ZengSAGE PublishingInternational Journal of Qualitative Methods1609-40692023-01-012210.1177/16094069231151306Listening to the Margins: Reflecting on Lessons Learned From a National Conference Focused on Establishing a Qualitative Research Platform for Childhood Disability and RaceFiona J. MoolaTim RossAliya AmarshiAman SiumAlyssa R. NevilleNivatha MoothathambyBeth DangerfieldTamara Tynes-PowellTharanni PathmalingamThe late Black feminist scholar, bell hooks, suggested that the margin can be a place of radical possibility, where marginalized people nourish their capacity for collective resistance. On the margin, it is possible to generate a counter-language. In this paper, we chronicle, describe and reflect upon how bell hooks' ideas inspired the creation of a national 2-day conference titled, ‘Listening to the Margins’. This conference was focused on understanding the intersectional experiences of childhood disability and race with a view to better supporting racialized disabled children, youth, and their families. This conference was needed because intersectional experiences of childhood disability and race have been silenced in childhood disability studies, critical race studies, and various other resistance-oriented systems of thought. Racialized children with disabilities and their families are often unsupported as they navigate Euro-centric healthcare systems. Reflecting on lessons learned from our conference, we suggest several strategies for advancing meaningful research programs with racialized disabled children. Strategies include centering the art of listening, amplifying the margin, engaging the arts to promote empathy, embracing psychosocial support in work on ableism and racism, developing clinical tools and practices that are grounded in lived patient experiences, and advancing decolonizing research that recognizes the role research has historically played in perpetuating colonial violence. In totality, this article unpacks how sitting on the margins, as bell hooks suggested, has allowed us to occupy a place of discomfort and creativity necessary to disrupt dominant discourses. In so doing, we have made space for the hidden narratives of racialized disabled children and their families.https://doi.org/10.1177/16094069231151306 |
| spellingShingle | Fiona J. Moola Tim Ross Aliya Amarshi Aman Sium Alyssa R. Neville Nivatha Moothathamby Beth Dangerfield Tamara Tynes-Powell Tharanni Pathmalingam Listening to the Margins: Reflecting on Lessons Learned From a National Conference Focused on Establishing a Qualitative Research Platform for Childhood Disability and Race International Journal of Qualitative Methods |
| title | Listening to the Margins: Reflecting on Lessons Learned From a National Conference Focused on Establishing a Qualitative Research Platform for Childhood Disability and Race |
| title_full | Listening to the Margins: Reflecting on Lessons Learned From a National Conference Focused on Establishing a Qualitative Research Platform for Childhood Disability and Race |
| title_fullStr | Listening to the Margins: Reflecting on Lessons Learned From a National Conference Focused on Establishing a Qualitative Research Platform for Childhood Disability and Race |
| title_full_unstemmed | Listening to the Margins: Reflecting on Lessons Learned From a National Conference Focused on Establishing a Qualitative Research Platform for Childhood Disability and Race |
| title_short | Listening to the Margins: Reflecting on Lessons Learned From a National Conference Focused on Establishing a Qualitative Research Platform for Childhood Disability and Race |
| title_sort | listening to the margins reflecting on lessons learned from a national conference focused on establishing a qualitative research platform for childhood disability and race |
| url | https://doi.org/10.1177/16094069231151306 |
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