The Experiences of the Families of Individuals on the Autism Spectrum During the Pandemic: A Study of Neurodiverse Individuals and Their Caregivers in the Context of Anomie Caused by the Global Health Crisis

The health crisis triggered by the COVID-19 pandemic temporarily suspended many of the existing rules and principles of the social order. This crisis can be described as social anomie. In this article, we explore the coping strategies of persons with disabilities in this state using the example of t...

Full description

Bibliographic Details
Main Authors: Anna Prokop-Dorner, Natalia Ożegalska-Łukasik, Maria Świątkiewicz-Mośny
Format: Article
Language:English
Published: University of Lodz 2023-08-01
Series:Przeglad Socjologii Jakosciowej
Subjects:
Online Access:https://czasopisma.uni.lodz.pl/socjak/article/view/18996
_version_ 1797730354054823936
author Anna Prokop-Dorner
Natalia Ożegalska-Łukasik
Maria Świątkiewicz-Mośny
author_facet Anna Prokop-Dorner
Natalia Ożegalska-Łukasik
Maria Świątkiewicz-Mośny
author_sort Anna Prokop-Dorner
collection DOAJ
description The health crisis triggered by the COVID-19 pandemic temporarily suspended many of the existing rules and principles of the social order. This crisis can be described as social anomie. In this article, we explore the coping strategies of persons with disabilities in this state using the example of the families of individuals on the autism spectrum. While the neurodiversity of people on the spectrum is associated with adaptation difficulties and a low tolerance of change, the outbreak of the pandemic introduced abrupt changes in the functioning of institutions, the trajectories of daily life, and existing routines. The analysis of in-depth interviews conducted among parents of children on the autism spectrum shows how, in the face of radical changes in their external conditions, caregivers adapted the available measures to the developmental needs of their children and other family members. In the face of an anomic social order, innovation turned out to be the dominant coping strategy.
first_indexed 2024-03-12T11:43:04Z
format Article
id doaj.art-e18deea270e249e087e18901357d74a2
institution Directory Open Access Journal
issn 1733-8069
language English
last_indexed 2024-03-12T11:43:04Z
publishDate 2023-08-01
publisher University of Lodz
record_format Article
series Przeglad Socjologii Jakosciowej
spelling doaj.art-e18deea270e249e087e18901357d74a22023-08-31T14:17:13ZengUniversity of LodzPrzeglad Socjologii Jakosciowej1733-80692023-08-011939611510.18778/1733-8069.19.3.0618829The Experiences of the Families of Individuals on the Autism Spectrum During the Pandemic: A Study of Neurodiverse Individuals and Their Caregivers in the Context of Anomie Caused by the Global Health CrisisAnna Prokop-Dorner0https://orcid.org/0000-0003-3575-469XNatalia Ożegalska-Łukasik1https://orcid.org/0000-0002-4239-4429Maria Świątkiewicz-Mośny2https://orcid.org/0000-0001-6797-5580Jagiellonian University Medical CollegeJagiellonian UniversityJagiellonian UniversityThe health crisis triggered by the COVID-19 pandemic temporarily suspended many of the existing rules and principles of the social order. This crisis can be described as social anomie. In this article, we explore the coping strategies of persons with disabilities in this state using the example of the families of individuals on the autism spectrum. While the neurodiversity of people on the spectrum is associated with adaptation difficulties and a low tolerance of change, the outbreak of the pandemic introduced abrupt changes in the functioning of institutions, the trajectories of daily life, and existing routines. The analysis of in-depth interviews conducted among parents of children on the autism spectrum shows how, in the face of radical changes in their external conditions, caregivers adapted the available measures to the developmental needs of their children and other family members. In the face of an anomic social order, innovation turned out to be the dominant coping strategy.https://czasopisma.uni.lodz.pl/socjak/article/view/18996anomiepandemicautism spectrum
spellingShingle Anna Prokop-Dorner
Natalia Ożegalska-Łukasik
Maria Świątkiewicz-Mośny
The Experiences of the Families of Individuals on the Autism Spectrum During the Pandemic: A Study of Neurodiverse Individuals and Their Caregivers in the Context of Anomie Caused by the Global Health Crisis
Przeglad Socjologii Jakosciowej
anomie
pandemic
autism spectrum
title The Experiences of the Families of Individuals on the Autism Spectrum During the Pandemic: A Study of Neurodiverse Individuals and Their Caregivers in the Context of Anomie Caused by the Global Health Crisis
title_full The Experiences of the Families of Individuals on the Autism Spectrum During the Pandemic: A Study of Neurodiverse Individuals and Their Caregivers in the Context of Anomie Caused by the Global Health Crisis
title_fullStr The Experiences of the Families of Individuals on the Autism Spectrum During the Pandemic: A Study of Neurodiverse Individuals and Their Caregivers in the Context of Anomie Caused by the Global Health Crisis
title_full_unstemmed The Experiences of the Families of Individuals on the Autism Spectrum During the Pandemic: A Study of Neurodiverse Individuals and Their Caregivers in the Context of Anomie Caused by the Global Health Crisis
title_short The Experiences of the Families of Individuals on the Autism Spectrum During the Pandemic: A Study of Neurodiverse Individuals and Their Caregivers in the Context of Anomie Caused by the Global Health Crisis
title_sort experiences of the families of individuals on the autism spectrum during the pandemic a study of neurodiverse individuals and their caregivers in the context of anomie caused by the global health crisis
topic anomie
pandemic
autism spectrum
url https://czasopisma.uni.lodz.pl/socjak/article/view/18996
work_keys_str_mv AT annaprokopdorner theexperiencesofthefamiliesofindividualsontheautismspectrumduringthepandemicastudyofneurodiverseindividualsandtheircaregiversinthecontextofanomiecausedbytheglobalhealthcrisis
AT nataliaozegalskałukasik theexperiencesofthefamiliesofindividualsontheautismspectrumduringthepandemicastudyofneurodiverseindividualsandtheircaregiversinthecontextofanomiecausedbytheglobalhealthcrisis
AT mariaswiatkiewiczmosny theexperiencesofthefamiliesofindividualsontheautismspectrumduringthepandemicastudyofneurodiverseindividualsandtheircaregiversinthecontextofanomiecausedbytheglobalhealthcrisis
AT annaprokopdorner experiencesofthefamiliesofindividualsontheautismspectrumduringthepandemicastudyofneurodiverseindividualsandtheircaregiversinthecontextofanomiecausedbytheglobalhealthcrisis
AT nataliaozegalskałukasik experiencesofthefamiliesofindividualsontheautismspectrumduringthepandemicastudyofneurodiverseindividualsandtheircaregiversinthecontextofanomiecausedbytheglobalhealthcrisis
AT mariaswiatkiewiczmosny experiencesofthefamiliesofindividualsontheautismspectrumduringthepandemicastudyofneurodiverseindividualsandtheircaregiversinthecontextofanomiecausedbytheglobalhealthcrisis